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Cluster Headache Help and Support >> Getting to Know Ya >> New and confused http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1268834843 Message started by Kerrylou on Mar 17th, 2010 at 10:07am |
Title: New and confused Post by Kerrylou on Mar 17th, 2010 at 10:07am
Hi all,
My name is Kerry and I am 35 and live in Scotland. I have had cluster headaches since I was 17 and they pretty quickly settled into a pattern of once a year normally starting in February for about 9 weeks. Last year I was pregnant at that time and the headaches never came, it was fantastic :) . They also haven't appeared this year either so far and I was just wondering if anyone else has experienced anything like this? I know I should happy and I am, but I am also worrying about them coming back when I least expect it, there is no pleasing some folk lol. Could it be possible that they are gone for good? I would love to hear what you folks think. Thank you Kerry. |
Title: Re: New and confused Post by neuropath on Mar 17th, 2010 at 10:24am
Hi Kerry,
You should check out the threads here about hormone replacement therapy (HRT), in case they do come back. You seem to be a clear case in which hormones have had an effect on CH. Hormones are undoubtedly at play with CH one way or the other and your pregnancy suggests that something may have contributed to a previous unbalance having been addressed during your pregnancy. I hope you will never have to go through a CH again, but if you do I would have a blood test done and my hormone levels checked. A hormone replacement therapy may then be the answer. Hope this helps and wish you many PF days. |
Title: Re: New and confused Post by Chad on Mar 17th, 2010 at 10:31am
Welcome Kerry!
I certainly hope they're gone for good, but you'll find that in most cases that isn't true. You're remission could get longer or shorter. Everybody is different and that cluster we call the "beast" morphs all of the time. Right when you think you got him figured out, he nails you again. I'm not saying this to scare you, but to prepare you. Then you won't be as disappointed. A poster here said the other day, "you must manage your headaches with confidence" or something like that. That pretty much says it all. I hope your pain free days continue. Please ask us anything and welcome to the family. Chad |
Title: Re: New and confused Post by Linda_Howell on Mar 17th, 2010 at 10:46am Quote:
Most likely not. I, too don't want to scare you either, but being prepared for when they DO come back is your best defense. Getting yourself a good Dr. who is knowledgable about this condition is key. Having a preventative and abortive treatment plan in place with the proper meds at your disposal will rest your mind. Until they DO come back, live your life to the fullest without looking around corners. That's the only way we can survive around here. |
Title: Re: New and confused Post by JennLynn on Mar 21st, 2010 at 11:39am
Hello! I am also a newcomer to this site..I had a beautiful baby boy last year. I got my CH at the first sign of pregnancy (before that I hadn't had one in 2 years!) Then my CH went away untill my son was 6 months old...what an awesome break that was. Unfortunately for me I did just start another cycle..this one had lasted for about a week. I had my first CH free night last night. My doctor ok'd me to take Imitrex inj - they said the benefit outweighed the risk and my son is perfect. These injections work right away and seem to be the only treatment that works for me..welcome and good luck! I think with my next pregnancy I want to try O2 therapy bc I think it's prob healthier for the fetus right?
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Title: Re: New and confused Post by mrs mac on Mar 23rd, 2010 at 1:15pm
Hi Kerry
i too hope your pf time continues!!! where abouts in Scotland are you, there is an excellent Neurologist based in the Southern General in Glasgow. May i suggest you phone the ouch uk helpline, you don't need to be a member and it won't cost you anything as we will phone you back! the number is 01646 651 979, just leave a short message with a contact number and someone will phone you back! all the best Sandra xx |
Title: Re: New and confused Post by Kerrylou on Apr 27th, 2010 at 7:06am
Thank you so much to all that replied, its so great to be able to talk to folks that really understand whats happening. I'm sorry I have taken so long to reply, I lost Internet access for a few weeks. I will definitely do as you all suggest, it feels great to actually have positive things to do rather than just waiting and seeing. To Mrs Mac I am in Falkirk so not far from Glasgow at all, so I will be giving the ouch helpline a call.
The funny thing is a few days after I posted here, I started to get headaches in the same areas as my clusters and basically the same kind of pain, but these are mere shadows of the real thing, they are sore yes and annoying but they don't stop me doing anything and I can live with them. I think Neuropath is right about the hormones as I was pregnant last year when i didn't get them, and this year I was undergoing IVF at the time they normally occur, although the cycle had to be abandoned for other reasons. Anyway enough of my rambling ;) I just wanted to say thanks again for all your help and I wish you all many PF days. Kerry. |
Title: Re: New and confused Post by bluebear on Apr 27th, 2010 at 9:46am
Hi Kerry
I'm new on this board too although not new to CHs. I'm also from Scotland - down the Borders. Great that you're free and long may it last. I'm hopefully on the way out of my current cycle and I'm waiting for an appointment with a neurologist. I'll post when I've had it. Also I'd be happy to share any advice I can give, given that we share the same Health Service and the same condition. Good luck. Hope they stay away! |
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