Hello All,

My name is Khalil and I have been a CH sufferer for as long as I can remember.  I am a week into my annual cycle, and I haven't missed them at all!  As I sit here at 2:00 AM with an Imitrex injection by my side and a Rockstar energy drink at close reach, I am afraid to fall asleep because I know that the beast is waiting for me.  I had a K-5 last night and a K-8 the night before that.  Two weeks ago life was grand!! A bad round of golf was my biggest worry.  This site has given me so much insight and useful information.  I can't wait to write a post after this cycle has ended and be so thankful to not be going through this pain!!  THANK YOU, THIS SITE HAS MADE ME REALIZE HOW STRONG CLUSTERHEADS TRULY ARE!!   

Welcome Khalil!

We are a tough bunch aren't we?!   ;D

Have you looked into O2 for your CH ? 

Sending PF thoughts your way. 

Khalil Greene....the ex San Diego Padres short stop??? My daughter had such a crush on you! ;D

Welcome to the board, we're glad you found us. 3 suggestios:

1: the biggest one...read the oxygen info link on the left. 32 year sufferer here and 02 has almost eliminated my use of imitrex. Average abort time for me is less then 10 minutes.

2: A decent prevent med...one you take daily while on cycle to reduce how many hits you get and how strong the hits are. I use lithium, verapamil is the typical first try and topomax works for many.

3: Since you suffer from night time hits purchase a bottle of melatonin from a health or vitamin store. Start wtih 9 mg 30 minutes before bed time. Some go as high as 15 mg, some take a combo of 6 mg regular melatonin and 9 mg slow release to get them thru the night. Helps to avoid the wake up calls. Give it 7-10 days to see if it helps you.

Joe

Hi Khalil,
             I just want to say welcome! It's amazing how finding this community can have such an impact on people's lives, the knowledge that you are no longer alone allows a comfort which most sufferers and supporters have never had the opportunity to feel. The people here are very strong, supportive and full of wonderful information, and yes they have an understanding which is almost impossible to find anywhere else. Hope this cluster doesn't last to long and that pain free times find you soon.
                             Regards Shell :) :) :)

welcome Khalil - Glad you found the site. It's wonderful to be able to share with people who understand.

Hope it's a short cycle for you and that some of the suggestions given will give you relief.

Christy

Using a preventive med is essential. See the PDF file, below.

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Hello Padres shortstop...er Khalil,

You sure are doing the smart thing and the right thing coming here and collecting the tips'n tricks that'll optimize your beast fighting capabilities!

I suppose you've seen the imitrex tip on the left already? If not, it can be a tremendous help to an imitrex user, and IMO is a must read: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE