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Cluster Headache Help and Support >> Getting to Know Ya >> how do i convince me dr. to take me seriously? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1277507665 Message started by pystal on Jun 25th, 2010 at 7:14pm |
Title: how do i convince me dr. to take me seriously? Post by pystal on Jun 25th, 2010 at 7:14pm
im 28, married, 4 kids, and have had these headaches daily for 2 yrs. ive always had frequent headaches but for the last 2 yrs every day at 3 pm it starts. a horrible hot stabbing disgusting pain ussually in my right temple. sometimes i scream very loudly with no self control or consideration for anyone or any place. it can be imbarrassing. then the pain starts, of course just minutes before three of the kids get home from school. it will last until i wake the next morning or sometimes ill wake all through out the night and it will continue into noon. 3 hours pain free then im SCORCHED right in the side of the freakin head. ive explained all this to the doctor, hes prescribed me a large shoebox full of meds, nothing works. i took so many drugs i got an ulcer. i just feel so horrible that all my kids ever hear out of me is leave me alone, not right now, dont do that, turn that down, quiet my head hurts. i have to have alot of self control when the kids are around so i dont scream at them or scare them. ive clenched my jaw so hard i cracked teeth, i sit and flex my calf muscles rapildy i rythum, that helps alittle, and sometimes i just hide in my closet when every one is busy and just cryas intense but as quietly as i can. can or does anything else help? :'(
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Title: Re: how do i convince me dr. to take me seriously? Post by Brew on Jun 25th, 2010 at 7:19pm
Oxygen. Read the oxygen info link to the left.
Seriously. |
Title: Re: how do i convince me dr. to take me seriously? Post by wimsey1 on Jun 26th, 2010 at 7:58am
Welcome, glad you are here and sad you need to be here. As you read along on this site you'll find many of us had trouble finding a Dr who understands CHs. And you'll find many of us have had to become our own best advocates. That means reading and reading and priniting article after article. You might also look for a pain clinic or headache specialist who already deals with CH patients. It can be a tremendous relief when you talk with someone you don't have to convince or educate. Lastly, find abortives that work. O2, and energy drinks like Red Bull or Monster with 1000mg of Taurine slammed at the first sign of a hit, work for many of us. Hang in there, and get the help you deserve! lance
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Title: Re: how do i convince me dr. to take me seriously? Post by deltadarlin on Jun 26th, 2010 at 11:21am pystal wrote on Jun 25th, 2010 at 7:14pm:
I'm confused. Does your pain stay at the same level the whole time (it looks like you're saying that you have this intense/horrible headache at the same level for 21 hours and then have 3 horus pretty much pain free). |
Title: Re: how do i convince me dr. to take me seriously? Post by bejeeber on Jun 26th, 2010 at 6:08pm
I just wanna pipe in and say that the foks who have responded so far really know what they're talking about (includng Shaggy, with his suggestion to check out clusterbusters.com), so you can take their advice seriously.
If your type of hellish pain syndrome is indeed of the CH variety, well stick around here will ya? Many including myself have found ways to counterattack this beast very effectively, in large part thanks to info and advice obtained here. As you have found out already, doctors generally don't know jack about CH. You really have to take charge of your own treatment program, which is clearly what you intend to do - good on ya! 8-) |
Title: Re: how do i convince me dr. to take me seriously? Post by Lettucehead on Jun 27th, 2010 at 6:24am
Hi Pystal!
Welcome and I'm so sorry for your suffering. I'm questioning that it may be not so much that your doctor doesn't take you seriously, as she may not know quite what's going on and therefore how best to help you. Please, first thing you need to do is get an appropriate diagnosis. You may or may not have cluster - you may have one of many many conditions including hemicrania, migraine, tumor (god forbid), rebound headache, etc etc. You mention your doctor - have you seen only the one? Please, if you haven't already, keep a detailed headache diary and see a neurologist - preferably, one who has specialist training in headache diagnosis and treatment. You deserve to feel better, your children deserve their mother, you deserve your life to be the best you can make it - and this all starts with an appropriate diagnosis that can guide treatment... |
Title: Re: how do i convince me dr. to take me seriously? Post by Guiseppi on Jun 28th, 2010 at 10:14am
Yeah.....as basic as it sounds an accurate diagnosis is critical. If you're not already doing so start keeping a headache diary. When they start, how fast they build how high they peak, how long they stay at peak, how fast they go away. A stabbing pain? Throbbing pain? Have you identified any triggers? The more details the better.
Then get to a headache specialist. GP's are damned good at what they do, diagnosing a million different things that go wrong with the body. They are RARELY the source for relief from a complex headache issue. Some on the board suffer from a combo of headache types...imagine the nightmare of trying to diagnose that! Use Bob's post to try and find yourself a decent specialist. Get those kids their mommy back! Keeping you in our prayers. Joe |
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