hi, I'm 45, male, blessed with beautiful wife for 23 years. with two boys, 19 and 23. have been a cluster headache victim for 20 years now. i just found this site a week or so ago. nice to know I'm not the only one with alot of the same pains and feelings that i have. GOD Bless!

It is nice to find this place.  I cried when I first started reading the stuff here.  Finally some one who really understands.....

welcome to this huge cluster-family, i already started to love this forum because it is very dynamic, scrutinizing, sympathetic and caring (more than my family ever did)

feneq wrote on Jul 28^th, 2010 at 2:35pm:

it is very dynamic, scrutinizing, sympathetic and caring

That's a pretty fair description.

thanks, it is very much how i see & feel  it ;)

Hey Kobzar welcome to the board. Do you have an effective treatment regimen for your CH? A doc who cares? ;) Do you have oxygen yet? Glad you found us hope we can help you out!

Joe

Welcome! The people here, their information, experience and support are truly awesome! May your journey through life be a little easier now that you have found this wonder. Goodluck with it all and if you ever need to chat just drop us a line.
                                           Regards Shell :)

thanks for the welcome everyone. yes i am on depakote and verelan year round. i have imitrex injections, this year doc has added imitrex pills which do work but not as quick as the injections. when it gets to where i  am in the worst of the cycle i am put on prednisone also, sometimes before then. once  prednisone is added they fade away and i usually am good to go for another 2 years. i did try years ago botox injections. big mistake, ended up getting 4-6 a day short time after. thanks again for the welcome. wish you all the best.

Kobzar.

Please check out the following link on how to obtain a properly written prescription for oxygen inhalation therapy as an abortive for your cluster headaches:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

It contains a couple downloads that are helpful to take along when you see your doc and ask for an Rx for oxygen.

Take care and hang in there,

V/R, Batch

Hey Kobzar, 'ol Batch and Giussepi aren't kidding around when they bring up the newer, more effective approach to O2 therapy - you'll want to look into that over at the oxygen info link to the left of this page.

Hopefully you've learned about how to stretch those imitrex injection doses? If not, this is a must read: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

People often come here for the community and camaraderie, only to end up learning  some valuable new ways to fight this beast!

And you've read about the aborting effects of Red Bull, or Monster, or any energy drink with caffeine plus taurine? And melatonin? All good interventions when coupled with proper O2 use. lance

And to add to Wimsey's.....I use 02 to abort, but drink a sugar free red bull while I'm aborting. 02 knocks it down, the red bull seems to prevent the "come backer" that I'm prone to within 10-20 minutes of shutting off the 02. Been an effective 1-2 punch for me. Red Bull also works  well for those annoying shadows between hits.

Joe

thanks everyone for the advise. i have asked doc before about oxygen, oh must have been like 15 years ago. cant remember why he didn't want to have me try it. seems to me be safer than the shots. though i would not be able to have it at work. i will look into it more. thanks again GOD Bless  8-)