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Cluster Headache Help and Support >> Getting to Know Ya >> New from Minnesota/USA
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Message started by Bill G on Sep 19th, 2010 at 10:58pm

Title: New from Minnesota/USA
Post by Bill G on Sep 19th, 2010 at 10:58pm
Hello,

I'm 70, male, and have had cluster headaches for 3 years.  Presently I'm able to stop the headaches in their tracks (2 on your pain scale) by breathing pure oxygen for about one minute.  My headaches are the variety that respond to indomethacin.  The O2 gives the indomethacin time to work.

Prior to learning about the O2 treatment my neurologist had tried a variety of medications.  From these, I got all of the side effects and no benefit whatever; indomethacin being the sole exception in that it would limit me to about 20 minutes of the most excruciating pain imaginable.

Thank you for establishing this fine message board and filling the site with valuable information.

Bill

Title: Re: New from Minnesota/USA
Post by Ginger S. on Sep 20th, 2010 at 6:35am
Welcome Bill!  Sorry the CH beast found you, but glad you found us.  Terrific you are already on the O2!!

Read all you can here you may find other things that can help you avoid CH hits!

PF Wishes to you!

Title: Re: New from Minnesota/USA
Post by Guiseppi on Sep 20th, 2010 at 8:29am
Welcome to the board Bill, glad you found the 02! Been a life saver for many of us.  :)

Joe

Title: Re: New from Minnesota/USA
Post by Mosaicwench on Sep 20th, 2010 at 10:55am
Hiya Bill.  Big Midwestern welcome from the Brewcrew Clan in Wisconsin.

Title: Re: New from Minnesota/USA
Post by Bill G on Sep 20th, 2010 at 2:35pm
"Brewcrew" you write?  Oh how I miss beer.  Unfortunately one glass is all it takes to trigger my CHs.

Thanks for Favre.

Title: Re: New from Minnesota/USA
Post by Brew on Sep 20th, 2010 at 2:55pm
I miss it too, Bill. And my name is Bill, too, Bill. And you're welcome for Favre.

Best sign I ever saw in Packerland:

Quote:
We'll never forget you, Brent.

Title: Re: New from Minnesota/USA
Post by Mosaicwench on Sep 20th, 2010 at 4:20pm

Bill G wrote on Sep 20th, 2010 at 2:35pm:
"Brewcrew" you write?  Oh how I miss beer.  Unfortunately one glass is all it takes to trigger my CHs.

Thanks for Favre.


Yup - there's Brew (above), myself (the supporter) and our son pops in occasionally, Jr. Brew.  We're from brewcity (Milwaukee) and Brew used to make his own beer - before the beast made it known he doesn't care for beer either. . . .

Title: Re: New from Minnesota/USA
Post by Kate on Sep 21st, 2010 at 11:52pm
Welcome! Glad to hear that indomethacin and o2 work for you. I tried indocin and it didn't do anything for me. Recently I started o2 and it has been a Godsend. What flow rate are you using to get 1 minute abort times? Mine take 20 mins at 15lpm!

Title: Re: New from Minnesota/USA
Post by Bill G on Sep 22nd, 2010 at 12:01am
My flow rate is set to 10 lpm.  I start immediately when I sense one coming on.  I also take a 25mg indomethicin capsule at the same time.

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