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Message started by bustedfor30 on May 25th, 2010 at 11:46am

Title: New to U
Post by bustedfor30 on May 25th, 2010 at 11:46am
I have just become a member and this is my first message to any and all. I am 51 years old and have lived with CH since I was 17. I have been headache free for 4 years now (the longest break ever). I was told by my neurologist that people usually out grow the headaches but I am not holding my breath. It is very nice to find a site where other people understand because my wife does not get headaches, I wish. I have been married for 32 years and have 2 boys, 18 and 21.

Title: Re: New to U
Post by Bob_Johnson on May 25th, 2010 at 11:52am
Glad that you found us.

A word of encouragement: I'm 74 and my last "cycle", three-years ago, was one hit, then nothing more. So, while here is no medical literature about aging out, we have had informal discussions here and it seems to be true, if erratic re. the actual age when tapering down first manifests.

Title: Re: New to U
Post by Dallas Denny 62 on May 25th, 2010 at 11:52am
Welcome to the community bustedfor30!!!  Congrats on the PF time!!!  I'm 63 and have had CH for over 40 years, and was told by a doc at around age 50 that many men grow out of em in their late 50's.....latest cycle was this past August after a 3 year remission so........nah, don't hold your breath, just enjoy the PF time!!

Dallas Denny


Title: Re: New to U
Post by George on May 25th, 2010 at 2:27pm
Welcome.

Sounds as if your experience is similar to mine.  I started with these when I was 13.  I'm 56 now.  I've been in remission for just under a year now.  My last four CH cycles were each three years apart.  Before that, I went through cycles that were a year apart (for ten years).  Early on, my cycles were twice a year.

Aging out?  Could be.  They're certainly becoming less frequent, although they seem to be just as nasty when they come along.  Like you, I'm not holding my breath.

Again, welcome.  Pleased to make your acquaintance.

Best,

George

Title: Re: New to U
Post by Guiseppi on May 25th, 2010 at 6:05pm
Welcome to the board busted! Do you have  a decent regimen to manage the beast? Oxygen, a good prevent etc? Glad you found us, here you don't have to start with a description of an attack....sadly everyone here understands!

Joe

Title: Re: New to U
Post by bejeeber on May 25th, 2010 at 8:46pm
Cycles becoming less frequent as the decades roll by appears very common to me. That has certainly been my experience.

Title: Re: New to U
Post by Arde on May 26th, 2010 at 5:49pm
I must be running in reverse as I didn't get my first CH till I was 59. Am 65 now and they hurt like hell. Been doing good for about 6 or 7 weeks now due to having used the RC seeds. Just get an occasional mild hit easily knocked out with an energy drink. Or maybe I'm getting old.

Title: Re: New to U
Post by George on May 27th, 2010 at 2:22pm

Arde wrote on May 26th, 2010 at 5:49pm:
I must be running in reverse as I didn't get my first CH till I was 59. Am 65 now and they hurt like hell. Been doing good for about 6 or 7 weeks now due to having used the RC seeds. Just get an occasional mild hit easily knocked out with an energy drink. Or maybe I'm getting old.


Glad to hear that your present regimen seems to be working for you, Arde.   :) 

Late onset is a lousy thing.  Those of us who started early with it have at least had a chance to fit it--however uncomfortably--into the rest of our lives.  Having it come on in your fifties must be a bolt from the blue. 

Every day I read the accounts from others here, I realize how fortunate I've been.  I've not had it so badly.

Best wishes,

George


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