New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> Newbie
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1281458869

Message started by mikstudie on Aug 10th, 2010 at 12:47pm

Title: Newbie
Post by mikstudie on Aug 10th, 2010 at 12:47pm
My name is mike,first attack was 2 years ago got it under control with steroids. Started again a couple weeks ago started steroids and hopefully have it under control again.Great to find a place where people understand what this BS is all about.

Title: Re: Newbie
Post by Guiseppi on Aug 10th, 2010 at 12:54pm
Welcome to the nut house! There is a small percentage of CH'ers for whom a short burst of prednisone will actually halt a cycle. Glad to hear you're one of them! That being said, it's still a good idea to educate yourself as to a plan B, as the beast is best known for his ability to morph. What worked this cycle, or even for many years, will one day just up and stop!

With luck the short burst therapy will never let you down, hoping that'll be the case for you. If it ever should fail you, there's a wealth of info available on this site to make sure he never keeps the upper hand on you.

Glad you found us, hoping this remission lasts a lifetime! ;)

Joe

Title: Re: Newbie
Post by Kate in Oz on Aug 10th, 2010 at 7:54pm
Hi Mike,

Welcome!  Glad you found us.  Too true about morphing - can be very frustrating.  Good luck with the steriods I hope they work again for you.

Keep us posted,

Kate

Title: Re: Newbie
Post by Ginger S. on Aug 10th, 2010 at 7:58pm
Hi Mike and Welcome!


Read all you can, ask what ever Q's you have and check out the O2 Page.  When the Beast comes out to play we are here to help keep him at bay!

PF Wishes to you!

Title: Re: Newbie
Post by coach_bill on Aug 10th, 2010 at 8:22pm
Mike,

Welcome aboard.

Coach Bill

Title: Re: Newbie
Post by wimsey1 on Aug 11th, 2010 at 7:27am
Good to have you here, Mike. Stick around, read and read some more. There's a lot of great advice here. Not only do we understand this BS, we have declared war on it! Blessings! lance

Title: Re: Newbie
Post by mikstudie on Aug 11th, 2010 at 12:52pm
Thanks for the warm welcome,I just wish things would work for ALL of you the way these steroids work for me.4 days not a trace of pain,its working the same way it did 2 years ago.God Bless you all your in my prayers,I have a good idea what your dealing with.

Title: Re: Newbie
Post by mikstudie on Aug 17th, 2010 at 1:20pm
well that didnt last long.happens once a day 1 to 2 hours after i fall asleep.doc put me on imitrex spray worked great last night $$$$$$$ copay is 35.00 per 6 bottles well worth it. doc wants to try a muscle relaxer for a few days then i think verapamil. whats this ad on the home page about 95% o2 in a can??? My insurance wont cover 02 until i pay a 1000.00 deductable.any bad side affects fr5om the imitrex spray??

Title: Re: Newbie
Post by Guiseppi on Aug 17th, 2010 at 1:34pm
I haven't heard anyone complain about side effects from imtrex sprays, have not used them myself.

Oxygen in a can......not enough volume to be of any use to us. Even the most rapid of us take at least 4 minutes to abort with the average probably being closer to 10 minutes. 02 is actually pretty cheap, $4-5 a month for each e-tank you rent, $15 or so each refill. Per abort it's probably actually cheaper then your spray!

Joe

Title: Re: Newbie
Post by shaggyparasol on Aug 17th, 2010 at 4:48pm
Nighttimer you say??  Read through some of the melatonin threads here.  Works great for some people.  I am a daytimer so the caffeine routine works well. 

--Shaggy

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.