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Cluster Headache Help and Support >> Getting to Know Ya >> Thank You !! Newcomer - My Intro http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1279221475 Message started by Stevie_1965 on Jul 15th, 2010 at 3:17pm |
Title: Thank You !! Newcomer - My Intro Post by Stevie_1965 on Jul 15th, 2010 at 3:17pm
First, and most importantly, THANK YOU!! for developing and organizing this site. It's everything I suspect you'd hoped it would be when it was first conceived.
I am 45 years old and am in my 3rd "cycle." Got my first series in 2006, then again in 2008, and now. I consider myself "fortunate" in that my cycles (although I'm not out of this one yet) haven't lasted more than 3-4 weeks. I have not had the opportunity to try O2 yet, but Imitrex (and generic Sumatriptan) have typically worked for me. Usually, I try to take the medicine right away, but there are always those times when I hope the headache is not really coming (despite the shadow) and I try to save a tablet. That never works out, I don't know why (well I do know, I want the medicine to last) I do that. By the time I realize I've goofed, it's too late and the medicine won't "take." Like everyone else, I am frustrated by the inability of those who don't suffer these dang things (insurance companies, etc. not referring to supportive spouses/partners) to understand their impact. It seems ridiculous to me that there is known relief (Sumatriptan, O2, etc.) but it can be so hard to obtain. Finally, although I doubt he'll ever see this, I'd like to publicly thank Dr. Steven Reed who practices in Brooklyn Park, MN for accurately and quickly diagnosing me in the first place. Thanks again to all who contribute. You ARE making a difference! Steve |
Title: Re: Thank You !! Newcomer - My Intro Post by vietvet2tours on Jul 15th, 2010 at 3:57pm
You are going to like oxygen.
Potter |
Title: Re: Thank You !! Newcomer - My Intro Post by Ginger S. on Jul 15th, 2010 at 8:38pm
Welcome Stevie glad you found us and so sorry you had too.
Read all the info. you can, ask all the questions you have. You'll be better prepared for it. Many PF wishes to you! |
Title: Re: Thank You !! Newcomer - My Intro Post by wimsey1 on Jul 17th, 2010 at 8:53am
Supporters (not insurance companies!) are often at a loss as to how they can help us. Those new to CHs, or newly diagnosed, may want to offer their supporters some advice. I've come up with a list of things I do want from those closest to me:
1. Take a little time and read this website; I am neither crazy nor suffering from a hangnail. 2. Assist me with abortives when the pain is too great for me to be able to think straight. 3. Shield me from "unwanted" outside contacts who may not like my "dance with the beast." 4. Remind and encourage me to continuously evaluate the preventatives I am taking, and to seek out other, better ways to deal with this. 5. Talk to me; don't let me sink into a black hole pity party which so easily comes. Hope some of this helps. Welcome and God bless! lance |
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