New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Medications, Treatments, Therapies >> new here http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336689418 Message started by Tanya on May 10th, 2012 at 6:36pm |
Title: new here Post by Tanya on May 10th, 2012 at 6:36pm
My name is Tanya, and I just found this message board. My brother suffers from CH, and I am trying to help him. He is 33 has had them for 8 years. Gets an attack every two years like clockwork from the end of may till the first week of september. Except this year they came back. It's been less then a year since his last attack. :( Looking for any info that might help him.
|
Title: Re: new here Post by Brew on May 10th, 2012 at 7:17pm Quote:
Then you've come to the right place. There's lots here that will help him. Nose around, click and read. |
Title: Re: new here Post by Tanya on May 11th, 2012 at 10:34am
Thanks guys. Yes he is seeing a dr that specializes in these CH. He finally got diagnosed after 3 months of going to the ER and having drs not believe him or thinking he just wanted some drugs. (that was 8 years ago now) He's tried a variety of the drugs that I've seen many of you are on . He is currently on Zomig(can't remember the official name) for when he gets an attack. But they are 120$ for 8 pills and of course insurance does not cover. Plus he has Oxygen . I'm finding this forum so helpful. I am looking at some alternative natural things that could help him prevent or at least cope with them. His quality of life is the s**ts right now. :(
|
Title: Re: new here Post by Bob Johnson on May 11th, 2012 at 12:15pm
Good that he is seeing a specialist for so many docs lack experience/training in headache.
BUT--important that he not start to use any treatment which without the doc's kowledge. This leads to confusion in knowing what is/is not effective. AND--would urge himto get started reading/participating here. This is a highly personal experience he is undergoing and he must be deeply involved in his own treatment, in gaining understanding, in "taking in" the essential insights/information. You can't do this by remote. Suggest you buy him the second title, below: MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $50 at Amazon.Com. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book....") HEADACHE HELP, Revised edition, 2000; Lawrence Robbins, M.D., Houghton Mifflin, $15. Written for a nonprofessional audience, it contains almost all the material in the preceding volume but it's much easier reading. Highly recommended. |
Title: Re: new here Post by tachead on May 12th, 2012 at 12:33am
He needs to educate himself about his affliction..this is the place to do that. Get him with the program. Read read read. The above mentioned books are also an excellent resource.
tachead :) |
Title: Re: new here Post by wimsey1 on May 14th, 2012 at 10:07am
I'm more than a little concerned that the dr prescribed pills as an abortive for CHs. Pills are way too slow for us. Zomig comes in a nasal spray form, as does Migranal. And the injectable form of sumatriptan is the fastest of the drug abortives. The best abortive though hasn't been mentioned and that's Oxygen in 100% high flow (15lpm+) form. It is a safe and natural abortive that has saved my life. Coupled with an energy drink (Monster, Red Bull) it is extremely effective. Check out the link at the left. And I concur with getting your brother online himself. It's great you are trying to help him. God bless. lance
|
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |