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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Back after five years... http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1242759791 Message started by miCHel on May 19th, 2009 at 3:03pm |
Title: Back after five years... Post by miCHel on May 19th, 2009 at 3:03pm
Hi all,
After 5 years of being PF, guess who came back to knock on my door (and in my head) this week? God, I had almost forgotten that horrible pain :-[ It's a very weird sensation to feel this after such a long time. Strange thing is that they are hitting at about 5,6,7 on the Kip scale while they used to always hit at 8, 9, 10. That's the good news I guess... But my cycle is just beginning and I'd like to fight with everything I can So I took the dust off my old Imitrex injection pen and called my wonderful doc to get presciptions for Prednisone, Verapamil and Trex. My problem is that I can't recall what my dosages were or should be for Pred and Verapamil? Is there an "average" I should start with? I am a fairly big guy at 6'1, 215 pounds and otherwise in pretty good health. Thanks everyone. Any input I can get would be greatly appreciated. And if there is a new miracle cure out there, please feel free to let me in on it... ;) Take care! miCHel |
Title: Re: Back after five years... Post by miCHel on May 21st, 2009 at 10:10am
Thank you so much Dennis. That is exactly what I was looking for!
I do know about oxygen although I have never tried it. Well I tried it once in my doctor's office when I got hit during a visit. It did not work that time but I think the airflow was too low and I would certainly be willing to try again (especially at home). I must say the Trex shots work like magic for me. Got myself a neuro appointment for tomorrow and I should be set up to start fighting Mr Beast again... They still had my file and it turns out my remission was six years, not five. Time flies when you are PF... :P Thanks again for the precious info. Have a good one. miCHel |
Title: Re: Back after five years... Post by DennisM1045 on May 21st, 2009 at 2:22pm
I'm glad the info helped.
Like I already said, Oxygen is a much better alternative to Imitrex injections for me. I encourage you to give it another try. Good luck. I hope your cycle is a short one. -Dennis- (who is stepping off his soap box now ;)) |
Title: Re: Back after five years... Post by miCHel on May 22nd, 2009 at 2:11pm
Hi Dennis,
Thanks again. Just saw the neuro and he was great. Got my Verapamil and Imitrex injections prescriptions and he also suggested Zomig nasal spray which I have never tried. But no Pred, I was a bit surprised but he was great in explaining everything to me. As for O2, if my cycle goes bad (my hits are still low on the KIP scale), I will see my doc again in a couple of weeks and we will definitely explore this option some more. You can stay on the soap box... By the way, I think it was your Boston Bruins crushing our Habs that started my cycle... ;) |
Title: Re: Back after five years... Post by DennisM1045 on May 26th, 2009 at 11:28am miCHel wrote on May 22nd, 2009 at 2:11pm:
So sorry about the outcome there ... your CH ... not your Habs ;D Good luck... -Dennis- |
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