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Cluster Headache Help and Support >> Cluster Headache Specific >> Weird rash after cluster headaches http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1338946964 Message started by Carol on Jun 5th, 2012 at 9:42pm |
Title: Weird rash after cluster headaches Post by Carol on Jun 5th, 2012 at 9:42pm
Hi, everyone. I'm Carol. My wonderful husband has had cluster headaches since 1968. Recently, as in the past few months, a new and interesting symptom has appeared. About 2 hours after the cluster, he will suddenly break out in a rash over his entire body, starting at his feet. This is a bright red, warm to the touch, slightly bumpy rash that itches like mad. He's only taking ibuprofen (800mg) for the headaches because the Veterans Administration no longer has his usual med. He takes this amount of ibuprofen for hip pain, and never gets the rash then, only after a cluster. I haven't been able to find anything about this. When it happens, he takes either Claratin or Allegra, and about 2 hours later, the rash begins to abate. Any ideas?
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Title: Re: Weird rash after cluster headaches Post by Carol on Jun 6th, 2012 at 4:06pm
AppleNutClusters, you just might be onto something. That looks almost exactly like how he breaks out. And he always goes to bed, under the comforter. I told him, next headache, no getting under the comforter.
Mike, he's a Veterans Administration patient as he is 100% disabled from Vietnam. Asking to be referred to a neurologist and actually GETTING referred are usually very different things, but we will try again. He was on Cafergot, which is a combination of ergotomaine and caffeine and it worked wonderfully for many, many years, until the VA decided that it was "too old" and "not effective" and removed it from their list of permitted medications. |
Title: Re: Weird rash after cluster headaches Post by AppleNutClusters on Jun 6th, 2012 at 5:22pm
Is Migranal on the approved list? It's another ergot-based med, dihydroergotamine. It's a nasal spray and could be combined with a caffeine tablet or energy drink if needed.
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Title: Re: Weird rash after cluster headaches Post by Mike NZ on Jun 7th, 2012 at 3:24am
I'm sure some of the US based people will have some advice on how to deal with the Veteran's Administration.
However CH is something where you need to do all you can to get the treatment needed. Just relying on doctors to sort things out gets most people nowhere quickly other than more pain. Cafergot was one of the treatments of choice many years ago, however now there are much, much better options, as I wrote in my post. Moving onto some of them should help a lot. |
Title: Re: Weird rash after cluster headaches Post by Akina on Jun 7th, 2012 at 5:03am
Carol, I've sent you a PM on the VA issue. The VA is an ornery machine that needs a good kick every once in a while. Even over matters that are not as severe as CH's.
I will echo what has been said about other forms of medication that are more recent, as well as the 02. Methods used in the past has become more "updated" as more and more sufferers/supporters have taken the initiative to learn about this condition. I would also suggest he has his 25(O2)D levels checked. He might be deficient in that area, and there is a wonderful vitamin regiment that is allowing a great number of sufferers relief from the Beast. You can find all the info on it over in the Medication section list under "123 Days PF and I think I know why" thread. It might be something to look into not only for him, but for yourself. |
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