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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> What's (finally) working for me...
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Message started by Joshua on Sep 12th, 2012 at 1:06pm

Title: What's (finally) working for me...
Post by Joshua on Sep 12th, 2012 at 1:06pm
480mg verap (240 am/pm)
100mg Zonagran (all pm)
.
Prior to this I was on a pred taper down from 80mg and I did one week of Migranal spray, 1 spray in each nostril every 8 hours) --
.
It's been a few days now, HA free-- usually once the pred taper hits 30mg or 40mg they would come back.
.
Joshua

Title: Re: What's (finally) working for me...
Post by Brew on Sep 12th, 2012 at 1:13pm
Glad to hear something's working.

Question for you. Migranal is considered to be an abortive, used when needed to abort an attack. Why would you take it every 8 hours?

Title: Re: What's (finally) working for me...
Post by Joshua on Sep 12th, 2012 at 5:40pm
Neuro said it was a long shot but to try using dhe on that schedule for one week with caveats about mixing with triptans. It has been known to provide extended >24hr relief and she said might help break or calm cycle.   Before I even started zonagran I noticed when I used migranal I got 24 to 36 hours of relief from one dose after aborting.  It is unconventional to be sure and she said same...but the whole package seemed to work.

Title: Re: What's (finally) working for me...
Post by wimsey1 on Sep 14th, 2012 at 8:33am
My experience with Migranal has been the same as yours, but not the use of Migranal as a preventative. I would get 24-36 hours of relief, too, after one dose, leaving a second dose for future use. Seems to me the cost of using it as a preventative would be prohibitive, too. My scrip comes with 8 bottles breaking down to 16 doses/month. I also found continued use daily (when I was in Germany and sans O2) it's effect diminished then disappeared. Worst days of my life. Glad it's working for you, though. God bless. lance

Title: Re: What's (finally) working for me...
Post by Joshua on Sep 14th, 2012 at 2:26pm
Agreed, I think that's why she said only try for a week.  Still HA free-- 5 days on.  Feeling good.  Feel sometimes like one is coming, but it never does.

Title: Re: What's (finally) working for me...
Post by japanzaman on Sep 15th, 2012 at 2:52am
Always a good feeling when you start to feel like you might be able to live a normal life again. :)

Title: Re: What's (finally) working for me...
Post by Joshua on Sep 15th, 2012 at 7:52pm
Totally agree.  It's amazing how fast life can "go back to normal" -- after the craziness of trying to stabilize.

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