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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> think we found the right dose of Vera
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Message started by johnnysrock on Jul 28th, 2012 at 11:38am

Title: think we found the right dose of Vera
Post by johnnysrock on Jul 28th, 2012 at 11:38am
Well its been a month since Johnny started Vera, with a slow increase in the dose.  At 200 mg twice a day the headaches are all but gone.  He is back at work now and feeling much better.  He had a couple of 5 scale headaches this week but nothing he could not sit through.  Sleeping all night which is a blessing.  Thank you again for all your info and feedback, we would never have known which direction to go with the MD's without this forum.

We will stick around and check in periodically to help others with our experiences.

For those supporters of sufferers, hang in there and remember we are the rock behind the headache. ;)

Title: Re: think we found the right dose of Vera
Post by Brew on Jul 28th, 2012 at 12:12pm
Once he's pain free for two weeks, he should experiment with a SLOW taper off. It's the only way to find out if the cycle has run its course.

Title: Re: think we found the right dose of Vera
Post by Mike NZ on Jul 28th, 2012 at 5:14pm
Great to get a good result like this, however don't be too surprised if in the future that a slightly different dose is required.

Remember to enjoy the time too when CH is being well behaved.

Title: Re: think we found the right dose of Vera
Post by wimsey1 on Jul 30th, 2012 at 9:27am

Mike NZ wrote on Jul 28th, 2012 at 5:14pm:
Great to get a good result like this, however don't be too surprised if in the future that a slightly different dose is required.

Remember to enjoy the time too when CH is being well behaved.


Ditto and double ditto! Way to go. blessings. lance

Title: Re: think we found the right dose of Vera
Post by TJMBeav on Aug 4th, 2012 at 1:37pm
I think I can speak for him - I share both his relief and I would guess his joy for being Pain free.  Not to mention the fact that (if even only a temporary thing) knowing that there is effective treatment is relieves much of my anexity about the next cycle.

Great news - and hope the next cycle never comes.

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