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Cluster Headache Help and Support >> Getting to Know Ya >> Just been diagnosed http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334238720 Message started by aimee25 on Apr 12th, 2012 at 9:52am |
Title: Just been diagnosed Post by aimee25 on Apr 12th, 2012 at 9:52am
Hi,
I came home from hospital last night after having spent two days there. I was diagnosed with cluster headaches in A and E the doctors knew straight away. When they tried to tell me, I had no idea what the illness was the word headache just didn't truly describe the pain. I spent the following two days in a ward where the doctors gave me various drugs to try and ease the pain nothing would work. I told them if they can't help I am going home they tried everything and the attacks just kept coming. The only pain relief that worked (and only for a very little while) was morphine but it turns out the continued use of morphine can aggravate CH's. So now I am on steroids and Verapamil oh and paracetamol which does absolutely nothing. I was so happy to get home last night that I almost forgot the dread of the next attack then it came bang on time 11:30. No words describe. 35 mins later the pain was easing. I have been doing some research on this condition today and I'm not gonna lie, I have bummed myself right out. The doctors didn't really know enough about CH's to go into detail and now I know. It's sinking in, this is something I will constantly be dreading and the dread of the pain is 2nd only to the pain. |
Title: Re: Just been diagnosed Post by aimee25 on Apr 12th, 2012 at 10:31am
My doctor in the hospital was very good don't get me wrong. Its just his knowledge on the subject wasn't great. After having done my own research as well I do believe I have been diagnosed correctly. I have been referred to a neurologist which I should see in about 2 weeks. I did use oxygen in hospital which did ease the attack but it depended on how far in to an attack I was.
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Title: Re: Just been diagnosed Post by aimee25 on Apr 12th, 2012 at 10:41am
Dx? is that diagnosis? if so why would you not accept it?
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Title: Re: Just been diagnosed Post by aimee25 on Apr 12th, 2012 at 10:44am
As i said Oxygen is not the only treatment I received, I also got morphine and Verapamil and steroids. I also had the injection although I am not entirely sure what it was called it bagan with S I was in way too much pain at the time to take notice of what they were putting into me
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Title: Re: Just been diagnosed Post by Bob Johnson on Apr 12th, 2012 at 11:00am
Your concluding comment in the first message: docs didn't know enough...
That's the key point I'm trying to convey. This is a complex area of medicine and Cluster is found in about 1% of the population, i.e., many docs never gain the skill they need to treat us. The meds you were given is one element of the treatment. Questions dosing, timing, combinations of meds, etc. are ones which require experience/skill. One of the world's leading headache neurologists (former in London) has published studies of how many years & # of docs many people experience before finding knowledge/skill. Our membership has encouraged folks to seek skilled docs at once, if at all possible, to avoid this issue. Yes, Dx means diagnosis. Should have suggested that you explore the buttons, left of this page, starting with the OUCH site. Good basic information which will benefit you. |
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