I went to the hospital a month ago to see what what going on in my head.  The CT scan proved clean.  However, my onesided headaches that happen late in the evening were diagnosed as Cluster Headaches.  I was offered a host of drug alternatives to which I refused all.   I am a pharmacist and I see what these drugs do to people.  It isn't pretty and I wanted nothing to do with it.  I decided I would just tough it out and hope that they would stop. 
   After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain.  I would try a cure for too little blood.  I did a head stand.  I did it for about a minute and upon rising, the headache was gone.  I have stopped 20 headaches so far and they seem to be coming with less frequency and acuity.  (Yet 5 minutes ago I was upside down again because of a rather riping one.....gone)
   I decided to post, not as a professional, but as a sufferer who is thrilled that I have control of these devils with a simple head stand.   I just do a frog stand with my knees on my elbows and then move my head down to the ground and lift my legs up until I am straight up.  Getting the legs up builds enough pressure to do the job.  I tried laying on my bed, stomach down, with my head down to the floor.  It worked, but only for a few minutes.  I find that I need to do the full up headstand to make it work.   Rarely do they come back that same day.  Maybe once.
   I hope that someone finds the relief that I have found.  I feel in control and don't worry about when the next knife in the right side of my head is thrust upon me.  I have an answer that has worked for me EVERY TIME.  Bless you who have had these for years.  I don't know how you have done it as my journey has been a short one.

Hi Rich,

Thanks for the tip. Good of you to share it with us. Glad you found something so simple that's so effective against your headaches - and no drugs to boot! For others who might like to try the same but who for one reason or another are unable, inversion tables have become relatively inexpensive and might be worth a shot. We have one at home that my son tried for his HAs but it didn't work for him. Didn't hurt for him to try it though and it might just as easily have worked.

Ron

p.s. - Welcome to the forum. I for one hope you stay. I bet a lot of folks here would have questions for a Pharmacist. I'm starting my list now.

My first post was a doozy,  as I recall I extolled the virtues of lying in a hammock and swinging gently back and forth.  I was so sure it worked I even argued with jonny about it.  Then I realized the error of my ways and took the advice of so many here,  got oxygen and have been pushing it ever since.  Oxygen works.

                Potter

Found it.  START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

A kinder gentler Potter.  I love it!!!!!!!!!!!!!  ;)

To the newbies reading this and similar posts. This month alone we have seen the following suggestions to cure your CH:

1:Blow your nose, snort Afrin and take an antibiotic.

2: Use the power of positive thinking to abort an attack or a complete cycle

3:Take 2 excederin, go to a dark quiet place and meditate the attack away.

4: Go to a chiropractor

And now this post. I get concerned because what all of these promise is an instant quick fix to what is in reality a lifelong problem, that for the most, part defies any attempts at quick fixes.

There are a number of highly succesful routes to try, such as oxygen, imitrex, zomig and energy drinks, as abortives. Verapamil, Lithium and Topomax as prevents. There is the "alternative" site which is having phenomenal success. Clusterbusters.com

With all of these proven methods available, I worry a new person could be seduced into wasting time trying all of these "quick cures," only to find themself at the beginning of the treatment road all over again.

The people who have found success with some of these unusual methods, my hats off to you. I hope you stay pain free for life, it is the goal of all on this board. To people new to this site, there is not a quick fix solution to this condition. But there are many proven methods of treating it. I would encourage you to investigate those.

Joe

EXCELLENT reponse Joe.   High-five.   [smiley=thumb.gif]

Good post Sarge!

  I apologize to the sensitive, open minded folk on this blog.  It was totally inappropriate for me to offer to others a solution that has worked for me 100% of the time.  I can see that this is offensive and is immediately classed with those who feel that painting a bat's wings purple will cure the cluster headache.
   I also agree that it is far more practical to spend thousands of dollars on medications like Topamax, Lithium, Imitrex, Percocet and even strapping an oxygen bottle to your hip for life than to take 60 seconds and try something that worked for another that costs nothing.  Please continue to warn people against following suggestions as mine.
  Good bye clusterheadaches.com.  I am clearly not needed and frankly, ....I guess that I have no need to visit as MY HEADACHES have been conquered. 

Carry on!  Rich

Quote:

I have no need to visit as MY HEADACHES have been conquered.

Rich, the Pharmacist, I wish you so more many happy days standing on your head.  if this is what helped you, I am glad.  Surely you must have known your um...uh...sorry, I don't know what to call it...would have provoked a response.   You got it. 

May you have no more pain-filled days.  I truly mean that.

I cant help but see the irony in a pharmacist who's against meds. lol. No offense, its just ironic.

I think anything is worth a fair try, but there is danger in forever searching for a mystery cure, as Joe stated.

I know it took me quite a while to accept that this wasn't some temporary issue, and that there was no "Fix". I'm a "fixer" for sure, and the information on the internet can help lead you in circles if you just search in vain.

Then there's places like this where you can read from, and talk with people who suffer from the same thing, and learn what works for them. As a bonus, CH.com is loaded with easy to find info.

Its obvious that its a sensitive topic, and were all likely to be stressed out and irritable at times. Luckily CH has made us all tough as nails, so hostile sarcasm isn't a problem. lol

Unfortunately Rich, I'm afraid you'll find that CH will find another way to get at you in the future. You've been effected for a month or so, which means your 'Cluster' could be coming to an end. What kills your CH's, or Appears to kill them, at the end of a cluster, may not work at the begging, middle, or next cluster.

Its just the nature of the beast.

Even if a head-stand is an effective remedy for some, its not possible or practical in every case.

Rich,

Maybe you missed the text at the very top of the homepage of this site.  It says "This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches"

Sorry you got your feelings hurt here by telling us how you stand on your head to get rid of your "headache".

