Been a while since i had a cluster. Started getting them a few weeks ago and they are getting worse. I've got a doc's appointment tomorrow but am afraid that they will know nothing about these headaches.
Any advice on what I should be telling my doc? I've been down this road before and went to Yale Neurological Center. They put me through the O2 treatment, several different types of meds, imatrex, verapamil, topamax. I've even tried melatonin, which seems to have work somewhat.
I'm wondering if there are any new drugs out there?
Having a hard time functioning during the day and my job really doesn't have too much room to be making mistakes. Sorry i'm rambling but had to jot something down because as you all know, the only people that understand this pain is the ones who suffwer from it.

There are several alternative therapies available that would be worth your while looking into. Check out START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE.

Hello Chief

welcome to the board

Check out clusterbusters it is having grate success if that's a road you can go down , link to the left <<<

also check out the oxygen link to the left <<< for the latest metods of useing O2

Energy drinks like red bull etc  can help reduce the intencity of attacks or even abort miled ones.,

I'm shore some one with more knowledge will be along soon ,
your in the right place for the best advice you can get , read read and read some more.

Good luck and God bless

Nigel

[edit]Cos I can't spell[/edit]

Welcome to the board, sure a pain when he rears his ugly head again ain't it? Not much NEW, just changes in how we use the existing treatments. Did Verapamil or Topomax work at all as a prevent? What doseage were you on? Have you tried Lithium as a prevent?

Did oxygen work for you as an abortive? If not, have you read the oxygen info tab on the left, to make sure you're maximizing its effectivenss.

A daily supplement regimen has been helping many on the board. Magnesium, Vitamin D with Calcium and Zinc, washed down with lemonade, up to 4X a day. It modifies your arterial ph making you less succeptible to attacks. Really helped me out last cycle.

Lastly look at this website      clusterbusters.com      alternative treatments that have been showing pretty remarkable results!

Joe

Hi Chief,

     I am a newbie as well, just started a cluster period 2 weeks ago. I have had CH’s for 45 years, was in remission for 6 years, summer of 2004 until now. I was told once by a specialist that they will fade away as you get into your 50’s. Hmmmm…. I am 55 now, so don’t be fooled my fellow cluster heads the beast can return any time…. I think. I wonder, and does anyone knows, how old the oldest cluster head is?

     I think once you join and log in the side bar goes away, so if you can’t see it try this link. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
took me a long time to find it.

     I have a post called “That elusive solution” my story is there and some really good people that understand have put a few comments, its just talk and a little bit of venting, but it helps to know that there are people that understand and know what we all are going through.

Good Luck,
Bud

Thanks all for all the kind words.