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Cluster Headache Help and Support >> Getting to Know Ya >> I wish I didnt have to say Hello http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334287525 Message started by FattyMcButterpants on Apr 12th, 2012 at 11:25pm |
Title: I wish I didnt have to say Hello Post by FattyMcButterpants on Apr 12th, 2012 at 11:25pm
Well, I was diagnosed today with CH..YAY ME!!
I have been having the headaches for going on 6 weeks, and they ranges from 1 per day to up to 4/day. I did an IV of steroid and another med if forgot but end in kote or something . It seems to do ok, but when I go to lay down to sleep the ice pick jumps back in to my eyeball. Do you have any tricks to be able to sleep standing up or in a chair???? Also, has anyone had any luck with a chiropractor doing neck adjustments????? Thanks! |
Title: Re: I wish I didnt have to say Hello Post by FattyMcButterpants on Apr 12th, 2012 at 11:33pm
ok I found it
Depakote divalproex sodium |
Title: Re: I wish I didnt have to say Hello Post by RichardN on Apr 13th, 2012 at 12:56am
Hi & Welcome to Clusterville
Sorry you have to be here, but glad you found us. You've hit the motherlode of CH info/caring/sharing . . . and there's not a drug or therapy or surgery which is not covered for treatment of CH. I can't comment on Depakote, as I personally haven't used . . . but more will be along with their experience with same. Not familiar with the other med you mentioned either. There's of host of preventatives, which reduce the frequency/intensity of attacks (I used Verapamil . . . some combine with Lithium or other meds) as preventive and 02 as abortive for the last ten years. There's a great deal of info on oxygen as abortive . . . BECAUSE IT WORKS for most of us to abort before the "dance" stage. After eleven years chronic, have now been painfree since mid-November due to the D3 regimen you can read about on the "Meds, Therapies, Treatments" board, "123 days PF and I think I know why", thread started by Batch. Read the links on the left, especially the "oxygen info". You have a great deal of reading to do, but know that the information presented here is done so by folks who truly know your pain and our goal is to get you the best info to take to your doc (or help you find a CH savvy specialist) and see that you get some control over this beast of ours. Ask any questions you might have . . . someone here will have some answers for you. Be Safe. PFDANs Richard |
Title: Re: I wish I didnt have to say Hello Post by ariel on Apr 13th, 2012 at 7:11am
I tried sleeping sitting up in a recliner, unfortunately it never helped me. But, it may help you. I also had neck adjustments by a chiropractor. It wasn't a help for me, but sometimes you just try everything & it wasn't expensive. Good luck to you.
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Title: Re: I wish I didnt have to say Hello Post by Bob Johnson on Apr 13th, 2012 at 8:12am
When you are first starting these meds it may take some dosage adjustments & time for your body to adjust to the med before you can evaluate the effectiveness. And it may be necessary to change a med for we don't all respond to the same meds in the same way.
Communication with your doc is important. Save our money on chiro. No consistent benefit reported. For sleep, try OTC, melatonin, 3-5mg before sleep. Cheap and no Rx required. Ask the druggist if ergotamine SL, 2mg is available. If it is, one taken an hour before sleep is quite useful. |
Title: Re: I wish I didnt have to say Hello Post by FattyMcButterpants on Apr 13th, 2012 at 12:37pm
I have been a believer in melatonin for several years, and I just got a couple of monsters for emergencies. So far today I havent had a HA yet...... But since I had 4 last night I think I am deserving of a break!!
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