Has anyone ever experienced this? I know not CH, but people with other headache types

Crashing top of head pain - occurs approximately every 3-5 minutes, I would say from middle of "part" on head to back of the "part" area, sometimes spreading to the right side of the skull. Duration maybe 10-20 seconds each time. Holding head seems to help, or maybe duration is over by the time hands get in place to sort of press/squeeze.

Never any sign of migraine or serious headaches before. I'm recording them on the OUCH headache log, with intensity of 4-9 throughout the day. Been going on for 2 days now. Literally every 3-5 minutes.

Have an appt with MD tomorrow morning, but looking for ideas. Drinking water, eating normally, nothing new in my environment.

QnHeartMM wrote on Jun 3^rd, 2010 at 5:37pm:

Has anyone ever experienced this? I know not CH, but people with other headache types Crashing top of head pain - occurs approximately every 3-5 minutes, I would say from middle of "part" on head to back of the "part" area, sometimes spreading to the right side of the skull. Duration maybe 10-20 seconds each time. Holding head seems to help, or maybe duration is over by the time hands get in place to sort of press/squeeze. Never any sign of migraine or serious headaches before. I'm recording them on the OUCH headache log, with intensity of 4-9 throughout the day. Been going on for 2 days now. Literally every 3-5 minutes. Have an appt with MD tomorrow morning, but looking for ideas. Drinking water, eating normally, nothing new in my environment.

Christy, the only thing I've seen come close to that, is CPH (chronic paroxysmal hemicrania), but it's a daily occurance, so not sure if this is something that will continue for you or not.  I hope not!!

Let us know how the doctor visit goes!

also referred to as SUNCT headache. Symptoms sound somewhat similar.

Icepick headache?  START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Sorry you're having this happen, Christy.   :'(

Best wishes,

George

Christy
I was recently diagnosed with "hermicrania continua" I went from a cluster cycle at christmas to a constant what we call"shadows" headache from my neck up the side of my head to my temple (cluster side) My specialist diagnosed me with chronic hermicrania continua. I take 150 mg's of indomethacin a day Just when i was learnig to control the "beast" a bit another one set in :-/ hope you find relief ASAP!!
all my best
anthony

In the words of Theodore Geisel:

This is not good.
It is not right.
My feet stick out of the bed all night.

Seriously, I hope you get a solid diagnosis and treatment plan. I don't know if you've ever had sinus problems, but sometimes the pain from infected sinuses can be referred to other parts of the head.

Good luck, sister.

Hiya love,

what do you mean by crashing?

could you describe it in terms of
zaps as in electric    OR
thuds as in a hammer  or
taps?

I ask because I have icepicks or idiopathic stabbing headache and those are really like hundreds to thousands a day of being zapped on top of the head.

I also have what Dr. sheftell calls an icepick variant. It's crazy....
On my way to the OUCH 2005 convention I developed a tapping on top of head in one location. It never hurt but it feels like someone is literally doing morse code lightly on my skull.
Ive had this now for 5 yrs and it was like Chinese water torture but never hurt. It will go away and then come back. Very strange. At the Convention we called them Kajingles and I honestly think the term will be making it into the IHS guide. haha

Hope you are well otherwise and get your tushie to dr.

Good luck

I guess I would say crashing  or maybe ice pick. not tapping. makes me suddenly cringe and tighten up til it's done. brief in duration, but all day yesterday was every 3-5 minutes.

I did take sudafed and a couple hours later it seemed to dull it some. does not seem to bother me when laying down so I got a good night sleep. Been up now about 1/2 hour and so far hasn't hit me.

Going to the doctor at 11;30 our time.

Sounds like Ice picks to me.
Hurts then gone.
Enough to make you cringe and lock up but not like a migraine or CH in that it's not incapacitating. Hurts like hell briefly but then poof gone.

Indomethacin got rid of them.

Good luck

Fudge, forgot about ice picks, thanks George!

Christy, good luck today!

Hi Christy,


I'm sorry you are in pain.   What you are describing sounds like my ice pick pains too. 

I hope you find some answers and relief soon.

Hugs,

Jeannie

Eric and Jeannie - yes - stabs me, I cringe and lock up, then it's over. Joe was teasing me saying GET O2 but seriously by the time I would reach for it - it's over.

Indomethacin/indocin!!!

Kicked it's arse!

The only thing with indocin is if on it for a long time, it can be hard to come off of. Crazy rebound ha.

If icepicks then IT WILL be responsive to indocin

Thank you all...I HATED not having clever answers for her on this one......I fear my headache knowledge is a little bit one faceted!

Joe

Sounds like ice picks to me too.  I haven't experienced them in years.  The name describes them well.

I hope the headaches end soon, Christy!

Guiseppi wrote on Jun 4^th, 2010 at 2:54pm:

Thank you all...I HATED not having clever answers for her on this one......I fear my headache knowledge is a little bit one faceted! Joe

Some are blessed with the party in the brain.
Puhleeez I guess you only have CH
;-)

Hope you're well my brother

Days away from officially declaring my latest cycle OVER!!!! Thanks. :)

Joe

So as I described the headaches and showed the log of the last 2 days the PNP asked me if I had ever heard of Cluster Headaches. LOL, no never.

Anyways, told her I knew alot about them and felt what I was experiencing was different. Mentioned "ice pick" and the indomethacin. She gave me a Rx for that and also asked for blood work just to c heck all the chemical balances. My BP was good, best it's been in years over the last 3 days. Just had lunch and took my pill.

So Eric - once you start the Indo how long before they stop and when you stop taking it do they come back? She only gave me enough for 10 days, no refills.

I was on it for over a month but they stopped within days.

I had to come off of it when I was going on Lithium for the clusters.

They pretty much disappeared.
I will get them ever so often but they are not pervasive. They certainly do not affect my life what so ever.

Indomethacin is like the mother of all NSAID's it's like taking mass amounts of advil. I don't understand why the headaches are responsive to that and not others but it is. go figure.

You will know soon.
also you may have some tummy problems with it so just be aware

Hugs

Well just damn.  I don't check in here for a day or two and look who's gotten the contagion . . . . LOL. If Christy got contagious CH from Joe, then Joe got menopause from Christy!
:D

Hope the meds work for you, Christy.  Now I can wish YOU PF days!

Christy, Awesome!  You have a great doctor. :)  I truely hope the indo helps, please keep us updated as to how you're doing.

*hugs*
mel

Cool. Joe gets to be a supporter.

Put on your big boy pants. ;)

Damnit Brew...I left those at Jimi's! ;D

I hope you're doing better already, Christy! 

Hugs to you!

Jeannie

Have to say that 24 hours since I started the meds, no headaches since late yesterday afternoon. :)

YAY!!!!!! ;D

Jeannie wrote on Jun 5^th, 2010 at 6:34pm:

YAY!!!!!! ;D

What she said! :)

Glad to hear it! :)

fingers crossed