This is what we deal with... START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

When you can get rid of one of these by standing on your fuckin' head, you come back and see us.  We'll ALL apologize to you for thinking you're full of shit.

I'm sincerely glad you found something that works for your pain 100% of the time.  Unfortunately for us, the pain you have isn't a cluster headache so your "answer" doesn't do much for us.

DJ

Here's one of our Tony.  I've never been able to watch either one to the end.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

       Potter

Hopefully this guy was for real. Hard to tell.   I was gonna post this  last week but didn't.    

  Similar to pharmacist...   felt cluster coming on.  Went to window air conditioner to suck some air. The AC is about thigh high.  I had my head down almost to my knees, i was standing on my feet.  When i raised my head, i was dizzy, also had that headrush feeling.  Went to a doorway to hold myself up.  I noticed pain was better. 

  Pain got worse.... Back to window air.  The sensation of "no pain" was best when I raised my head from my knees.  I did this cycle several times......  I would breath real fast thru my nose, and exhale thru my mouth. i say i did this for 3 minute cycles.

I was in the least pain right after standing up straight..... I will try headstand.

JHK07 wrote on Jun 1^st, 2010 at 8:57am:

Hopefully this guy was for real. Hard to tell.   I was gonna post this  last week but didn't.       Similar to pharmacist...   felt cluster coming on.  Went to window air conditioner to suck some air. The AC is about thigh high.  I had my head down almost to my knees, i was standing on my feet.  When i raised my head, i was dizzy, also had that headrush feeling.  Went to a doorway to hold myself up.  I noticed pain was better.    Pain got worse.... Back to window air.  The sensation of "no pain" was best when I raised my head from my knees.  I did this cycle several times......  I would breath real fast thru my nose, and exhale thru my mouth. i say i did this for 3 minute cycles. I was in the least pain right after standing up straight..... I will try headstand.

So what you're saying is that you had four separate variables all going on at the same time:

1. Breathing lower temperature air

2. Head at or below knees

3. Change in breathing pattern (in thru the nose, out thru the mouth)

4. The passage of time

Hardly a controlled experiment. I usually try to limit the variables in my experiments to one each time. But go ahead - see if you can stand on your head next hit. More power to you.

JHK07 wrote on Jun 1^st, 2010 at 8:57am:

Hopefully this guy was for real. Hard to tell.   I was gonna post this  last week but didn't.       Similar to pharmacist...   felt cluster coming on.  Went to window air conditioner to suck some air. The AC is about thigh high.  I had my head down almost to my knees, i was standing on my feet.  When i raised my head, i was dizzy, also had that headrush feeling.  Went to a doorway to hold myself up.  I noticed pain was better.    Pain got worse.... Back to window air.  The sensation of "no pain" was best when I raised my head from my knees.  I did this cycle several times......  I would breath real fast thru my nose, and exhale thru my mouth. i say i did this for 3 minute cycles. I was in the least pain right after standing up straight..... I will try headstand.

[/quote]People come her for information/ support.   We don't need to feed them false information or hope. [/quote]

  Those are your words. When you are ready for o2 y'all just holler.

            Potter

Please don't mistake what hit the raw nerve here. There are numerous "emergency" measures we discuss all the time for when you're caught un prepared for a hit. They include, hyper ventilating, vigorous physical activity, sucking ice cold air either with your head in a freezer, (no joke), or directly in  front of an air conditioner register...automotive is best as the air is really cold....ice cold or really hot showers......the list is very long. All are emergency solutions but are absolutely NOT a cure, nor would we ever preach them as front line attacks on CH

Hope this clears it up a bit! ;)

Joe

I would chose a headstand over an O2 tank, if it worked.

If you read his first post.. he was just trying to help someone.  Maybe just one person.    Maybe he was a poser too...   I dunno

I'd wave goodbye but I am currently standing on my head and both hands are occupied.

JHK07 wrote on Jun 1^st, 2010 at 11:10am:

I would chose a headstand over an O2 tank, if it worked. If you read his first post.. he was just trying to help someone.  Maybe just one person.    Maybe he was a poser too...   I dunno

Okeydokey.

     Potter

Who ever is in their cycle right now stand on your fucking head!  Tell us if it works.  Instead of jumping on this dude, try the headstand, god knows we try everything else one time or another.

I am not saying run around the world saying you have been cured, but it would beat stuffing my head in the freezer or sprinting around the neighborhood at 3am. 

Maybe we shouldn't always beat these guys up before we try it.  No cost and there are thousands of us on this site.  Some of us probably like standing on our heads.  So try it, what's to lose and who cares. :)

I know this will illicit a million responses, so I am bracing for impact :D, but this is not directed at anyone.

--Shaggy, the head stander (not really, but someone should to see if it works) ;).   

ps, hesitating hitting the 'post' button, hesitating, know this will result in a lot of crazy, ok here it goes...be gentle :-/ do some froggy head stands :-*

I'll give it a shot on my way home in rush hour traffic

I tried it and failed.  Bwaaaaaaaaaaaaaa

         Potter

JHK07 wrote on Jun 1^st, 2010 at 11:10am:

I would chose a headstand over an O2 tank, if it worked.

You're more than welcome to try it, of course.  Just as others are more than welcome to comment on just how goofy and misguided standing on one's head to "cure" their CH truly is.


JHK07 wrote on Jun 1^st, 2010 at 11:10am:

If you read his first post.. he was just trying to help someone.  Maybe just one person.

I don't buy it.


JHK07 wrote on Jun 1^st, 2010 at 11:10am:

Maybe he was a poser too...   I dunno

Bingo.  Believe it or not, we get them.

