New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> Long time sufferer, first time poster. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334075329 Message started by daddorn on Apr 10th, 2012 at 12:28pm |
Title: Long time sufferer, first time poster. Post by daddorn on Apr 10th, 2012 at 12:28pm
I can remember being 10-12 years old and having these awful headaches for hours at a time. they didnt happen everyday but from time to time. As i got older they would come usually in the winter months, everyday, and for a month or two. I seen eye doctors, neurologists, chiro's, allergists, dentists to try and figure it out. I have gone spells of 2-3 years without an attack then out of nowhere they start again. Like many of you I have been very close to suicide. My children and wife have seen me through several attacks, and I am so thankful for their understanding. Imitrex injections have been the only thing to help. I usually take a steaming hot shower and that seems to help.....sometimes. I don't know if it's the steam or it just relaxes me to the point of being able to cope. Most people have no idea and I cannot convey the amount of pain that is involved during an attack. This is great to know that others deal with this and I am not alone. I live in NW Ohio, 40 yr old male. Hoping that the last attack is the LAST attack.[pre][/pre]
|
Title: Re: Long time sufferer, first time poster. Post by RichardN on Apr 10th, 2012 at 3:34pm
Hello daddorn and Welcome to Clusterville
So very glad you found us. We DO understand! We DO know the pain of the beast! . . . and you've just found the motherlode of CH info/caring/sharing. First, glad you have the Imitrex (I can't use due to some artery blockage and high cholesterol), but you need to call your doc and get a script for oxygen . . . MUCH, MUCH cheaper, effective for 70%+ of clusterheads to abort attacks. If used at the first sign of attack, most can abort in minutes (and save the trex for those attacks the 02 doesn't kill), with no side effects. Call your local med 02 suppliers and ask what their cash price is for "E" tanks as most insurance won't pay for 02 unless you have low blood oxygen levels . . . so . . . many docs won't prescribe. Then you'll need a regulator that goes to at least 15 lpm (many prefer the 25 lpm reg), and a non-rebreather mask (the one with the bag), preferably an O2ptimask, with big green 3-litre bag, designed for clusterheads . . . . 02 is a miracle abortive for most of us. Check out the D3 regimen described in Batch's post on the Meds, Therapies board . . "123 days PF and counting . . ." I've been chronic since 1/01, and have now been painfree since mid-November due to this course of OTC supplements. You've got a lot of reading to do . . . and feel free to ask any questions you might have. Everyone here truly understands your pain. Be Safe, PFDANs Richard |
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |