How do you menage your life with the best?

i mean: work, friends, study, life..

well after 6 days free of the beast it came back to me yesterday so i canceled a date, and today i canceled a country club with friend and family because i had one in the morning...   :'(

do you have tips how should i manage my life?

and one more  question.. i have a final job interview on Sunday should i tell them about this?!

Sorry that you have CH.  As for me, when I feel one coming on, I run for the nearest phone booth, strip off all of my "outside clothes" to reveal my skin tight underclothes with a big "S" on the front, a red cape and fly "up, up and away!"  My CH goes away and I only run into a piece of kryptonite and then the pain returns-damn you Lex Luthor!

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How do you menage your life with the best?

By going to a neuro and finding a treatment protocol that is effective.

Good medical care is the foundation, of course, but then it's helpful to develop a mental/emotional state of mind which does not leave you a "victim".
-------

"Pain vs. Suffering--research support", a message posted on 1/7/07.

SSRIs used to treat depression have gained a good track record but docs have been long aware of relapses when the med is stopped. Research has lead to a recommendation that the med be continued for up to 18-months after the depression has lifted because this reduces the rate of relapse. Parallel research revealed that this longer use of the meds allows our brain to "rewire" itself leading to better long term outcomes.

The article (available on the OUCH site, last line) "Pain vs. Suffering" is based on cognitive therapy. These forms of counseling/psychotherapy have been strongly supported by good research. Now some evidence is appearing that these therapies act like the SSRIs to stimulate our brains to "rewire", affording protection against strong anxiety conditions. Bottom line: looks like it may be possible to alter brain functioning to build in a permanent reduction of the anxiety which besets many folks with CH. While the gods may not have made a final pronouncement yet, experience with cognitive therapy, so far, really supports its use to treat anxiety & depression. While using "pain vs. suffering" takes time, commitment, and practice, it beats endless use of benzos, etc.

"“My brain is generating another obsessive thought. Don’t I know it is just some garbage thrown up by a faulty circuit?” After 10 weeks of mindfulness- based therapy, 12 out of 18 patients improved significantly. Before-and-after brain scans showed that activity in the orbital frontal cortex, the core of the OCD circuit, had fallen dramatically and in exactly the way that drugs effective against OCD affect the brain. Schwartz called it “self-directed neuroplasticity’ concluding that “the mind can change the brain?’ (TIME, 1/29/07. Major article on the human brain.) (OCD is classified as an anxiety disorder.)

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What Seaworthy and Bob said. I just retired from a 30 year law enforcement career, been married 28 years, raised 2 daughters, all with CH. Don't let it be WHO you are. It's a pain in the butt condition, and few will understand when you try to explain how "just a simple headache" can be so painful, so I don't even try.

Do NOT try to treat this condition one attack at a time. That's a recipe for a lot of pain. You need to develop an effective long term treatment plan. When you've done that, you'll find the beast loses a lot of his ability to rule your life. Hang in there.

Joe

I noticed your other question about the job interview. I wouldn't recommend disclosing your personal medical conditions in an interview. not sure what the market is like in Israel but here there are too many candidates applying for 1 job, so all other things being equal, an employer would likely make another choice.

But to echo what other said, work with your neuro to have an effective prevent/abort plan. Joe carried his 02 in his squad car and had other tools (imitrex, redbull enery drink etc) at his disposal all the time.

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i canceled a country club with friend and family because i had one in the morning...

I wouldn't have cancelled that because of having one in the morning for anything.  I don't know how long you've had CH...but eventually you will learn to live between the hits.  Other-wise, you might as well stay in your house and never go anywhere.

edit to add:  I just had 4 clusterheads and their supporters here for almost a week visiting and we were hardly home at all.  We were out and about sight-seeing every day.  Some of us got hit..the others carried on and when it was over we went about doing whatever it was we were doing.  Didn't even slow us down.  If you are somewhere like the country-club you mentioned and you get hit...go to a quiet place where you can be alone and then get back to living when it's over.  It helps to have a supporter with you also. 