Best,

George 

seaworthy wrote on Jun 1^st, 2010 at 11:27am:

I'd wave goodbye but I am currently standing on my head and both hands are occupied.

Oh, he hasn't left yet.  He checks in from time to time to see how his hornet's nest is coming along.

Best,

George

Rich the Pharmacist wrote

Quote:

After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain.  I would try a cure for too little blood.

whilst I acknowledge that that your post was with the best intentions and the only time you used the word " cure " in the line...I would try a cure for too little blood. This whole head stand thing and the theory behind it seem fundamentally flawed .

CH attacks, or at least the cause of the pain, is due to the swelling of blood vessels in the brain crushing nerves around them ( that's how I understand it from all I have read on the subject from countless medical papers on the net and posts on this board ) . and I guess that is why all the main abortive drugs and O2 are used a vascular constrictors to shrink the blood vessels and stop the pain.

So as you can see people on this board are going to be some what sceptical about a treatment method that would actually increase the blood pressure in the brain . and the way I see it that would only make it a thousand times worse.

I think if I tried to stand on my head during a cluster attack the end result would be a whole lot more pain and probably a broken neck .  ;D

If this works for you then that's cool, but that being the case it doesn't sound much like you have CH , may be you've been miss diagnosed ?

Regards

Nigel

wrote on May 30^th, 2010 at 1:26am:

I would try a cure for too little blood.

I do not read that this gentleman ever said he found a cure for CH.  I read that he is educated (pharmacist) in pain (Cluster Headache diagnosed) and thoughtful/mindful of his choice of words descriptive of "his" experience. 

I find it to be a grave disservice to a new fellow CHer who is also in pain, scared and frantic about the meaning of all of this to their lives to have the responses be "anger-based" with a overtone of "you're an idiot!"

I did not teach my son his ABC's the first time I recited the alphabet to him.  I had to slowly and consistently inject the alphabet into our daily life.   All phases of this disease and the sufferers should be safe here.  Whether it is your first attack or your 32nd year of cycles. 

If you act like the tenured professor who's freshmen are somehow inferior to your "perceived" advanced degree by dismissing their thoughts and ideas you are missing the opportunity of hearing "fresh thoughts and ideas".  Many pooh poohed hallucinogens as a treatment until the study was approved by Harvard in 2006.   

Headache Boy uk wrote on Jun 1^st, 2010 at 2:55pm:

Rich the Pharmacist wrote Quote: After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain.  I would try a cure for too little blood. whilst I acknowledge that that your post was with the best intentions and the only time you used the word " cure " in the line...I would try a cure for too little blood. This whole head stand thing and the theory behind it seem fundamentally flawed . CH attacks, or at least the cause of the pain, is due to the swelling of blood vessels in the brain crushing nerves around them ( that's how I understand it from all I have read on the subject from countless medical papers on the net and posts on this board ) . and I guess that is why all the main abortive drugs and O2 are used a vascular constrictors to shrink the blood vessels and stop the pain. So as you can see people on this board are going to be some what sceptical about a treatment method that would actually increase the blood pressure in the brain . and the way I see it that would only make it a thousand times worse. I think if I tried to stand on my head during a cluster attack the end result would be a whole lot more pain and probably a broken neck .  ;D If this works for you then that's cool, but that being the case it doesn't sound much like you have CH , may be you've been miss diagnosed ? Regards Nigel

Well said.

    Potter

1961mom wrote on Jun 1^st, 2010 at 3:08pm:

wrote on May 30th, 2010 at 1:26am: I would try a cure for too little blood.  I do not read that this gentleman ever said he found a cure for CH.  I read that he is educated (pharmacist) in pain (Cluster Headache diagnosed) and thoughtful/mindful of his choice of words descriptive of "his" experience.  I find it to be a grave disservice to a new fellow CHer who is also in pain, scared and frantic about the meaning of all of this to their lives to have the responses be "anger-based" with a overtone of "you're an idiot!" I did not teach my son his ABC's the first time I recited the alphabet to him.  I had to slowly and consistently inject the alphabet into our daily life.   All phases of this disease and the sufferers should be safe here.  Whether it is your first attack or your 32nd year of cycles.  If you act like the tenured professor who's freshmen are somehow inferior to your "perceived" advanced degree by dismissing their thoughts and ideas you are missing the opportunity of hearing "fresh thoughts and ideas".  Many pooh poohed hallucinogens as a treatment until the study was approved by Harvard in 2006.

Very well said.

Quote:

I was offered a host of drug alternatives to which I refused all.   I am a pharmacist and I see what these drugs do to people.  It isn't pretty and I wanted nothing to do with it.

It most certainly sounds like you've chosen the wrong line of work.

Quote:

It most certainly sounds like you've chosen the wrong line of work.

I'll say. Sort of like a Buddist monk working for Smith and Wesson.

Brew wrote on Jun 1^st, 2010 at 4:04pm:

Quote: I was offered a host of drug alternatives to which I refused all.   I am a pharmacist and I see what these drugs do to people.  It isn't pretty and I wanted nothing to do with it. It most certainly sounds like you've chosen the wrong line of work.

Are you purposefully trying to alienate this fellow CH sufferer?  Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials.

Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications.  He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's.  He also stated that he has seen "first hand" what these medications have done to his clients.  Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms".  It makes him a valuable, educated resource!

