New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Medications, Treatments, Therapies >> O2 Questions http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1343826159 Message started by Freddyz on Aug 1st, 2012 at 9:02am |
Title: O2 Questions Post by Freddyz on Aug 1st, 2012 at 9:02am
I'm trying to get into a Dr. to prescribe the O2. My neruo is on vacation and the other Drs at his practice aren't much for prescribing me something over the phone without his approval. I've read the O2 page and have a few questions.
1) Once I get a script, where can I get this stuff. I don't think my regular pharmacy carries it? 2) what size tank should I get? It sounds like at the rate being suggested, one could blow through a tank pretty quickly. I'm not even sure if it will work for me so I'd like to get something that would last me about a week aborting several CHs a night. If it works, I'll look into something larger? 3) for the larger tanks is there a delivery service or something? 4) where can you purchase the special regulators (15 to 25 lpm)? I don't want to have to wait for an on-line purchase so I was hoping to find a store local? Do I need to look for a medical supply store or something like that? Thanks |
Title: Re: O2 Questions Post by wimsey1 on Aug 1st, 2012 at 9:27am Freddyz wrote on Aug 1st, 2012 at 9:02am:
|
Title: Re: O2 Questions Post by Freddyz on Aug 1st, 2012 at 10:01am
Thanks Lance. Dr. faxed me a script and I just got off the phone with Respacare. I think I may be able to actually take delivery today. Told them about the high flow rate and non-rebreather mask and they are able to accomodate. I'll discuss the tank size with the rep when she calls back.
Thanks |
Title: Re: O2 Questions Post by Freddyz on Aug 2nd, 2012 at 7:06am
Thanks Lance and Batch. I got the script yesterday morning and had 3 E takes delivered last night. I was able to abort 2 CHs last night with the wrong mask. The guy that delivered it from Respicare was really helpful and very familiar with CHers. He's going to drop the non-rebreather mask at my house today. My only disappointment is that I'm going to have to go with another company because the largest tank they offer is an E and at this rate I'll need a delivery every few days. As I mentioned in other posts, I've tried O2 before and it didn't work. Last night I caught both CHs very early on, and was able to abort both. I'm interested in seeing if it works when I'm in the middle of a really nasty one (actually, It would be great if I never had the opportunity to figure that one out). I need to read up on the best way to administer (how fast should I breath, should I be breathing through my nose or mouth...) but this is looking good so far. I'll get in touch with Roberts to see about getting a larger tank and I'll look on-line for the regulator you've suggested.
Batch - BTW, I just finished the methylprednisolone pack and I swear it just made things worse. When I started the pack things didn't get better but as the doses reduced, my headaches got worse. I took my last dose this morning so I'm preparing myself for a shitty day. Also, my D3 test came back at 51 after several days on the regime. I've upped my dose to 20,000. Will keep you posted. Finally, my blood test came back with slightly elevated white blood cell count. I read out here and on other sites that CHs can raise your WBC. Any experience with that? I've said this before but I'm just amazed at how helpful everyone is and the time some of you guys spend helping others out. |
Title: Re: O2 Questions Post by wimsey1 on Aug 2nd, 2012 at 7:38am
Hey there, Freddyz, and congratulations on the aborts. Yes, the earlier we get to the CH the easier and faster it is to abort. I couple O2 with Monster or Red Bull. It seems to help. As for breathing techniques, I can play around with them when I'm in the early stages of a hit, but when I wake up with one, or it progresses, all I can do is breathe as rapidly and as deeply as I can. All tricks go out the window and it's just me and my shadow....err, beast. blessings. lance
|
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |