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Cluster Headache Help and Support >> Getting to Know Ya >> New here http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1288866120 Message started by jared on Nov 4th, 2010 at 6:22am |
Title: New here Post by jared on Nov 4th, 2010 at 6:22am
New to the forum, but very very familiar with the beast. Just a little about myself. I'm 24 now, bday was yesterday, living in Tx. I just got married 2 weeks ago. I have been suffering from ch for 6+ years. I learned of this forum about a year ago or so, but I've never been much of a talker, especially about pain and emotions and such, but as I said in my headache post in the ch specific section, I'm getting a little hopeless. I'm sure I'll be on here from time to time, and look forward to getting new info from people who have suffered along with me, and even long much of the time. Thanks!
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Title: Re: New here Post by jared on Nov 4th, 2010 at 6:43am
Yes I was diagnosed some years ago, and at the moment I'm on 360 mg verapamil, 60 mg prednisone, treximet, oxygen, and that's all I think for the moment. I'm sure it's going to change because, unlike before, I'm still having 9 scale attacks despite the prednisone. I've been awake since it hit me again at 2. Thanks for replying!!!
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Title: Re: New here Post by deltadarlin on Nov 4th, 2010 at 7:59am
Jared,
Have you tried to go higher with the verapamil? 360 mg is not that high of a dosage. I don't know what other drugs you have tried either. There are a lot of drugs out there. What about oxygen? Carolyn |
Title: Re: New here Post by jared on Nov 4th, 2010 at 8:05am
Done that, the oxygen doesn't work so well on my severe ones. As this is my first real bad year, I have not been too high on the dosage, but I'm sure when I call my doc today it is going to increase quite a bit. Thanks!
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Title: Re: New here Post by mikstudie on Nov 4th, 2010 at 9:15am
Welcome jared,sorry you had to find us but glad you did. Listen to these people here they know what they speak. Have you tried Melatonin before bed? It has reduced my night hits to 0. 10mg 1 hour before bed time.
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Title: Re: New here Post by jared on Nov 4th, 2010 at 9:59am
To answer both at once, I am going to call my dr and see if he can't call me in more mg on verapamil. It was actually just upped to the 360. This is actually my first real bad year. Prior to this year, I never had more than 2 episodes. This year it's been a lot crazier. I have never actually never heard of melatonin, but really I'm ready to try about anything, except for lidocaine. Don't think medical cocaine is so great for high bp;)
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Title: Re: New here Post by mikstudie on Nov 4th, 2010 at 11:21am
Melatonin is an over the counter sleep aid that for some WONDERFUL reason heps a lot of people avoid the night hits. I am a 99.9% night hitter and ever since starting Melatonin I have been almost PF.10mg one hour before bed. 8 bucks a bottle any drug store.
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Title: Re: New here Post by DennisM1045 on Nov 4th, 2010 at 11:29am
An important point to take away from Bob's post above is that the regular release formulation has shown better results than the sustained release formulation.
In other words, taking it three times a day works better than once a day. I have little success with Verapamil until I switch to the regular release formulation and followed the method described above. It was night and day. -Dennis- |
Title: Re: New here Post by jared on Nov 4th, 2010 at 3:08pm
Come to think of it, even at 240 mg it seemed to work better on the quick release. I never thought it would make a difference, but I think I might ask my doc to split the dose on my next fill and see if I notice a change. Thanks!
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