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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Episode Over? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1256763470 Message started by Joshua on Oct 28^th, 2009 at 4:57pm

Title: Episode Over?
Post by Joshua on Oct 28^th, 2009 at 4:57pm

So-for the past year I've been getting hits. I believed I had become chronic. Bear with me. I've gone from just verapamil, more verapamil to topamax and nerurontin and verapamil and SO much imitrex as to kill horses. I have managed to get them under control with Neruontin and verapamil, and have tapered off the neurontin and am now ONLY on 240mg of verap a day.

I've been going strong like this for 3 weeks, no hits. Do I dare taper off the verap? how long should I wait before I know I'm in the clear (or IF i am in the clear?)

Joshua

Title: Re: Episode Over?
Post by Marc on Oct 28^th, 2009 at 7:20pm

Joshua,

No one here can answer that for you. It's your call - and always will be :)

You didn't mention high flow oxygen therapy, so I can't pass up this opportunity to tell you that it rocks. In fact, some of us consider it the "front line" abortive over Imitrex.

Marc

Edit to add: "If you do it right" ;)

Title: Re: Episode Over?
Post by seaworthy on Oct 29^th, 2009 at 6:57am

I use 720 mg of verap a day . Two weeks with no shadows or hits and I begin to taper.

Title: Re: Episode Over?
Post by Joshua on Oct 29^th, 2009 at 8:01am

Hey..High flow o2 - definitely in the arsenal for when I'm home. Total lifesaver. :) I'll probably kick around on this dose for a while - and taper down after Thanksgiving.

Thanks all.