New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Doctors give me a headache http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1244494479 Message started by tafty on Jun 8th, 2009 at 4:54pm |
Title: Doctors give me a headache Post by tafty on Jun 8th, 2009 at 4:54pm
Hi all. I was a member years agao and thankfully I have been so under control I have not had much to say. I have suffered for 14 years now and tell the doctors what I need. Well, last week I started the worst cycle I have had in over 5 years. Prednisone..Maxalt..hot showerts.. the usuall not working.
I tried to call my new doctor who is associated with a LARGE hospital here in Cleveland....what do I get.. NOTHING. I wanted to keep my prednisone tapper higher for longer and maybe try an alyternative to maxalt. Three call backs later from assitants, and what do I get..."Do you want to try a different Doctor" This is BS. When I lived in Florida and in Conneticut I was able to find a doctor who gave a Shat and actually read something on Clusters. I am sorry to rant but I am pissed. So I started Verapamil Which I hadnt taken in over 10 years.. Upped my prednisone and looking for an O2 tank because they want me to make an appointment to come in and use O2...thats convinient huh Any Doctors in Cleveland out there that can give me some one on one time... Thanks Jason |
Title: Re: Doctors give me a headache Post by Linda_Howell on Jun 8th, 2009 at 5:47pm
Hi Jason,
Here are some sufferer reccommended Drs. in Ohio. Looks like there are 2 in the Cleveland area. Ohio Francis O'Donnell Columbus Luis Pagani Cincinnati Robert S. Kunkel Cleveland Dr. John Kelly Southeastern Center for Headache and Pain Greater Cincinnati Area Donita Rechnitzer Westlake Carl Anseven Boardman Mark Stillman Cleveland Dr. John Horn Grove City Dr. Joseph Nicolas University of Cincinnati WHO wants you to make an appointment to come in to use 02??? That's ridculus!!!!! You need a script from a Dr. to get oxygen...you take that script to a supplier like 'Apria' or Lincare" and get it filled. Barring that...can you get your hands on a welding tank? Check out the yellow link to the left of where you're reading this right now. If you have any questions....please feel free to ask us. We want to help. Linda |
Title: Re: Doctors give me a headache Post by E-Double on Jun 8th, 2009 at 10:52pm |
Title: Re: Doctors give me a headache Post by FrankF on Jun 8th, 2009 at 11:09pm
So Jason, does the doctor want you to go in so they can teach you the proper way to use O2? Or evaluate if you need O2? If it's to teach you the proper way to use O2, I can see it. Otherwise it's a waste.
I remember the first doctor who agreed to prescribe O2. I got a call from his nurse saying I needed to go in for a blood oximetry test. I promptly called the doctor and told him his stupid nurse wants me to take a blood oximetry test. I think he said something about that being bullsh*t for cluster headaches and I got the O2 anyway. |
Title: Re: Doctors give me a headache Post by Batch on Jun 9th, 2009 at 11:44am
Frank,
Excellent post! V/R, Batch |
Title: Re: Doctors give me a headache Post by Iddy on Jun 9th, 2009 at 7:26pm
I believe it was Dr M,J Stillman in Cleveland who wrote,Testosterone Replacement Therapy for Treatment Refractory Cluster Headache.
Seems he would be worth a look into. Best of luck. Iddy |
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |