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Cluster Headache Help and Support >> Getting to Know Ya >> Just saying hi
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Message started by Dale Caffrey on Aug 28th, 2010 at 7:24pm

Title: Just saying hi
Post by Dale Caffrey on Aug 28th, 2010 at 7:24pm
Hey people,

Episodic sufferer here. Usually once a year at the end of summer (Now  :'(). Diagnosed at the end of my first cycle (four years ago) luckily & have been fighting the beast since then. Had my worst attack ever a few nights back & it really scared me. Have been reading up a lot of info since then & thats whats brought me here.

Hopefully with all the help at hand here it can make my life a little easier.

Dale.

Title: Re: Just saying hi
Post by bejeeber on Aug 28th, 2010 at 7:37pm
Hey Dale,

Glad you found the forum! Considering that you've just recently had your worst attack ever, I bet this info gathering quest you're now on will lead you to some markedly improved relief. It sure has for a lot of people here.

Title: Re: Just saying hi
Post by Headache Boy uk on Aug 28th, 2010 at 8:46pm
Hi Dale

Welcome to the board

There's lots of different stuff to try to manage this condition like O2 if you don't have it already (more info on link to the left) it is the front line abortive that most people here swear by , not tried it my self yet but I will asap .

There's also the clusterbusters method (link also to the left) which is having grate results using mushroom tea etc.

for now a grab a can of Red Bull or similar , any energy drink with Caffeine (0.03%) and Taurine(0.4%) and drink it as quickly as possible at the first sign of an attack , it can help reduce the intensity of an attack or even stop one and it very straight away too.

God bless

Nigel

Title: Re: Just saying hi
Post by Guiseppi on Aug 28th, 2010 at 11:12pm
Welcome to the board Dale, when you get a chance give us a run down of your treatment regimen, prevents, aborts etc. Maybe you'll give us a pearl, maybe we can make a suggestion to take back to your doc. It's what makes the board work! ;) Glad you found us.

Joe

Title: Re: Just saying hi
Post by Ginger S. on Aug 29th, 2010 at 8:06am
Welcome to the club no one wants to belong to, and where the dues are collected by a beast master from hell!

Glad you found us Dale!  Sending you some Beast a$$ kicking vibes!


Title: Re: Just saying hi
Post by Dale Caffrey on Sep 3rd, 2010 at 8:38pm
Thanks for the warm welcomes everyone.

No special routine or anything. The only thing the docs given me is an ongoing prescription for Imigran (Sumatriptan) which doesn't always seem to have the desired effect unfortunately. Definitely found out some new info but I'm hoping I won't have to use it much  :)

I've read a lot on the O2 & wouldn't mind having some on hand ready. Is it just a matter of bringing it up with the doc or is there some specifics he'll want to know?

Dale.

Title: Re: Just saying hi
Post by Guiseppi on Sep 3rd, 2010 at 8:45pm
Read the oxygen info link on the left as it must be used correctly or it's useless. The keys:

A high flow regulator...at least 15 LPM, preferably one that goes to 25 LPM, a Non Re Breather Mask, Nasal Canulas and re breather masks do NOT work, and you must start it as soon as you feel the beast stirring. Last cycle my aborts averaged 6-8 minutes. Beats the hell outta the 90 minute rides I used to take.

Joe

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