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Cluster Headache Help and Support >> Cluster Headache Specific >> Need Advice http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1341609851 Message started by emmettk90 on Jul 6th, 2012 at 5:24pm |
Title: Need Advice Post by emmettk90 on Jul 6th, 2012 at 5:24pm
I have been suffering with cluster headaches for 5 and a half years now, and I am chronic so I dont get any relief. My specialist now wants me to start a treatment where I get a steroid injection in my neck every 3-4 weeks. I am just asking for peoples experience of this and if it works.
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Title: Re: Need Advice Post by Linda_Howell on Jul 6th, 2012 at 5:41pm
Exactly what did he tell you when he suggested this?
Is talking about a Prednisone taper?? I've never even heard of this treatment and can't think for the life of me why he'd give you a shot in the neck. |
Title: Re: Need Advice Post by Katherinecm on Jul 6th, 2012 at 6:36pm
My guess is some sort of nerve block? Is that what you mean?
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Title: Re: Need Advice Post by emmettk90 on Jul 7th, 2012 at 1:57am
I was kind of out of it when I saw but Katherine is correct it is supposed to temp burn the nerve.
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Title: Re: Need Advice Post by emmettk90 on Jul 8th, 2012 at 3:42pm
Sorry I should have said what I have tried. I have tried Verapamil and Topiramite on low dosage, and I am currently on 1200mgs Lithium a day along with 100mgs of tramodol and Oxygen when required.
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Title: Re: Need Advice Post by Joshua on Jul 8th, 2012 at 4:46pm
"I have tried Verapamil and Topiramite on low dosage"
. I tried nerve block 2 years ago with little success. I was PF for about 1 day during a vicious cycle, but it did little else besides block 1 day's woth of headaches. . Has your dr. considered a higher dose of verapamil before trying the topirmate or lithium? I wasn't clear from your response if you've tried both on low doses or just topiramate. Verap is usually the first line of defese for CH. (from my personal experience and experience on these boards.) . I am also chronic, and have been under control for the past 2 years with nothing more than 480mg - 600mg of verap a day. . Currently I'm finding that isn't working, but it has for a long time, and so now I'm trying D3 (which *IS* working I believe.) . Abortives : 1st- oxygen - 2nd Imitrex injection . |
Title: Re: Need Advice Post by coach_bill on Jul 9th, 2012 at 9:28pm
My doctor offer me a pred shot. Just so happened to be in the neck. I said no. I told him how i was using the clusterbuster method and he said i was being silly. I told him " your the one holding a 4 inch needle and your calling me silly". I have not been back since. Its been over 4 years now.
Coach Bill |
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