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Cluster Headache Help and Support >> Cluster Headache Specific >> Breaks over, here I go again.....
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Message started by Skyhawk5 on Feb 23rd, 2010 at 8:48pm

Title: Breaks over, here I go again.....
Post by Skyhawk5 on Feb 23rd, 2010 at 8:48pm
14 months and he's back. I used to get up to 2 years but not for the last 3 cycles.

Stocked up on the O2 and DHE and just ordered another higher flow reg for my E-tanks. So far it's been a week of wakeups, stopped by O2 and only one shot. Ready to fight.

Idiots at the O2 shop tried to give me the wrong mask, after I told her 3 times, "the one with a bag". I only get these as backup as I have 2 O2pti masks.

Vent over, Don

Title: Re: Breaks over, here I go again.....
Post by Brew on Feb 23rd, 2010 at 9:09pm
Damn. I hate it for ya.

Title: Re: Breaks over, here I go again.....
Post by Skyhawk5 on Feb 23rd, 2010 at 9:14pm
Thanks Brother, I know you do..

Title: Re: Breaks over, here I go again.....
Post by Guiseppi on Feb 23rd, 2010 at 9:48pm
Funny year...in a not at all funny way.....seems the beast has woken up for a bunch of people. Hoping you run a short shift this go round Don.

Joe

Title: Re: Breaks over, here I go again.....
Post by bejeeber on Feb 24th, 2010 at 1:51am
That's a frikkin rip off - sorry to hear that.  :(

Remissions are supposed to keep getting longer as the years go by. Sheesh you can never count on this beast to play by the rules.

Title: Re: Breaks over, here I go again.....
Post by DennisM1045 on Feb 24th, 2010 at 11:02am
Hi Don,

Wish that you were just reporting PF time :(

You know the drill, we're all there with ya.

-Dennis-

Title: Re: Breaks over, here I go again.....
Post by Jeannie on Feb 24th, 2010 at 12:04pm
Wishing you a short, mild cycle, Don. 

Jeannie

Title: Re: Breaks over, here I go again.....
Post by Skyhawk5 on Feb 24th, 2010 at 4:22pm
Thank you for the support, it is priceless. The best therapy one can ask for.

Don

Title: Re: Breaks over, here I go again.....
Post by FramCire on Feb 25th, 2010 at 9:50pm
Don, maybe a short remission will lead to a SHORT cycle!!

Pain free soon, my friend!!!!

Title: Re: Breaks over, here I go again.....
Post by Skyhawk5 on Feb 26th, 2010 at 2:54pm
I'll take that short cycle. My last 3 lasted 6mnths. So far only wakeups that O2 stops, but every night. Highest was a K-6. Starts slow for me, but one day bam.

I do have the best tools I've ever had for CH. Got them last cycle.

Still the fear bites, but I'm OK...

Don

Title: Re: Breaks over, here I go again.....
Post by beautyofthebeast on Feb 27th, 2010 at 4:12am
Feel for ya Don....mine are back too  :'(
This is the first time ever tho, that I have been able to control them in 30 years!
I'm taking Verapamil SR (standard release) 240mg daily at the mo - forgot to take tablets one day and was hit at 2am K-7....not forgotten since lol.
Although you are advised not to drink alcohol with these meds, I have been able to drink wine (special occasion) and NOT been hit  :o
2 months into cycle now and not had to use O2 once...
I don't post very often, so you may have already used these meds.  I am not even sure if the bout is over..will miss a day of meds next week and see if he's still lurking   [smiley=curtain.gif]

Title: Re: Breaks over, here I go again.....
Post by Jackie on Feb 27th, 2010 at 10:51am
Hoping it's short, Don....I HATE this for you....hate it for all of you!!

Hello to your lovely wife... :)

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