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Cluster Headache Help and Support >> Cluster Headache Specific >> Challenge from a partner!
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Message started by Bob_Johnson on Jun 2nd, 2010 at 9:27am

Title: Challenge from a partner!
Post by Bob_Johnson on Jun 2nd, 2010 at 9:27am
"My question to my readers is–why aren’t you out picketing? Cluster headache is four times as common as muscular dystrophy, I kid you not. Cluster headache is as common as multiple sclerosis. Yet Jerry’s kids are out there raising $60 million a year for muscular dystrophy research. $100 million a year is poured into MS research. The comparable figure for cluster headache research is… well, close to zero.

But if you don’t care about cluster headache research, why should we?"

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Title: Re: Challenge from a partner!
Post by Brew on Jun 2nd, 2010 at 9:49am
Jerry's kids don't have families to support. Not to be glib - they are the supported ones. We have to live life as close to normal as we can.

Sorry - I wish I had time to do nothing but raise money for cluster headache research.

Challenge, my eye. Walk a mile in my shoes before becoming critical.

Title: Re: Challenge from a partner!
Post by Bob P on Jun 3rd, 2010 at 7:51am
Because it's just a headache.

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