Potter wrote on Jun 1^st, 2010 at 3:36pm:

Headache Boy uk wrote on Jun 1st, 2010 at 2:55pm: Rich the Pharmacist wrote Quote: After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain.  I would try a cure for too little blood. whilst I acknowledge that that your post was with the best intentions and the only time you used the word " cure " in the line...I would try a cure for too little blood. This whole head stand thing and the theory behind it seem fundamentally flawed . CH attacks, or at least the cause of the pain, is due to the swelling of blood vessels in the brain crushing nerves around them ( that's how I understand it from all I have read on the subject from countless medical papers on the net and posts on this board ) . and I guess that is why all the main abortive drugs and O2 are used a vascular constrictors to shrink the blood vessels and stop the pain. So as you can see people on this board are going to be some what sceptical about a treatment method that would actually increase the blood pressure in the brain . and the way I see it that would only make it a thousand times worse. I think if I tried to stand on my head during a cluster attack the end result would be a whole lot more pain and probably a broken neck .  ;D If this works for you then that's cool, but that being the case it doesn't sound much like you have CH , may be you've been miss diagnosed ? Regards Nigel Well said.     Potter

Yes!

I hope our pharmacist friend comes back, skips over the snipes and is willing to share more of his training and knowledge with us all :)

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.
  Watch this video.  Do you think standing on your head would be an option?
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

        Potter

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot.

A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit.

Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt.

That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set!

So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy.

Joe

Guiseppi wrote on Jun 1^st, 2010 at 6:47pm:

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot. A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit. Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt. That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set! So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy. Joe

Now THAT was well said.   :)

Best,

George

Amen Brother Joe...AMEN!

There's a BIG difference between a cynic and a skeptic. A cynic will find the "bad" in every situation...a skeptic will weigh the pros and cons and make a reasoned decision. I don't see any cynics here...I do see any number of skeptics....me among them. A clusterhead who is not a skeptic...hasn't been a clusterhead long enough.

Best,

Jon

1961mom wrote on Jun 1^st, 2010 at 6:05pm:

It most certainly sounds like you've chosen the wrong line of work.Are you purposefully trying to alienate this fellow CH sufferer?  Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials. Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications.  He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's.  He also stated that he has seen "first hand" what these medications have done to his clients.  Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms".  It makes him a valuable, educated resource!

Put the gun down and back away slowly. Have you no sense of humor? Do you not see the irony of a pharmacist who wants nothing to do with drugs? Sheesh.

I would like to echo Jon's amen. cos lets face it, it dose sound a bit like e-mailing BP saying that a cork will cure there leek. ;D

All the best

Nigel

Brew wrote on Jun 1^st, 2010 at 8:13pm:

1961mom wrote on Jun 1st, 2010 at 6:05pm: It most certainly sounds like you've chosen the wrong line of work.Are you purposefully trying to alienate this fellow CH sufferer?  Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials. Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications.  He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's.  He also stated that he has seen "first hand" what these medications have done to his clients.  Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms".  It makes him a valuable, educated resource! Put the gun down and back away slowly. Have you no sense of humor? Do you not see the irony of a pharmacist who wants nothing to do with drugs? Sheesh.

Sheesh indeed Brew...I find irony hilarious...thanks man!

Best,

Jon

Potter wrote on Jun 1^st, 2010 at 6:33pm:

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.   Watch this video.  Do you think standing on your head would be an option? START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE         Potter

Let me repeat what Mr. Potter just stated...

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.

This site was not built for the typical headache sufferer.  This is not tensionheadache.com, stressheadache.com, tiredheadache.com, migraine.com, myheadhurtsithinki'llgolaydownforawhile.com.

This is CLUSTERHEADACHES.COM.  This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!

If you normally take Excedrin, or stand on your head to relieve your headache pain I will GUARANTEE you don't have cluster headaches.  Find another community somewhere else that will sympathize with your "pain".

If your headaches somewhat resemble the attack Anthony suffers through in the link Potter provided... welcome to the clusterheadaches.com family.

DJ

This place is a hoot!  Next time I get bad shadowing (not a full blown hit) I'm going to try standing on my head whilst eating a donut.  That oughta fix it  :D

Linda_Howell wrote on May 30^th, 2010 at 3:24pm:

A kinder gentler Potter.  I love it!!!!!!!!!!!!!  ;)

How about it, i'm shocked :)

I just have to comment on the person that mentioned running around the neighborhood at 3 am. Am I the only person that has done this?  (2) weeks ago i was doing this a couple times a week.  I swear it would abort the headache for me.  Yesterday I woke with one that lasted 3 hours.  I chose not to go for a run thinking I could "get through it" and that the running wasn't working.  Every time I have gone for a run the headache is gone within 30 minutes.  But for me it has to be at least 3 miles.  I tried running a mile and then the headache lasted for 3 hours.  Crazy I know.

jmac, not crazy.  At one time I aborted attacks by doing as many squats as I could.  My friend Marc would ride his bike.  The guy who posted right before me on the Welcome board would run up a hill behind his house.  I think these work due to the hyperventilation aspect.  So much easier to just huff O2.

DJ wrote on Jun 1^st, 2010 at 11:06pm:

Potter wrote on Jun 1st, 2010 at 6:33pm: If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.   Watch this video.  Do you think standing on your head would be an option? START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE         Potter Let me repeat what Mr. Potter just stated... If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches. This site was not built for the typical headache sufferer.  This is not tensionheadache.com, stressheadache.com, tiredheadache.com, migraine.com, myheadhurtsithinki'llgolaydownforawhile.com. This is CLUSTERHEADACHES.COM.  This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches! If you normally take Excedrin, or stand on your head to relieve your headache pain I will GUARANTEE you don't have cluster headaches.  Find another community somewhere else that will sympathize with your "pain". If your headaches somewhat resemble the attack Anthony suffers through in the link Potter provided... welcome to the clusterheadaches.com family. DJ

Sir....
     Are you a doctor?  I've seen the videos.  I've been in enough pain 1x to go to the emergency room. I turned around 1 block away before going. 

     We don't all feel like "the video "  and pray for those that do.
I dont need to tell you the story, they are called cluster headaches.  Obviously some more painful than others.  This is not a contest.

I was a the supper table last night talking to my better half about this very post and "the pharmacist" and the headstand.  (Her dad is a pharmacist) we discuss blood to brain and O2 and what not. As we are talking I feel the beast approaching.  Could the celery be a trigger?

    Anyway she slips off to grocery and I proceed to bed to do headstands.  And after 4 rounds of headstands CH was gone. It was gone in a poof.  Scientific... NO...... 


true story....

I let you know how it goes next time. 

   

I do think people ought to know who they are talking to.

They might also figure out things better before they go off on people.

JHK, I am directing this to you.

A few things you might want to know:

1.  This place doesn't exist without DJ.  He isn't a doctor, he isn't perfect, BUT you should consider treating him with a bit more respect since this place doesn't exist without him.  If I was at your house and dinner didn't taste very good I wouldn't say "You call that a meal?  Are you even able to cook?"

2.  If you stick around long enough you will find all sorts of idiots coming here claiming everything "cures" or works "100%" on CH.  Some of these people believe what they are saying.  Others are screwing with us.  Either way, it ticks many people off.

3.  Alternative methods presented well with a positive attitude are usually given the respect deserved.  People who post then dramatically run when questioned get the lack of respect they deserve.

Just my thoughts, I speak for noone but myself, and sometimes I don't even speak for myself.

2. 

hey Fram..... He is the administrator....  I called him "sir"

do you think I went off ? 


I know there a numnuts around here who "2 post" and leave.

I am just kinda curious to the whole blood to the head thing..  I am not that technical.  I dont know. 

Like I said, I will let you know if it works again.  And trust me, if it doesn't work...  you will know too... 

JHK07 wrote on Jun 2^nd, 2010 at 10:14am:

hey Fram..... He is the administrator....  I called him "sir" do you think I went off ?  I know there a numnuts around here who "2 post" and leave. I am just kinda curious to the whole blood to the head thing..  I am not that technical.  I dont know.  Like I said, I will let you know if it works again.  And trust me, if it doesn't work...  you will know too...

The "Are you a doctor?" line read as disrespectful to me.  I would have just said something like the following:

I am going to give it a try.  I already tried once and after 4 rounds, it was gone.  I'll try again and report it here.


As I said, just my opinion.   

Fram,


Asking him if he is a doctor is a legit question.  I might respect his replies more if he was.  It may have came across disrespectful, but really, I just wanted to know.   

   

JHK07 wrote on Jun 2^nd, 2010 at 10:42am:

Fram, Asking him if he is a doctor is a legit question.  I might respect his replies more if he was.  It may have came across disrespectful, but really, I just wanted to know.

I'm at a loss for words.

        Potter

JHK07 wrote on Jun 2^nd, 2010 at 10:42am:

Fram, Asking him if he is a doctor is a legit question.  I might respect his replies more if he was.  It may have came across disrespectful, but really, I just wanted to know.

Read my post a few posts ago.  Knowing who DJ is should be enough to afford him the most respect you have.  Doctor or not, he has earned all our respect for MANY reasons.

If you need to know more, ask around.  You will learn.  Until then, he deserves your respect because when you post here, you are posting in HIS house.

Just some friendly advice.

Yep, Potter....I'm at a loss for words too.   :-?

Add me to that list also.  Just WOW!!!!

Something else that really tickles me is someone actually believing... that just because someone has a computer and can type that he is a pharmacist ...actually makes it true.    ::)
   

Guiseppi wrote on Jun 1^st, 2010 at 6:47pm:

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot. A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit. Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt. That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set! So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy. Joe

This never occurred to me!  Wow, do people really do that?  Might have had my hubbies "tightie whities" on yesterday!  For sure I am in learn & "dose" mode.

I so miss my sense of humor....I think it is still around somewhere in the  "Dark Shadows" (which happened to be my favorite tv show as a young girl and to me that is ironic!)

Sorry to have been pissy  ;)

Thats ok......we're family here. Everyone gets pissy from time to time.

Apology accepted.

Apology accepted but no need to. The first time somebody explained to me what an internet Troll was I was dumbfounded. The thought that someone would devote their lives to being that big a turd was mind boggling! ;D Live and learn I guess!

Joe

1961 Mom, I saw your post and almost jumped in on your side on it, lucky for me (ha ha) i got an attack and had to jump on the 02. When I returned I read all of the posts about assholes who do this stuff and I breathed a sigh of relief I didn't jump into defending this guy. I am new to all of this posting and such and never thought that people would do that kind of thing, but now you and I are both better educated by those who have come before us so please don't feel badly, you almost had me for company.

David :) :) :)

davidj35 wrote on Jun 2^nd, 2010 at 6:30pm:

1961 Mom, I saw your post and almost jumped in on your side on it, lucky for me (ha ha) i got an attack and had to jump on the 02. David :) :) :)

Thanks for sharing!  This one made me laugh in a "no attack+big shadow=foot-in-mouth disease" sort of a way :D

Never thought an attack would be good for something!!!!

I have seen your posts David and am hopeful that you get relief soon.

Cindy

Quote:

I might respect his replies more if he was

You might not have to

Really?  You'd respect a doctor more than a person who actually has suffered from CH? 

I don't know what sort of doctors you've seen but my experience (10+ yrs undiagnosed) certainly left me wanting/suffering!

Also 1961mom don't worry, you're certainly not the first person to get sucked in by a troll!  I did that when I first came here and got into a fight with Jonny.  I still blush about that  :P

Kate

ANYONE who disrespects DJ around here is in deep crap.  He is a sufferer, this is his home, he pays the bills around here, and he has earned our respect.

Just for starting this site more than a decade ago where people could come for support and information, has saved many many lives where folks were just about to do the unthinkable because they thought they were alone. 

You don't mess with DJ cause you'll have a whole slew of people banning your ass right quick.  I will be the first.   >:( >:( >:(

DJ had my respect from the moment I found this site. I don't know him from Adam but any one who would goto the trouble of setting up a site like this , with the sole intention of helping fellow sufferers , can only be a saint sent from God Himself.

Respect dude  8-)

Nigel

Whose DJ ?

seaworthy wrote on Jun 2^nd, 2010 at 10:59pm:

Whose DJ ?

He's Steph's DJ.

and....OUR DJ! 8-)

1961mom wrote on Jun 2^nd, 2010 at 5:09pm:

Sorry to have been pissy  ;)

No big thing, and no need to apologize.   ;)  We tend to get a little protective of the members here, especially the new ones. 

That's the bottom line--no one wants to see people suffer unnecessary pain chasing some nonsense cure.  This one wasn't so awful (I'd imagine it would hurt like hell).  But some of the ones we've seen proposed by some random yahoo from the wilderness of the internet could be downright harmful--colloidal silver, and methampetamine come to mind.  (Yes--we've actually had posters who advocated meth as a treatment.)

Best,

George

seaworthy wrote on Jun 2^nd, 2010 at 10:59pm:

Whose DJ ?

dj who?

hell i don't know guys, what kinda crazy shit have we done to stop a screamer?
thus far i have:

-slept in a 3 fold lawn chair on the front porch in a sleeping bag in the dead cold of january.

-ripped off my clothes like american werewolf in london and ran through the snow in my boxers.

-ran good friends out of bed at 3.a.m to score a small bottle of o2
 
-stayed up for days chopping and chainsawing wood in absolute fear of relaxing.

-poured  ice water over my head and sat out in the cold until my hair froze.

-one of our beloved brains on the board claimed that putting an ice cube on his bald head confusing  his brain into thinking his body is freezing to death, this concentrates  blood flow to the main part of the body and away from your arms, your legs and your head thus stopping an attack.   

the list goes on and on.

perhaps rich tried several things at one time and thought standing on his head was the key.

maybe he had his head in the snow while he was standing on it.



in any case we've all weighed in on the "standing on your head theory"

i for one vouch for the " running through the snow in your underwear" theory. no bullshit it has worked.  ;)

24 hours on the nose I had the opportunity to try this little experiment again.   Holy shit I do not recommend this.  I think I put blood in my head for the beast to start some sort of fire, then laugh.  I my need a chiropractor taboot.    Was so exhausted slept like a baby and forgot to take my Meds (for CH).......

The one thing that occurs during ANY abortive treatment that any of us try - and that very few seem to give any credence to - is the passage of time.

Don't we all tell others that these attacks can last anywhere from 15 minutes to 3 hours (or thereabouts)?

I just ___________ (fill in the blank with your favorite remedy, like "put a pinch of bat guano between my cheek and gum"), and 15 minutes later, it's gone.

Too right!  I just wrapped my head in a banana  ;) and 10 mins later it was gone!

True that Brew, before I was diagnosed and didn't know what the hell was going on anything that made it end was the "answer". Mine was standing perfectly still with my back pressed flat against a wall and moaning, crying, and then screaming instead of my first method which was banging my head against my hardwood floor. It "made" them end and no bruises on my forehead.

David

Tried bat guano. Didn't work at first, but then aborted the attack after chewing it while doing a headstand.

1977

2 Tylenol, rock in fetal position and scratch the bejezeesus out of my scalp on the left side while I wait for my mom to say I could take two more Tylenol while screaming, "It's not a headache, MOM, it's an eyeache!"

1961mom wrote on Jun 3^rd, 2010 at 4:29pm:

1977 2 Tylenol, rock in fetal position and scratch the bejezeesus out of my scalp on the left side while I wait for my mom to say I could take two more Tylenol while screaming, "It's not a headache, MOM, it's an eyeache!"

Posts like this still make me cry......ever stop and think of how many people are still doing this because they haven't been properly diagnosed or treated? :'(

Joe

seaworthy wrote on Jun 1^st, 2010 at 4:38pm:

Quote: It most certainly sounds like you've chosen the wrong line of work. I'll say. Sort of like a Buddist monk working for Smith and Wesson.

I haven't read all the way through this head stand hornet's nest yet, but this is my favorite bit so far.  ;D

You know. I'm just a new guy here. And I read this thread a couple days ago about what rich the drug dealer had to say when it was new. I didn say nothin, but I was thinkin HORSE SHIT!!!! This dude Doesn't have the headache we have. I tried standing on my head years ago. ;)  Again: glad to be here people.

I tried standing on my head. I'm a big man and it got squashed. I cannot recommend this practice. To make things worse, my foot got stuck in my mouth. Tragic.

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I gotta tell ya, I love being upside down.
;)

But it's incredibly painful during a CH episode and I have to stop.

So my experience is the opposite of Rick The Pharmacist.

Now THERE"S a post worth hitting the LIKE button for! Thanks Vig, you crack me up!  ;D

Shoot, Paul.  That's the first time I ever had to look at the top of the photo to see your feet.   ;)

Best,

George

IF I could do THAT...I'm CONVINCED my ch would go away...

Thanks Vig...bwaaaaaaaaa-hahahahaha......

I can't even do that in my swimming pool, great balance sorry to hear it isn't a "cure" for Clusters LOL.

David :) :) :)

Guiseppi wrote on Jun 1^st, 2010 at 6:47pm:

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot. A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit. Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt. That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set! So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy. Joe

Excellent, excellent post.

Have seen the same behavior on Nursing forums I belong to and know firsthand as a moderator on some of them.

It's exhausting, yet, sometimes entertaining in an odd way. Always interesting to see how many trolls pop up in a given time period.

Giving credit where credit is overwhelmingly due, however, to this board where the folks here tirelessly give their support and answers over and over and over again. That can be difficult in and of itself, but SO appreciated!!

Well, this is quite a group.  I left my last message weeks ago and had decided to leave this site alone.  However, today, as I am planning a 3-4 week trip to Italy again, I was arranging my favorites box and ran across this site and decided to look in.  Thousands of visits and 83 insulting messages later, I was in stitches.  Let me make a few points and then leave for another 12 months or so.
#1.  I am a pharmacist.   I have been a pharmacist for 35 years.  However, 28 of those years I was a specialty salesman for Eli Lilly, selling everything from Insulin to growth hormone for the little people.  I finished in the cath labs and ICUs selling ReoPro and Xigris, a blood thinner and a drug used to save lives in severe sepsis.  Loved it all and retired 3 years ago. Now I am back working part time as a pharmacist.  Pharmacy has changed in 30 years.  Before we had only one or two people who were hooked on narcs, sleepers or anti anxiety drugs.  Today it is around 1 in 5 customers are drug heads.  They become stupid the longer they stay on this junk.  Many say, "this is strange, a pharmacist who doesn't like drugs".  Well, there are two types of pharmacists.  Those who don't like drugs and those who loose their license because they do.  Enough said.
#2.  I watched the videos of the cluster headaches on youtube.  Yes, that seems to be the general feeling that I have when I get one.  I have to hang on to something and have a panic of what to do.  An urgency that I have to do SOMETHING to make the pain (it feels like I have a knife in the right side of my head) go away.  My diagnosis is, sadly, correct.  The doctor who dealt with me in the ER was very familiar with the condition as she had done some internal residency at the Mayo
Clinic that included studying the Cluster Headache syndrome.  She seemed quite confident that I have CH and that is enough for me.  I have not been a headache sufferer throughout my life.  Most headaches that I have had were mildly irritating and usually caused by not eating.  CHs should not even be called headaches.  There should be another word invented.  For those so convinced that I don't have CHs, I wish you were right. 
#3.  My headstands still work for me so I really don't give a hang what anyone thinks.  I am ecstatic that I have the ability to stop these monsters in their tracks.  My only hope in posting my post was that I could help someone else.  I never suspected that I had the "cure" to CHs.  Rather, I had found something that worked for me and maybe, just maybe, it would help another.  I had no idea that I had landed a A-bomb on a society of haters.  Happily, though, my CHs have diminished to once or twice a week, always late in the evening (which is great as I am not sure about it would look to do a headstand behind the counter)
#4.  To all of those who so smugly KNOW that I am a fake, non-pharmacist, don't have CHs, am a "troll" (what ever the hell that is), etc..............all I can say is that you are so wrong that it makes me chuckle.  Also, with regards to your spiritual guru, Mr DJ, I find a disconnect between the goals of this website as he wrote lofty ideals and rules for "sharing, no attacks on one another, no foul language, treat one another with respect, a forum for civil interaction, etc." with the way he attacked me with vengence and four letter mud.  He is obviously the best person to lead this motley pack of pariah.

Something tells me you won't have a screen name in 12 months.

wrote on Jun 25^th, 2010 at 10:50am:

Well, this is quite a group.  I left my last message weeks ago and had decided to leave this site alone.  However, today, as I am planning a 3-4 week trip to Italy again, I was arranging my favorites box and ran across this site and decided to look in.  Thousands of visits and 83 insulting messages later, I was in stitches.  Let me make a few points and then leave for another 12 months or so. #1.  I am a pharmacist.   I have been a pharmacist for 35 years.  However, 28 of those years I was a specialty salesman for Eli Lilly, selling everything from Insulin to growth hormone for the little people.  I finished in the cath labs and ICUs selling ReoPro and Xigris, a blood thinner and a drug used to save lives in severe sepsis.  Loved it all and retired 3 years ago. Now I am back working part time as a pharmacist.  Pharmacy has changed in 30 years.  Before we had only one or two people who were hooked on narcs, sleepers or anti anxiety drugs.  Today it is around 1 in 5 customers are drug heads.  They become stupid the longer they stay on this junk.  Many say, "this is strange, a pharmacist who doesn't like drugs".  Well, there are two types of pharmacists.  Those who don't like drugs and those who loose their license because they do.  Enough said. #2.  I watched the videos of the cluster headaches on youtube.  Yes, that seems to be the general feeling that I have when I get one.  I have to hang on to something and have a panic of what to do.  An urgency that I have to do SOMETHING to make the pain (it feels like I have a knife in the right side of my head) go away.  My diagnosis is, sadly, correct.  The doctor who dealt with me in the ER was very familiar with the condition as she had done some internal residency at the Mayo Clinic that included studying the Cluster Headache syndrome.  She seemed quite confident that I have CH and that is enough for me.  I have not been a headache sufferer throughout my life.  Most headaches that I have had were mildly irritating and usually caused by not eating.  CHs should not even be called headaches.  There should be another word invented.  For those so convinced that I don't have CHs, I wish you were right.  #3.  My headstands still work for me so I really don't give a hang what anyone thinks.  I am ecstatic that I have the ability to stop these monsters in their tracks.  My only hope in posting my post was that I could help someone else.  I never suspected that I had the "cure" to CHs.  Rather, I had found something that worked for me and maybe, just maybe, it would help another.  I had no idea that I had landed a A-bomb on a society of haters.  Happily, though, my CHs have diminished to once or twice a week, always late in the evening (which is great as I am not sure about it would look to do a headstand behind the counter) #4.  To all of those who so smugly KNOW that I am a fake, non-pharmacist, don't have CHs, am a "troll" (what ever the hell that is), etc..............all I can say is that you are so wrong that it makes me chuckle.  Also, with regards to your spiritual guru, Mr DJ, I find a disconnect between the goals of this website as he wrote lofty ideals and rules for "sharing, no attacks on one another, no foul language, treat one another with respect, a forum for civil interaction, etc." with the way he attacked me with vengence and four letter mud.  He is obviously the best person to lead this motley pack of pariah.

