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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Back on the Topamax http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1341230987 Message started by Joshua on Jul 2nd, 2012 at 8:09am |
Title: Back on the Topamax Post by Joshua on Jul 2nd, 2012 at 8:09am
In addition to the D3 therapy - have started taking the Topamax again. It was the only thing that worked last time other than prednisone. I went from 25mg (no side effects) to 50 mg last night and got slammed with the dopeyness. I made the mistake of taking my dose at 6pm, it wiped me out for the rest of the night and in to today... hoping it lessens as I get used to it. Will start taking it before bed instead of before dinner!
. In ~2 weeks the pred taper should be done, the D3 shouled be fully ramped up, I can get my levels tested and see where I am. |
Title: Re: Back on the Topamax Post by Guiseppi on Jul 2nd, 2012 at 9:27am
I've never had to go with "dopey-max" as the lithium has always worked well for me. Sadly there is a percentage of users who have to fight through the brain willies! ;) Hope it's a short term deal and you can get back on top again.
Joe |
Title: Re: Back on the Topamax Post by Guiseppi on Jul 3rd, 2012 at 9:23am
Has your doc tried lithium in the past? Don't tlet the hollywood stereotype of a mouth breathing zombie scare you. I take 1200 mg a day and at that dose if I didn't tell you I was on it you'd never know. It takes a little blood work the first go round to establish what your therapeudic dose is as we all process this salt a little differently. Might be worth a shot.
Joe |
Title: Re: Back on the Topamax Post by Joshua on Jul 3rd, 2012 at 10:00am
I will be honest. I am 100% put off by the lithium stereotype. There- I said it. That said, I can no longer put off trying it I think.
Weight gain, hazy waking hours, etc... that's what I'm scared of (as I already struggle with attention and weight) -- so.. What was your experience? |
Title: Re: Back on the Topamax Post by Guiseppi on Jul 3rd, 2012 at 12:04pm
The only side effects...over 20 years of using....you pee a LOT the first 2 weeks, takes a few blood draws the first time around to set a therapeudic level....and you feel a little lethargic. Nothing a cup or two of coffee wouldn't eliminate. I was a working cop on lithium and even my beat partners couldn't tell. I refused the first time the doc suggested it too, just because of the negative mental images i had. In hind sight I could have saved a few more years of betting my arse kicked by beasty. So believe me, i get it. :)
joe |
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