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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Call to Action for All O2 therapy Users !!! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1271129331 Message started by Batch on Apr 12th, 2010 at 11:28pm |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Joe-P on Apr 13th, 2010 at 8:10am
Thanks for this information. United we stand! I think the Dept. of Veterans Affairs (VA) also follows the CMS standards, so a change to their policy affects even more of us who suffer.
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Title: Re: Call to Action for All O2 therapy Users !!! Post by QnHeartMM on Apr 13th, 2010 at 9:47am |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Brew on Apr 13th, 2010 at 10:57am
Done.
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Brew on Apr 13th, 2010 at 11:22am
And done (both GP, who wrote my Rx for O2, and neurologist).
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Title: Re: Call to Action for All O2 therapy Users !!! Post by bejeeber on Apr 13th, 2010 at 12:48pm
Personally I'm setting any calls to action that include extremist political rants to "ignore".
I stopped reading when I got to this part: Batch wrote on Apr 12th, 2010 at 11:28pm:
If you want the maximium number of people to read your entire post and join ranks with you on issues such as O2 for cluster headache, you might want to consider leaving the uncalled for right wing diatribes out of it. |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Not4Hire on Apr 13th, 2010 at 6:52pm bejeeber wrote on Apr 13th, 2010 at 12:48pm:
amen! bro... edit to say: Mr Batch: While I realize you have a visual impairment which requires a larger font for YOU to see, (most) of the rest of us get along fine with the the default. It is ...irritating... to have to be SHOUTED AT when you post at a level of fontage that is generally posted to express outrage. I have taken to ignoring your posts completely due to the political slant but you sometimes have a useful message. I'm sure this will fall on ears that are plugged with teabags, but, for now, MY eyes are not obscured by cataracts of intolerance. And again, your message is ...tolerable concerning the use of oxygen. Keep it up. But lower your voice...there are adults listening. |
Title: Re: Call to Action for All O2 therapy Users !!! Post by LasVegas on Apr 14th, 2010 at 12:00am
Batch, when I saw this posting yesterday, I did not reply with "done" because I do not have health insurance, so who would I write?
But something i could do to get the word out is what I did do is copy/paste your posting to the Facebook group page "Cluster headaches" so that any of the 1,500+ members there that reside in the USA or territories with health insurance could help in our cause. "Every vote counts!" ;) |
Title: Re: Call to Action for All O2 therapy Users !!! Post by LasVegas on Apr 14th, 2010 at 5:03pm
bump til May 9th
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Joni on Apr 14th, 2010 at 5:45pm
I agree with Bejeeber and Notforhire. I quit reading also! Is this about cluster headache O2 therapy or is it a slam to the liberals that also have HA's. CHA's are not just a conservative issue. I welcome discussion on politics as long as it is give and take.
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Brew on Apr 14th, 2010 at 6:25pm
Any chance we might be able to get past the politics and write to our doctors? I'm not seeing a lot of "done."
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Melissa on Apr 14th, 2010 at 8:36pm
Beings' this is the Medications, Treatments and Therapies portion of the website, please keep personal political opinions off this section.
Thank you. |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Skyhawk5 on Apr 14th, 2010 at 9:50pm
Done, will do.
Personal attacks people, please... Don |
Title: Re: Call to Action for All O2 therapy Users !!! Post by jon019 on Apr 14th, 2010 at 10:29pm Melissa wrote on Apr 14th, 2010 at 8:36pm:
Mel...Sis...thank you...and actually, one l..e..e..e..e..e..tle comma after "Beings"...and I'd swear that was Klaatu talkin'..... :D Good giggles...and I aint even "dosed" yet.... Best, Jon |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Melissa on Apr 15th, 2010 at 7:06am jon019 wrote on Apr 14th, 2010 at 10:29pm:
Aw, come on Jon, how do you know that isn't what I meant? ;) |
Title: Re: Call to Action for All O2 therapy Users !!! Post by LasVegas on Apr 15th, 2010 at 12:00pm
o2 is something we ALL agree is life saving for us....if you have a doctor and reside in the USA, please consider completing this task ASAP, time is running out!!!
