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Cluster Headache Help and Support >> Cluster Headache Specific >> So when can you say it's officially over?!
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Message started by macjob79 on Apr 9th, 2010 at 11:36am

Title: So when can you say it's officially over?!
Post by macjob79 on Apr 9th, 2010 at 11:36am
So I'm just curious, my normal cycle in the past (only 2 other times) has been between 4-6 weeks. Sunday marks the end of week 4, and god help me if I'm jinxing myself, but it's been three full days now without any sort of attack. When is it too early to say things have settled?! God forbid I go have a drink to celebrate and it causes remission!!!

TIA!

Mike

Title: Re: So when can you say it's officially over?!
Post by Guiseppi on Apr 9th, 2010 at 11:54am
Excellent question! I declared my cycle officially over Mid March, went off my lithium, and got creamed! Not really a science to it. 2 weeks pain free is when I start ramping off my prevent, but keep the oxygen close by in case you're as wrong as i was!

Joe

Title: Re: So when can you say it's officially over?!
Post by Marc on Apr 9th, 2010 at 8:54pm
You just never know...........

Title: Re: So when can you say it's officially over?!
Post by neuropath on Apr 9th, 2010 at 9:02pm
Same as Joe here. 2 weeks PF is a good time to start testing if you can taper down prevents...slowly.

Title: Re: So when can you say it's officially over?!
Post by OneEyeBlind on Apr 9th, 2010 at 9:28pm
I don't know, but congrats on the pain free days.  Take them as a blessing and move slowly.   ::)

Title: Re: So when can you say it's officially over?!
Post by NovellRed on Apr 10th, 2010 at 1:45am
I know my cycle is over when I can take an drink a beer, and take a nap while on a cross country flight.
Those are my 3 biggest triggers.

Title: Re: So when can you say it's officially over?!
Post by macjob79 on Apr 10th, 2010 at 2:16am
Thanks guys, I'm going to give it another week, which will put it at about 12 days, then next Friday, oh beers will be had. That will be a good test. Want to play it safe, because the last time I had a few beers was the last horrible episode I had, when the O2 didn't abort.

Thanks again!
Mike

Title: Re: So when can you say it's officially over?!
Post by Judge_Smails on Apr 10th, 2010 at 3:27pm
My cycle has been 4-6 weeks every 2 years for the past 20 years.  This cycle started in late Dec and I had a week of being pain free in mid Feb so I started tapering off the verapamil - then I got crushed.  It's now April and I'm still getting hit with shadows and some minor headaches.  Damn beast, just when you think you've got it figured out it goes and changes up on you.

Title: Re: So when can you say it's officially over?!
Post by FramCire on Apr 10th, 2010 at 4:42pm
My early cycles ended abruptly when I woke up and didnt have any type of morning headache.  Now, I have no idea.


Title: Re: So when can you say it's officially over?!
Post by Callico on Apr 10th, 2010 at 4:54pm
I'll know mine have ended when the put the headstone in.

Jerry

Title: Re: So when can you say it's officially over?!
Post by neuropath on Apr 10th, 2010 at 11:39pm
Well said Jerry.

Title: Re: So when can you say it's officially over?!
Post by neuropath on Apr 10th, 2010 at 11:40pm
Well said Jerry.

Title: Re: So when can you say it's officially over?!
Post by Chad on Apr 12th, 2010 at 7:51am
Yes, enjoy those PF days.  I usually do the cheap beer test after a couple days PF. 

Title: Re: So when can you say it's officially over?!
Post by Brew on Apr 12th, 2010 at 8:03am
There are people on this board who haven't been hit for 10, 15, even 20 years. They're still here, and they'll tell you it's not over. They even keep oxygen on hand.

In the words of one of the deepest philosophers of our time, Yogi Berra, "It ain't over 'til it's over."

Title: Re: So when can you say it's officially over?!
Post by lorac on Apr 12th, 2010 at 8:31pm
Well said Brew.

Title: Re: So when can you say it's officially over?!
Post by George on Apr 13th, 2010 at 9:11am
We're all a bit different.  I've been episodic for a long time, and I can reliably say that, for me at least, if I've gone a week without a hit or a shadow, that that particular cycle is over.  The beer test tells the tale.

As for the thing itself, well....  I'm not holding my breath.  I only hope that I live longer than it does.   :P

Best,

George

Title: Re: So when can you say it's officially over?!
Post by anthony g on Apr 13th, 2010 at 9:14am
AMEN brew!

Title: Re: So when can you say it's officially over?!
Post by Loric on Apr 13th, 2010 at 4:10pm
I think "its not over" is something we need to better express to newbies.

I suppose it's possible it really ended and some folks walked off into the sunset all happy, but so far no one has reported that happy ending.

I just know i'm still mad at myself for thinking it was over and getting complacent and then the day it hit again i was digging through an old suitcase for an old overnight bag for one pouch to find a stash of T-rex I used to keep in there for when I travel. Not fun.

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