i have it since last friday.rent.
up to 5 lpm with nasal cannula.It's too early to be sure as i ve tested only about 15-20 times till now but i have some pretty good hopes at least till now.
average time of headache is 40-50 min and the pressure in the face subsides constantly even though there are some peeks in pain for some min now and then that are pretty damn but i guess i ve been much worser than this.

now it could be ch morphing again and of course it doesn't abort in ways the oxygen works for most of you as in the info advises but it's something.
i ll update this in two months or even more if it is necessary just to be sure about what i am saying(i am thinking to rent it till christmas and then decide if it's worth buying one.)
ordered a non reabreather mask from the o2 supplier which must be on it's way for better results maybe.

we ll see how this goes

Since your CHs are still 40-50 minutes I'd really consider changing to using the standard high flow rate oxygen set up as you'll probably see the duration drop to under 10 minutes.

There is no way I'd want to change my oxygen cylinder / 25lmp regulator / non-rebreather mask for a concentrator now I'm used to what it can do.

After using 25 lpm I'm looking to increase not decrease the flow.  You couldn't pay me enough to go to a concentrator.  Good luck to you.

Jerry

Quote:

Since your CHs are still 40-50 minutes I'd really consider changing to using the standard high flow rate oxygen set up as you'll probably see the duration drop to under 10 minutes.

i would consider a breaking news if what i said already proves right in the passage of time as the concentrator has already been dismissed as not helping at all.
Of course i ll have to wait much longer as i said to see what are the precise results.
if you read my post i already know what is suggested.
i am just posting this with caution myself as comparison between no O2 at all and the concentrator and not of course what you are using(o2 is not cheap at all.it is just cheaper than imitrex and we don't all have welders where we live.)
so i am doing this for myself of course and for others who might be in the same situation with being as much accurate as possible


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There is no way I'd want to change my oxygen cylinder / 25lmp regulator / non-rebreather mask for a concentrator now I'm used to what it can do.

message sent was not necessarily a message received.

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After using 25 lpm I'm looking to increase not decrease the flow.  You couldn't pay me enough to go to a concentrator.  Good luck to you. Jerry

i couldn't pay you enough to go to concetrator?!.....didn't you think at all that this topic might not be for you? :P

I get the feeling that a language/culture gap may be affecting the dialogue here...?

Black, it appears to me that the responders are just hoping you could get the fast effective results like they are with their high LPM systems, and they probably (like me) haven't been keeping track of what's available or affordable for you where you live.

Quote:

get the feeling that a language/culture gap may be affecting the dialogue here...? Black, it appears to me that the responders are just hoping you could get the fast effective results like they are with their high LPM systems, and they probably (like me) haven't been keeping track of what's available or affordable for you where you live.

no language/culture gap here.
just mass spamming doesn't leave room for anything else to breath and moreover not everything being written on the site means it concerns everyone.
we are different on ch but also different people too.
we all try to make our way up but that doesn't mean we are at the same spot

2 months renting a concentrator last cycle ended up costing us $900 sine our insurance wouldn't cover it. Helped a little ( kept ha to 7s) but never aborted them. ( prescribed by doctor even, that was a tough pill to swallow!)

I really wished it had worked; empty o2 tank at night isn't fun. Let us know how the experiment works, i'm curious if the right mask will up the success rate.

black wrote on Oct 17^th, 2010 at 3:15pm:

Quote: After using 25 lpm I'm looking to increase not decrease the flow.  You couldn't pay me enough to go to a concentrator.  Good luck to you. Jerry i couldn't pay you enough to go to concetrator?!.....didn't you think at all that this topic might not be for you? :P

I bow out.  You have your mind made up.  I'll keep that in mind in the future when you are asking opinions.

Jerry

black wrote on Oct 17^th, 2010 at 1:48pm:

ordered a non reabreather mask from the o2 supplier which must be on it's way for better results maybe. we ll see how this goes

Black, I'm confused. You are "just now" ordering a non-rebreather mask, and yet that is a key component of effective O2 treatment. Does this mean you have not really been able to implement high flow rate O2 (15lpm or higher) using a non-rebreather mask as the O2 tip suggests? And if not, why try something else instead of the full gear we have found so effective?

Now that I have a full keyboard I can type a little easier- hate those smart phones.

I should ammend my post to say they TRIED to charge us $900, ended up only having to pay $450 since they couldn't prove the dates they rented it to us. (I keep EXCELLENT records of everything medical and insurance related- got back $400 from my doctor they overcharged us for the birth of our 2nd daughter because of it) Seemed like a really shadey medical rental place so maybe it was just them.

Anyway, Lucas also did not use a nonrebreathing mask, so that might have been the difference. (for the record, he was also rented 2 E tanks at the same time and they were equally ineffective, same mask as the concentrator so that probably played a big role) Because of that we thought oxygen only helped the tiniest bit until we found the different technique to try from this website.

Just thought I'd add our experience with a concentrator- I'm really interested to see what the correct mask difference will make- keep us all posted.

Well, it's your head.

Let us know how it goes.

Best,

George

thanks birds.you are nice.

Lauren i have almost the same results with you.a kip from 5-6 with with some peeks of 7.hope it's not the beast but rather that the machine helps some.
it's something at least in addition to previous friday of kip 10 and continuous hours with nothing.
i ll update this in time.till then cross your fingers it's not
the beast but it really helps even not as high flow tanks do but better than nothing.kept also lithium+verap in same low dosage for other reasons but also so a third factor won't confuse me with this even more.
i rent it 100 euros per month while a tank goes up to
20 euros each(no state insurance here -different system-since i am out of job and i have a limited other regular income in which i have to manage things with).
also i have a question for you.what did your husband understand from the concentrator,the max kip 7 was finally the ch morph or the machine helping so?
till now optimistic and ...smile!
:)

Lets see, we had the concentrator from March to May 2008, so we had it almost his entire cycle. He'd have to stay on it for the duration of his headache and like I said before it only kept them to around a 7, but we all know that is a BIG difference from a 10! It worked like that through the entire cycle, so I don't think it just his cycle morphing. He'd get hit really badly when he was away from it.

It was exhausting though, he'd be up 3 times a night with them during the peak and have to ride the whole ha out. Given the choice we'd go with the welding oxygen and melatonin, but if it was all that was available I'd do the concentrator again. Even the slightest relief from these things is worth it!

I'm so sorry about what you're going through, we can all sympathize with tough times. (Hell, as 2 poor college kids my husband and I lived off of beans for a week! Also so poor we couldn't buy dogfood- so the dog ate beans as well. Yeah, I slept on the couch that week- I let those 2 have the bed to themselves!)

It's always been a comfort to me that everything changes- bad times don't stay bad forever, and good times are to be enjoyed more because of it! Hang in there. Yup, got all deep on ya 1 sentence after joking about dog farts! Well, that's who I am, I guess!

thanks lauren

You're welcome! Hope this keeps your headaches manageable for you, fingers crossed!