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Message started by ClusterChris on Oct 13th, 2009 at 7:14pm

Title: Cluster mention on Dr. OZ
Post by ClusterChris on Oct 13th, 2009 at 7:14pm
Jut thought I'd let ya know that we got a mention on the Dr. OZ show today!!

Wasn't much but it's somethin!

Chris

Title: Re: Cluster mention on Dr. OZ
Post by Langa on Oct 13th, 2009 at 8:29pm
I like that show, but I missed that one...what exactly did he say about it?

Langa

Title: Re: Cluster mention on Dr. OZ
Post by Sandy_C on Oct 13th, 2009 at 9:28pm
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He didn't say much.

Sandy

Title: Re: Cluster mention on Dr. OZ
Post by Jill on Oct 14th, 2009 at 3:08am
That was kind of a sad description wasn't it?

I have not watched the whole video yet but he highlighted the eye part and said there was tearing of the eye, running of the nose and irritation on that side. Irritation? I would say it was more than that!

The migraines sound more like clusters except with the photo-sensitivity and nausea which I get anyways.

Good to be recognized but I so wish they would do more!

Jill

Title: Re: Cluster mention on Dr. OZ
Post by barry_sword on Oct 14th, 2009 at 7:10am
Thanks Chris.
Very disappointing the way CH's were described. This doc needs some education on CH's.
I wish at this point he didn't say any thing at all about them. [smiley=twocents.gif]

Title: Re: Cluster mention on Dr. OZ
Post by lorac on Oct 14th, 2009 at 8:35am
ya...my sister called me ...she watched it.
  she called to tell me that all I had to do is rub some peppermint on my head!!!!
   Kind of disapointing, because of all my family, I thought she was the one that understood it.

OH WELL.      

Title: Re: Cluster mention on Dr. OZ
Post by catlind on Oct 14th, 2009 at 8:57am
I just went to the site and left him a message - wondered why he didn't address clusters as the 'suicide' headaches they are known as - he has after all, said this is the show where he will talk about what no one else wants to.

Cat

Title: Re: Cluster mention on Dr. OZ
Post by Chad on Oct 14th, 2009 at 12:55pm
It appears there are not enough of us in this world who get CH.  Migraines are obviously more common and the research and medicine centers around that.  Dr. Oz's brief description was right, however he neglected to add which headache is the "worst" or most intense.  All they need to do on those talk shows is show Chuck's youtube video.  That alone should educate the intensity of this unbearable pain.

Maybe one day a person with wealth or somebody famous will get thess CH and kick some money into research.  We can only hope.

Title: Re: Cluster mention on Dr. OZ
Post by Langa on Oct 15th, 2009 at 12:57am

catlind wrote on Oct 14th, 2009 at 8:57am:
I just went to the site and left him a message - wondered why he didn't address clusters as the 'suicide' headaches they are known as - he has after all, said this is the show where he will talk about what no one else wants to.

Cat


Exactly.  We should all send him an email and maybe then he'll be better educated to discuss them.  No one else to speak for us, but us, unfortunately.

Langa

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