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Cluster Headache Help and Support >> Cluster Headache Specific >> Doc appointment today
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Message started by OneEyeBlind on Apr 7th, 2010 at 7:54pm

Title: Doc appointment today
Post by OneEyeBlind on Apr 7th, 2010 at 7:54pm
Finally saw the doc today, in person, real and live.  Ya gotta love that, especially since my doc is so down to earth.  (She had been working on stuff with my every day on phone call this past week).  I walked out with Verapamil (which I started immediately).  I also have a script for a prednisone taper if I should need it.  Told her I don't do so good on prednisone as it makes me a little crazy.  We decided I could hold off on that until I get a little sleep and think about it, as long as I started the Verapamil.  Walked out with more Imitrex waiting at the pharmacy.  She also gave me a script for and anti-anxiety med to sleep.  I'm on the fence about that, but considering I haven't slept for 2 weeks ......... maybe I do need it. 

I also got some help from a friend with a high-flow regulator.  Smooches to you !  It's in the mail.  Had to call Apria and switch out some tanks, but they will be coming on Friday with the tanks to fit the regulator. 

All in all, a really good day.

Title: Re: Doc appointment today
Post by bejeeber on Apr 7th, 2010 at 10:03pm
Yay One Eye!

Sounds like are really getting those beast killing ducks in a row now!  8-)

Title: Re: Doc appointment today
Post by neuropath on Apr 7th, 2010 at 10:25pm
Unless you get hit badly at nights, 0.5 mg of Melatonin 30 min before bedtime can work very well for a good night sleep. Also works for me whenever I am on a pred taper and am battling insomnia as a result.

Glad to hear you have all your arsenal in place.

Good luck.


Title: Re: Doc appointment today
Post by OneEyeBlind on Apr 8th, 2010 at 2:01am
Ok, I'm up with the third heachache of the night.  I should have known it wasn't gonna be a good day.  They are killers tonight.  I tried to do 1/3 shot of trex for the second one, and after 15 minutes shot the mother load .... only to get another wanger banger 45 minutes later.  I did do 480 mg of Verapamil today, does that piss the beast off or what ?????  Oh sweet Jesus, I was planning on making it to work tomorrow ..............  >:(

Title: Re: Doc appointment today
Post by neuropath on Apr 8th, 2010 at 2:22am
Regrettably Verapamil will take some time to reach therapeutic levels. Up to 2 weeks. It is not known to aggravate CH when taken. The fast-acting formula is preferred by many here over the sustained release (SR) formula.

Until your O2 arrives and for tomorrow, get yourself some redbull or other energy drink (taurine / caffeine combo). When consumed at the very onset of the attack it can really help lower the kip level and in some instances even abort.

Some people who get hit badly during the night report benefits from Melatonin at dosages of 9-10 mg. May be worth researching here to see if its for you.

Hang in there buddy!


Title: Re: Doc appointment today
Post by OneEyeBlind on Apr 8th, 2010 at 2:48am
I did drink a Red Bull, and got on the 02 for the one attack ... did the shot of trex and still got on the 02 for the other.  I'm hanging ... but I ain't going to sleep for a while ..... I still got that nagging feeling !  Shit this crap makes ya tired !  They were both bangers ...... on the floor with both ... swimming in my carpet (legs and arms a wagging ... you get the drift).  I'm so tired I can't do my happy dance anymore ... I don't have the energy to stand and boogie !  :-) 

And this too shall pass ....... just how quickly we'll see.   :'(

Title: Re: Doc appointment today
Post by bejeeber on Apr 8th, 2010 at 10:23pm
Oh no that's a rotten sounding rager you have going there - very sorry to hear that.

The first and last time I tried a 1/3 dose of Imitrex it didn't work and I got hit with a 4 straight hour slammer that nothing would quell, so I have an idea of where you're coming from.

In my case I was a little late getting to that 1/3 dose, so I've never known whether it was because I didn't catch the attack at the onset, or whether I require 1/2 doses, but I've stuck with 1/2 doses since, which have luckily always worked for me.

Melatonin didn't help me, but clearly there isn't a one size fits all approach, and I've seen several people report success with it - actually sleeping thru the night when in cycle - if you can imagine such a thing !  :o




Title: Re: Doc appointment today
Post by OneEyeBlind on Apr 9th, 2010 at 4:42am
Yup, this in one crazy beast.  You never know what to expect !  Had a fairly decent day yesterday after a horrible night .... and then last night ..... I was only up once and aborted with o2 only !  What a relief to sleep for six hours straight !!!  I decided not to test my luck any further when I woke up at 3 am.   :D  I had taken a relpax yesterday morning (cause the beast was still nagging) and then took another one before bed.    ::)  Got a new script for Flova yesterday.  I hope that works as well as the Repax.   :)

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