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Cluster Headache Help and Support >> Getting to Know Ya >> Is there a pattern to it all?? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1339190830 Message started by Ger on Jun 8th, 2012 at 5:27pm |
Title: Is there a pattern to it all?? Post by Ger on Jun 8th, 2012 at 5:27pm
Hi all,
I've just joined this site and WOW! I was starting to think there was something wrong with me, but hey I'm not alone. A big hello to everyone around the globe from here in little old North Wales. I was wondering if anyone had rustled up some kind of chart or similar to see what the cause of these bloody things is or are there any patterns to these, I've read that some folks get 'em towards the end of the year ( Like me ) they wake you not long after nodding off ( like me ) they REALLY REALLY hurt and reduce men to tears ( like me ). you get the picture. I'll try to start it off. I'm male 38 yrs old non smoker, non drinker ( T total ) never tried drugs (Illegal kind ) married ( happily, in case the wife sees) not under or over weight, drink a fair bit of pepsi and decaff tea love cake and biscuits or anything with sugar I've got a childish sense of humour and a good creative mind, umm, err, ok I'm running out of ideas but you know what I mean by this can some computer whizz maybe sort something out on here that we can all fill it in with specific questions and we may end up with a pattern. Oh yeh, I read somewhere on here that someone asked if they could fly, I've tried flapping my arms like hell in the back garden to the amusement of my neighbours but I'll be damned if I lifted off, can others take off?? Thanks for listening to my rantings. |
Title: Re: Is there a pattern to it all?? Post by Ger on Jun 8th, 2012 at 5:50pm
Hi there,
To be brutaly honest I don't even know for sure if I do suffer from CH's but after spending a load of time on the net looking a differing types of headaches these ch's have way too many similarities to not warrant further investigation, I'll be seeing my local doc next week and asking more precise questions, I saw him earlier today and looking back he did seem to aim a few ch related queries my way such as severity, timing, duration, etc etc. he pescribed sumatriptan 50 mg and Ibuprofen and paracetamol, earlier on today I took one of these sumatripy thingys and bugger all happened I was still crippled with pain for the standard 90 mins and just as it was ending I found this site. Please tell me when you get these ch's is it more a case of a 24/7 light headache with the odd horrendous one lasting around 1.5 hours the whole event lasting from a few weeks to several months. Because thats what Ive got. |
Title: Re: Is there a pattern to it all?? Post by Ger on Jun 10th, 2012 at 3:55pm
Thanks for the feedback, I'm going to start a diary ASAP.
With me being a driving instructor I've got a diary on the go anyhoo so I should be able to adapt to it quite easily. I had 3 attacks yesterday which was quite worrying normally it's 1 a day at it's worst, I slept like a log last night and I've had nothing today, I hope I get nothing tomorrow as I'm going with friends to Alton towers ( the UK's version of Disney ) I really need a nice break. I think I'll make an appointment to see my doc next week and request a noodle specialist in the hope of getting somewhere..... Thanks again for all your support as this is some scary sh*t. |
Title: Re: Is there a pattern to it all?? Post by wimsey1 on Jun 12th, 2012 at 7:45am
The only thing I would add to what has already been said is if you are diagnosed with CHs, push for three things: a good preventative, a steroid taper, and an effective abortive. The most effective abortives are O2 and imitrex injections. The pills are way too slow. There are also nasal sprays available which are better than pills. But, a diagnosis comes first. The diary will go a long way in helping you chart whatever "personal patterns" emerge. Include the quiz at left as well. Good luck and God bless. lance
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Title: Re: Is there a pattern to it all?? Post by lydia nichole on Jun 12th, 2012 at 11:48am
I think it has to be a problem in are DNA or something because there are chronic and episodic sufferers. I get so mad because it something that is sooo painful and so depressing to have and yet so little research is being done.
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Title: Re: Is there a pattern to it all?? Post by AppleNutClusters on Jun 12th, 2012 at 12:31pm
Just a note on the headache diary, don't be surprised if your doctor barely glances at it. I've had a GP and two neurologists completely ignore the notes I'd taken, and I almost quit keeping one since the docs didn't seem to care. I decided to keep the diary for myself, as I was able to pick through my own data easily and look for patterns. Docs have limited time, so I would highly suggest looking for these patterns yourself and summarizing them ahead of time.
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