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Message started by sandie99 on Oct 26th, 2009 at 8:21am

Title: Planning a ch article in here
Post by sandie99 on Oct 26th, 2009 at 8:21am
Hi guys,

As some of you know, I'm working now as a trainee at Finnish women's weekly magazine MeNaiset (UsWomen).

I talked with one of the managing editors about writing a piece about ch. She was all for it! :) Now I'm working on a particular angle for the story.

Want to help me out in here? I have way too many ideas, in fact, I could write a whole ch theme issue! ;D

Best wishes,

Sanna

P.S. if you want to check out the magazine, this is the website:START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Title: Re: Planning a ch article in here
Post by ClusterChris on Oct 26th, 2009 at 9:27am
Maybe you should do it on migrains instead, There alot more people suffering from them. LOL just kidding. :-[ :-[ :-[(Running out of here as fast as I can).

I wouldn't know where to begin but I just want to tell ya that if you have any questions I'll help where I can.
Thank you for doing it and Good luck!!

Chris

Title: Re: Planning a ch article in here
Post by Callico on Oct 26th, 2009 at 11:39am
I would suggest you go from your own experience and tie in other sufferers that you know.  Don't make it a pity piece, but educational.  For what that's worth...

Good for you.  Keep after it.

Jerry

Title: Re: Planning a ch article in here
Post by Mosaicwench on Oct 26th, 2009 at 12:28pm
Mention the global community and the supporters - we like that! ::)

Title: Re: Planning a ch article in here
Post by Martin on Oct 26th, 2009 at 1:03pm
I'd be happy if you were able to just validate our suffering.

So many stories of CH sufferers losing colleagues, jobs, friends, families, lovers over these things. (one of my exes had enough, up and quit a few years back. that hurt.)

People have to understand how painful, how debilitating, and how hopeless we feel at times
(BUT DONT MAKE IT A PITY PIECE) LOL.  hope that confused you enough

Title: Re: Planning a ch article in here
Post by cash5542 on Oct 26th, 2009 at 1:20pm
I've been sitting here for 6 weeks with a broken leg unable to do much of anything. One of the things that gives me strenghth is watching other people overcome their handicap and get on with their lives. This is also something I've admired about CH sufferers, the will and determination to make life as strong and normal as possible. Despite this condition many manage families, careers, and college. This may be an inspirational angle to a story, just my thought.  Good luck with your story!

Charlotte

Title: Re: Planning a ch article in here
Post by sandie99 on Oct 26th, 2009 at 2:39pm
Thank you guys. :)

The managing editor was clearly planning to cover ch via 3 different angles in one story, perhaps writing about a couple who were united via ch, someone who's job is affected because of it and just perhaps I could "sell" ch online communities as the third option.

Now if I only could get 3 wonderful ch women from 3 countries together at the same place at the same time, I could get the magazine's photographer with me to cover the story! :)

Sanna

Title: Re: Planning a ch article in here
Post by gizmo on Oct 26th, 2009 at 2:57pm
In case you don't know / haven't seen: Dr. Sewell's new site START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE has some interesting things.
Maybe you can use them.

Title: Re: Planning a ch article in here
Post by Charlie on Oct 26th, 2009 at 8:57pm
Great news kid and it looks like you're getting good ideas here.

Mine is that it's important to drill into people's heads that this is something so painful that you don't lay down or relax as a way of dealing with this horror.  It's the last thing a CHer could do.

Charlie

Title: Re: Planning a ch article in here
Post by Kevin_M on Oct 27th, 2009 at 4:37am
Being for women, an informational mention of a sentence or two that diagnosis of CH in women may be reserve because of a prior, and perhaps lingering belief, it has more a propensity to afflict men when most assuredly women do get CH.  Misdiagnosis and delay by dancing around other possibilities without proper treatment of CH can lead to a variety of other noneffective drugs suggested, extending very painful daily life to bear, the reason for seeking help, requiring knowledge and time too long enough sometimes to get it managed.  I'm pretty sure frustrating experiences are available of dour example.  All positive hope though for present and future readers, someone may know someone and bring the article to their attention.  Maybe some happy endings.     :)


 


Title: Re: Planning a ch article in here
Post by LadyLuv on Oct 27th, 2009 at 10:42am
Sanna;

I think the Colleague Letter on the O.U.C.H. Web Sight contains the greatest explanation there is for CH. I carry a copy of this letter with me at all time.  When ever I give one away, I replace it with another.

I'm sure you could get a few tips for your article..

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Peace & Blessings
Lady Luv

Title: Re: Planning a ch article in here
Post by sandie99 on Oct 29th, 2009 at 3:56am
Thank you for your ideas! :)

This is exactly why I begun this tread. I might have forgotten otherwise how difficult it can be to get a proper dignosis for us women; I was lucky myself - my first neuro didn't look at my gender but my symptoms when he made the dignosis.

And when I do write the piece, I'm going to do a fact box, which contains what you mentioned, Charlie.

Ladyluv, I don't that us Finns have our own version of the letter. I have made my own version of it to my closeones, which includes treatments etc. :)

Sanna

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