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Title: Re: Call to Action for All O2 therapy Users !!! Post by DennisM1045 on Apr 16th, 2010 at 5:02pm
Done!
-Dennis- |
Title: Re: Call to Action for All O2 therapy Users !!! Post by Fox on Apr 19th, 2010 at 2:06pm
My HA specialist is Dr. Fred Sheftell. Does this count as a "Done"?
Fox |
Title: Re: Call to Action for All O2 therapy Users !!! Post by LasVegas on Apr 24th, 2010 at 9:01pm
bump
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Batch on May 4th, 2010 at 2:55pm
Good people of Clusterville. There are less than 6 days remaining to submit public comments to the Centers for Medicare & Medicaid Services (CMS) on the National Coverage Analysis (NCA) of the use of home oxygen therapy for Cluster Headaches.
So far, there has been only one public comment submitted. That is not going to hack it… A similar proposal to cover home oxygen therapy for cluster headaches had 16 public comments in 2005 and it was still shot down. The results of Dr. Goadsby's recent study of oxygen therapy provide the medical evidence needed to overturn the present non-coverage policy for home oxygen therapy for cluster headaches. Now is the time for action on your part. Comment now in favor of overturning the present non-coverage policy or prepare to kiss your existing coverage good by. The deadline to submit public comments is this Sunday, 9 May 2010. Call or email the physician or neurologist who prescribed your oxygen therapy and urge them to make a public comment to CMS then sit down and draft up comments of your own to submit. Opportunities like this to really help ourselves as cluster headache sufferers are rare as hen's teeth and only come around once in a blue moon. Please do yourself and other fellow US cluster headache sufferers, regardless of age, a favor and submit your own public comments in favor of Medicare coverage for home oxygen therapy expenses for cluster headaches. You'll all turn 65 soon enough. There is also a very real and very frightening potential outcome from this NCA for home oxygen therapy for cluster headaches. The cluster headache survey we took in 2008 indicated 35% of the respondents indicated their medical insurance companies would not cover the expense of home oxygen therapy for cluster headaches. If this NCA results in a continuation of the present non-coverage policy for home oxygen therapy for cluster headaches, such a determination could easily result in more insurance companies following the Centers for Medicare and Medicaid non-coverage policy and you'll no longer have coverage for this very effective abortive therapy. In short, if the present non-coverage policy is not overturned, many of you could easily receive a letter from your medical insurance company telling you they will no longer cover the expense of home oxygen therapy regardless of your age… Keep your comments simple and to the point. Tell CMS how safe and effective oxygen therapy is in aborting the excruciating pain of your cluster headache attacks. Comment on the number of years your doctor has prescribed home oxygen therapy for your cluster headaches. Let them know the impact on your quality of life if the NCA results in a continuation of the non-coverage determination. The link to submit your public comment follows: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE I'll be submitting my public comments tonight. Take care and please don't let this golden opportunity pass you by. V/R, Batch |
Title: Re: Call to Action for All O2 therapy Users !!! Post by bonkers on May 5th, 2010 at 5:32am
Well, Batch. . . it looks like you took the "golden opportunity" to limit your political comments in this latest message. That's good! Now if you can just find a way to make the words a little smaller, I think you'd be doing most of us a favor.
Thanks, Ron |
Title: Re: Call to Action for All O2 therapy Users !!! Post by itotka on May 5th, 2010 at 5:53am
Fingers crossed in the background. Good luck guys!
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Title: Re: Call to Action for All O2 therapy Users !!! Post by Batch on May 5th, 2010 at 10:18am
István my friend,
Thank you for the kind thoughts. Things are looking up. There are 21 public comments to CMS on the NCA of oxygen therapy for the cluster headache so far as of this morning. Good on OUCH for getting out the mass email on this topic. It appears we have at least three medical professionals responding. That's good, but we still need more comments from neurologists and PCPs who treat patients with our disorder and prescribe oxygen therapy as the first abortive of choice. Take care and thanks again V/R, batch |
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