Eurolight: An European initiative to evaluate the impact of Cluster Headache.

For more information please see:

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Eurolight publications, most of them are "open access" / free full text:

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Currently the questionnaire is available in the following languages:

    English
    Czech
    Danish
    Dutch 
    Finnish
    French 
    German
    Italian 
    Norwegian
    Portuguese
    Spanish
    Swedish

Does anybody have a contact to a Czech or Portuguese CH support group and/or medical centre for (cluster-) headaches, to let them know about this survey?

All other European CH support groups have been informed, I think. If not: Please change that and let them know too!

pf wishes
Friedrich

What is the purpose of the study?

Your participation in this Cluster Headache survey is for the benefit of yourself and other cluster headache patients. The study aims to evaluate the physical, emotional, socio-economic impact of cluster headaches as well as the disease-management satisfaction. The results will help to have a better understanding of cluster headache as a serious health problem and to assess the burden of cluster headache. The obtained information will contribute to evaluating the needs for an optimal disease management and ultimately improving cluster headache services and quality of life. The data will be used for publications in lay and scientific literature as well as reports to the European Commission

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*bump*

Cluster,

Is this for Europeans only????

Don

Skyhawk5 wrote on Jun 11^th, 2012 at 10:05pm:

Is this for Europeans only????

From trying to do it it seems so as it asks which European country you are in.

I attempted to enroll but it's for European countries only--didn't have a tick for USA folks.

================
6/13-update
Have contacted the study's director and they have plans to add the USA to the countries open to participate.

In process of working out some communication link with them with the--perhaps--goal of getting our group involved in their efforts. All very tentative, at this time....

Go Bob!

My Neuro said he only looks at surveys for CH info on the web.

Don

After a little break for server maintenance the Eurolight survey is back. If you live in Europe, suffer from cluster headache and if you haven’t participated yet, please register here to take the survey:

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The explanations and the questionnaires are available in twelve languages. Please share this information with any European cluster headache patient you know.

The survey questionnaires are still available. If you are a European with cluster headache and you haven’t participated yet, please do so!

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The Eurolight Survey will be closing soon. If you live in Europe and haven’t done your mouse clicks yet please register and enter your response right now:

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