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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Pizotifen http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1304424580 Message started by R33_Ian on May 3^rd, 2011 at 8:09am

Title: Pizotifen
Post by R33_Ian on May 3^rd, 2011 at 8:09am

Anyone have experience with Pizotifen?

Title: Re: Pizotifen
Post by Bob Johnson on May 3^rd, 2011 at 10:32am

The major medical library in the US has no mention later than 2002 and the few earlier articles has little to say of worth.

My interpretation then is: it was run on some trials but didn't emerge as an important med for Cluster.

I may have sent this one to you--but latest evaluation of meds for Cluster, PDF file below.

http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=downloadfile;file=THERAPIES-_Headache_2011.pdf (96 KB | 16 )

Title: Re: Pizotifen
Post by R33_Ian on Aug 6^th, 2011 at 12:50pm

It says for preventative treatment of migraine and cluster headaches on the leaflet...Doesn't work!

Title: Re: Pizotifen
Post by Bob Johnson on Aug 6^th, 2011 at 3:28pm

It's entirely usual to have to try more than one med to find success. Our lives in this group are full of "try and change."

Patience is survival with this one....

Title: Re: Pizotifen
Post by R33_Ian on Aug 6^th, 2011 at 4:31pm

Indeed! Both my GP and neurologist want to try the 'less risky' meds first so I think this may be a long ride.

Title: Re: Pizotifen
Post by Mike NZ on Aug 6^th, 2011 at 5:14pm

Less risk of them working or less risk of side effects?

I'd consider the potential risk from not having a preventive to be much greater for most people than the side effects of most effective preventives.

Do they really understand the pain of a CH? If they did, I doubt they would take the approach they are doing.

Title: Re: Pizotifen
Post by R33_Ian on Aug 7^th, 2011 at 1:49pm

Exactly Mike! I think it's less risk of getting themselves in trouble if anything went wrong. Covering ones arse you might say!

What makes it worse the last doctor changed my prescription from nasal sprays to tablets because of the expense. Half an hour extra agony for me each time but it's ok cos I know I've saved the NHS a few quid. THANKS!