Hope it keeps on working !  I tried it 2x.  The 2nd time hurt bad!!!!
I Like what you had to say. good luck.

JHK07 wrote on Jun 25^th, 2010 at 11:12am:

wrote on Jun 25th, 2010 at 10:50am: Well, this is quite a group.  I left my last message weeks ago and had decided to leave this site alone.  However, today, as I am planning a 3-4 week trip to Italy again, I was arranging my favorites box and ran across this site and decided to look in.  Thousands of visits and 83 insulting messages later, I was in stitches.  Let me make a few points and then leave for another 12 months or so. #1.  I am a pharmacist.   I have been a pharmacist for 35 years.  However, 28 of those years I was a specialty salesman for Eli Lilly, selling everything from Insulin to growth hormone for the little people.  I finished in the cath labs and ICUs selling ReoPro and Xigris, a blood thinner and a drug used to save lives in severe sepsis.  Loved it all and retired 3 years ago. Now I am back working part time as a pharmacist.  Pharmacy has changed in 30 years.  Before we had only one or two people who were hooked on narcs, sleepers or anti anxiety drugs.  Today it is around 1 in 5 customers are drug heads.  They become stupid the longer they stay on this junk.  Many say, "this is strange, a pharmacist who doesn't like drugs".  Well, there are two types of pharmacists.  Those who don't like drugs and those who loose their license because they do.  Enough said. #2.  I watched the videos of the cluster headaches on youtube.  Yes, that seems to be the general feeling that I have when I get one.  I have to hang on to something and have a panic of what to do.  An urgency that I have to do SOMETHING to make the pain (it feels like I have a knife in the right side of my head) go away.  My diagnosis is, sadly, correct.  The doctor who dealt with me in the ER was very familiar with the condition as she had done some internal residency at the Mayo Clinic that included studying the Cluster Headache syndrome.  She seemed quite confident that I have CH and that is enough for me.  I have not been a headache sufferer throughout my life.  Most headaches that I have had were mildly irritating and usually caused by not eating.  CHs should not even be called headaches.  There should be another word invented.  For those so convinced that I don't have CHs, I wish you were right.  #3.  My headstands still work for me so I really don't give a hang what anyone thinks.  I am ecstatic that I have the ability to stop these monsters in their tracks.  My only hope in posting my post was that I could help someone else.  I never suspected that I had the "cure" to CHs.  Rather, I had found something that worked for me and maybe, just maybe, it would help another.  I had no idea that I had landed a A-bomb on a society of haters.  Happily, though, my CHs have diminished to once or twice a week, always late in the evening (which is great as I am not sure about it would look to do a headstand behind the counter) #4.  To all of those who so smugly KNOW that I am a fake, non-pharmacist, don't have CHs, am a "troll" (what ever the hell that is), etc..............all I can say is that you are so wrong that it makes me chuckle.  Also, with regards to your spiritual guru, Mr DJ, I find a disconnect between the goals of this website as he wrote lofty ideals and rules for "sharing, no attacks on one another, no foul language, treat one another with respect, a forum for civil interaction, etc." with the way he attacked me with vengence and four letter mud.  He is obviously the best person to lead this motley pack of pariah. Hope it keeps on working !  I tried it 2x.  The 2nd time hurt bad!!!! I Like what you had to say. good luck.

Which part of this diatribe did you like?  I don't think you apologized to DJ unless I missed it.

           Potter

I guess it was somewhat less than 12 months.

Brew wrote on Jun 25^th, 2010 at 11:25am:

I guess it was somewhat less than 12 months.

Yep.

Best,

George

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hope you are fine in italy too.do people have evolved there too as in the rest of the world and can stand up naturally cause i don't want you to be scared if you are the only one there.cherck it before you go :D

Rick,

If what your last post says is true please understand that we DO get a lot of people who lurk and stalk, our "home"  (trolls)and then post ridiculous cures or try to sell us there "medicine". I had a guy recently send me a PM asking me to sell him illegal drugs which I had no access to to begin with and then mentioned his "cure" was to wrap an ace bandage with a rock in it around his head, and that is not even close to the most ridiculous cure I have seen, We are a sensitive group by nature due to the fact that most of us were  misdiagnosed (or undiagnosed) for many years before being told what we have, because well meaning friends and family tell us to take an aspirin  and go lay down because that works for them (and many more of those types), because no ONE understands our pain, and because we want to protect our first time readers from believing that the 1 in a million "cure" will work for them. We want our new people to get 02 first and foremost, we want them to use PROVEN techniques to abort their attacks, we do Not want anyone to suffer needlessly. I am sorry that you feel you have been attacked and disparaged however I believe it is not done out of maliciousness but more like a mother protecting her children. Good luck with your trip and if you are who you say you are (and I believe you may be) then I wish you continued success with your method and I understand you were coming from a good place with it but so are we.

David

Good post David.