New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> any SSDI support-recomendations?
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1278298681
Message started by rare 1 on Jul 4th, 2010 at 10:58pm

Title: any SSDI support-recomendations?
Post by rare 1 on Jul 4th, 2010 at 10:58pm
im 42, ch started at 20. after years of sleepless cycles; fear,depression,fatigue, overwhelmed and insecure by this disorder. work dont work! chronic like clockwork now. there are differences in attacks, as to triggers or times, i feel the change in my throat and eyes, weekly.  i filed for ssdi 18mos. just got my denial for the reconsideration, now to an administrative judge. empathy is all i ask, for what few really have a clue! i need the lawyer!

Title: Re: any SSDI support-recomendations?
Post by jayhedges on Jul 4th, 2010 at 11:14pm
Sorry you are suffering so much and fighting the system. This looks like you first post. Have you tried some of the alternative treatments you can find at clusterbusters.com? A lot of us are having success. There are a lot of people who will advise and maybe recommend a lawyer or for sure physicians who know what to write for disability claims. Stick aropund here for a couple days and check out custerbusters.com. High volume Oxygen? Seeds? Shrooms? Don't give in. You have fought a long time. See if you get help here. Jay

Title: Re: any SSDI support-recomendations?
Post by Ginger S. on Jul 5th, 2010 at 7:07pm
I agree with Jay there may be options you have yet to try before going SSDI.  Read all you can here and on Clusterbusters site. 

I can empathize as I was out of work for a few years with Chronic CH and went back to work just over 3 years ago, still chronic.  I have not gotten through one week with out a CH hit in I don't know how long, hell lately it's been daily even if a mild hit.

If however you are going through with the SSDI you will most likely need to get a lawyer, as well as gather all the information from here on CH START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE and from wiki START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE print it all either from home or a library and take that with you.  You will need to go in completely armed with information on CH and provide information from your Doctor as to what you have been going through.

Either way my thoughts are with you and hope you find PF times.

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.