Hi, am new to this site but would love any help.  Diagnosed with ch this year and have had them everyday since.  Am on verapomil and topiramate and peridisone but got weined off that.  That of course was the best of all.  Missing lots of work, and so scared, don't want these forever.  UGH!

Welcome,

Have you talked to your doctor about oxygen for the treatment of CH? If not you will.

Best, Coach Bill

Hi fifi. Also try Red Bull or another energy drink with high concentrations of caffeine and taurine when you feel an attack coming on, or when you wake up with a headache in the middle of the night. They've helped me with my last few attacks.

Read the oxygen info tab on the left and get 02!! 32 years and nothing compares to oxygen for speed of abort, no side effects and ease of use. My aborts run about 6-8 minutes. Welcome to the board!

Joe

Hi Fifi,

I know a lot of us have found temporary relief as you did when on a prednisone taper, only to have the CH come roaring back immediately after.

Fortunately there are other effective things we can throw at this beast, the most popular of which (around here at least) is high flow, 100% O2 as outlined in the oxygen info link to the left of this page (if it is visible to you - if it isn't, here's a link: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE)

This is different and much more effective than the old school way most doctors, in their ignorance, still prescribe O2, which is lo flow / rebreather.

Unlike some others here, just drinking an energy drink has never aborted a CH hit for me, but they are certainly worth a try. They have worked for me with shadows, and I believe there really could be something to combining an energy drink with O2 for the old 1 - 2 beast knock out punch!

We have other tips and tricks for you too - glad to see that you're here finding out about them and likely joining the growing legions who have found much improved relief.  :)

We need more information:
for each med, what was the dose, how long did you take it, why did you come off?

What kind of a doc are you seeing (specialty)?

coach_bill wrote on Sep 28^th, 2010 at 10:33pm:

Welcome, Have you talked to your doctor about oxygen for the treatment of CH? If not you will. Best, Coach Bill

yes i have been prescribed oxygen but have not gotten it yet.  Guess i better get some. i've been trying to everything else.   i tried the red bull, not alot of change, sounds like the oxygen is a hope.  Thanks for all the input, love this site.

32 years of CH and NOTHING compares to 02 for speed of abort, ease of use and lack of any side effects. It's so easy to use once you get the hang of it. You'll quickly see why so many of us rant and rave about it! ;)

Joe