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Cluster Headache Help and Support >> Getting to Know Ya >> New to the forum http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1290361830 Message started by Frazzell on Nov 21st, 2010 at 12:50pm |
Title: New to the forum Post by Frazzell on Nov 21st, 2010 at 12:50pm
Hi All
just like to introduce myself, up till six months ago i got these terrible headaches and didn't know what they where until my neurosurgeon told me what they where. Just to give you a little more background I'm now 44yrs and i had my first episode when i was 18 so that's how long I've coped without any medication, in the first instance i went to the doctor but since the pain caused my teeth to ache he sent me to the dentist this is where the fun starts. The dentist said i had wisdom teeth coming through and since there was plenty of room let them come through this is whats causing the pain, so that's what i thought for twenty odd years, until my dentist retired and i asked my new dentist why i was still in pain, to which he xrayed me and said i ain't got any wisdom teeth where the pain was, hey presto i was referred very quickly to the neurosurgery unit to be told i have CH's I've been told and written up for verapamil,o2 and sumatriptan injections, I'm in the UK by the way. On visiting the doctor she was reluctant to put me on the verapamil because it was unlicensed for this condition, she point blank refused to get me any o2, in fact told me to go the hospital if i needed o2, to which i said you try driving whilst in the middle of an attack >:( The last thing is i only have two shots of the sumatriptan at a time, I've never taken it and the silly season started for me last Thursday night, Friday night was the worst don't remember much after 8:15pm the pain was that bad it lasted for about an hour and i then fell as sleep till midnight. i didn't take a jab at the time i don't know why but it was good job i didn't. yep you guessed it the doctors don't do emergency supplies I'll have to wait till the middle of this week to get more, if i was a diabetic or had blood problems i could get emergency supplies, but if i wanted to throw myself off a bridge to get rid of the pain that doesn't count >:( >:( >:( >:( Anyhow sorry for the rant I'm sat here with the only medication i know that works a full bottle of Rum and two shots of suma,the verapamil doesn't work, and I'm just waiting for my next one its been niggling me all day :( so what do i do next insist on the o2 change my doctor ?? i feel even if i asked for the suma tablet i wouldn't get them or do i just suffer in silence for the next twenty years mind you that ain't going to happen because I'll have drunk myself to death before then :'( Thanks for reading my post great site this first time today i've been on it, nice to know folk out there have the same issues all the best Mike :) |
Title: Re: New to the forum Post by Guiseppi on Nov 21st, 2010 at 1:30pm
Welcome to the board, I don't know the UK rules, but I'm pretty sure I've seen others in your part of the world get 02 after being told no, hopefully they'll chime in soon.
Careful with the alcohol, a trigger for a large percentage of CH'ers, although not for all. If you can't get medical 02, look into welding oxygen. Read the oxygen info tab on the left. It'll explain how to get yourself set up. I've gone from 90 minute attacks to 6-8 minute aborts with oxygen, has all but eliminated my use of imitrex. For now, look into energy drinks, red bull, rock star, any containing caffeine and taurine, chugged at the first sign of an attack many can reduce or even halt an attack! Glad you found us, pull up a seat and get educated! ;) Joe |
Title: Re: New to the forum Post by Kate in Oz on Nov 21st, 2010 at 8:36pm
Hey Mike,
Well at least you finally know what ails ya :-/ Posts like yours drive me nuts! It is outrageous that neuro's are so bloody useless when it comes to CH. urrrr I see that Bob has pointed you in the right direction, god bless 'im. I hope that you find a proper doctor soon and get the help that you need!! As far as advice goes, have you tried the energy drinks (with caffeine and taurine), melatonin for night time hits, hot or cold compress depending on what works for you, exercise?? and finally try staying off the booze and see if that helps. I have learnt not to drink during a cycle otherwise OUCH! Wishin' you all the best, Kate |
Title: Re: New to the forum Post by Frazzell on Nov 22nd, 2010 at 2:29am
Thanks for the replies guys some good info there, yep you right stay off the alcohol not good didnt help, got wacked again at 3:30am this morning, funny this was the first time i've ever used the sumatriptan injections, its works really well at aborting the onset infact to well down to my last shot until i can get more tomorrow.
going to browse through the posts latter as its 7am uk time now and i'm shattered off to bed for a bit :) |
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