Linda

thank you all.. it really means a lot for me that you're here..

i don't have a lots of supporters coz i hear "its only a headache, take a pill" they don't really understand what it like to have this killing pain for 4 hours continuously..

i don't want to sound like whiner and it's all kinda new to me.. that's why i cancelled country club.. it's like i afraid of my friends to see me like this..

about my job, i won't tell them.. they don't need to know for now.. i still hope that it will go away like it did two years ago...

and thanks again to you all!!!  :-*

Click this link, print it out, and give it to as many as you need to:

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As to hoping it goes away, you can wish in one hand and sh!t in the other - see which one fills up first. You need to take matters into your own hands and do something about it.

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It's a pain in the butt condition

Are you shore you have CH Joe ?   ;D

Headache Boy uk wrote on Apr 24^th, 2010 at 6:15pm:

Quote: It's a pain in the butt condition Are you shore you have CH Joe ?   ;D

Okay that just hurt! :P    ;)

Sorry dude  :'(

You didn't mention if you have a doctor or not, but I just searched the OUCH website and found this recommended doctor in Israel where you live, might be worth paying a visit...

Rachel Herring
Meir hospital Kfar Saba



No, do not tell the interviewer about your condition.

thanks vegas! i was teken to er in that hospital..

i do have a doctor that diagnosted me... but i will check this dr. rachel..

thanks a lot!!!  :-*

1.  I would only disclose your diagnosis if your CH could pose a safety risk for you or coworkers.  I do not know if that is a concern for any jobs out there, but that would be the only reason to let them know.

2.  Do yourself a favor and print that letter out and keep it in your purse.  If you get hit while with a friend, you can give it to them.  You can also write on it what you might want someone to do for you.... (icepack, help keep people at bay, help you find a place to be alone...)

3.  Get to a specialist, get your regimen settled and LIVE YOUR LIFE!!!!!!!!

4.  Stick around here... we all understand.

Get oxygen, preferrably 25lpm or higher, but a minimum of 15lpm.  You won't be dealing with 4 hour hits.  Most of mine I can kill within 5-8 mins, at least to the point of being functional.  Maybe not at my peak, but well enough that I don't hesitate to be in public.

Get a good preventative.  Many use Verapomil, Topomax, Lithium, and a few others, sometimes in combo.  Personally I prefer Kudzu, an herbal suppliment that works better for me than any of the prescribed meds I've used.  Each of us is different, and each of us reacts differently to each med/method of treatment.  You will have to learn what works for you and be ready to change when/if it quits working. 

Above all, you have to control CH, or it will control you and run your life.  Live between the hits, and let it stop you only for the minimum and go on.  As to friends, show them the letter Brew linked for you, refer them to this site or the OUCH site for their education.  If they still don't understand enough to accept you the way you are you really don't have friends.  Let them go their way and get on living your life.

Jerry

wrote on Apr 24^th, 2010 at 6:58am:

Sorry that you have CH.  As for me, when I feel one coming on, I run for the nearest phone booth, strip off all of my "outside clothes" to reveal my skin tight underclothes with a big "S" on the front, a red cape and fly "up, up and away!"  My CH goes away and I only run into a piece of kryptonite and then the pain returns-damn you Lex Luthor!

TommyA,

Seventeen posts from you and not one of them have been about your experience with CH.  Everything has been about politics and religion.

As you may know, I built this place for CH sufferers and their supporters.  Why are you here?  If you are a CH sufferer, tell your story!  We'd all love to hear it!  If it's simply to talk about politics and religion you need to find another forum. 

Regards,

DJ

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noticed your other question about the job interview. I wouldn't recommend disclosing your personal medical conditions in an interview. not sure what the market is like in Israel but here there are too many candidates applying for 1 job, so all other things being equal, an employer would likely make another choice.

very good advise.i had this lesson taken lately the bad way thinking in first place that honesty deserves a better treatment.but things seem to work differently...