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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> A treatment which worked for me. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1240383223 Message started by kennie on Apr 22nd, 2009 at 2:53am |
Title: A treatment which worked for me. Post by kennie on Apr 22nd, 2009 at 2:53am
Hi everybody. Like you I am a clusterhead. I began having these appalling head-pains about 12 years ago, lasting about 10 weeks and recurring every 3 years. I'm due to start now, actually. But I want to tell you all about a medication which has kept me pain-free (touch wood) for the last two "seasons'. The drug is called Pizotifen malate, trade name Sanomigran, and it works by blocking serotonin levels, I believe. The attacks still come, but the pain is reduced to next to nothing. You need a prescription but it's widely available. Hope this works for you like it worked for me.
All the best, Kennie |
Title: Re: A treatment which worked for me. Post by ClusterChuck on Apr 22nd, 2009 at 3:13am
Hmmmm ... That is a new medication, to me, at least. I will have to have my neuro look into that one! How much do you take, and how often?
Thanks for the heads up! Chuck |
Title: Re: A treatment which worked for me. Post by kennie on Apr 22nd, 2009 at 3:31am
Hi, It's a prophylactic which means you have to take it all the time during the period you're affected, I take 1x1.5 mg every 24 hours. Before "lucking out" on this, I tried everything to no avail. It worked for me, hope it works for you.
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Title: Re: A treatment which worked for me. Post by ClusterChuck on Apr 22nd, 2009 at 3:45am
One pill, once a day? Hell, I can do that!
I just wonder how it will work, for someone like me, a chronic ... Well, I have been a guinea pig before, no reason not to be again! Piggy Chuck |
Title: Re: A treatment which worked for me. Post by deltadarlin on Apr 22nd, 2009 at 8:40am
Chuck,
Sorry to be the bearer of bad news, but it's not available in the US. It is available in Canada, though. |
Title: Re: A treatment which worked for me. Post by kennie on Apr 22nd, 2009 at 9:33am
Not available in the US? No wonder none of the messengers mention it. I live in the UK (working in China at the moment but I've got a 3 month supply in my suitcase). Could you guys order it over the Net? It's the only thing that works for me and my Doctors tried everything including Temegesic - an opiate - which just made me feel sick, and didn't even touch the pain. In my case Pizotifen is the wonder drug and if I was in the States I'd drive North, cross the border and come back with a trunk-full for you all. Wishing you pf, Kennie.
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Title: Re: A treatment which worked for me. Post by Melissa on Apr 22nd, 2009 at 4:40pm
Interesting. Thank you for sharing what works for you Kennie and I am glad it helps!
:)mel p.s. I'll be watching this thread to see others input on the chemical makeup of this particular drug. 8-) |
Title: Re: A treatment which worked for me. Post by AlienSpaceGuy on Apr 22nd, 2009 at 6:53pm
In the UK Pizotifen is on the list of approved treatments for CH; and it is RXed quite often.
However, success stories are rather infrequent. [smiley=smokin.gif] |
Title: Re: A treatment which worked for me. Post by deltadarlin on Apr 22nd, 2009 at 7:07pm |
Title: Re: A treatment which worked for me. Post by ellenjoanne on Apr 23rd, 2009 at 10:19am
Hmmmmm - VERY intriguing!! THIS I will have to keep an eye on. So far none of the "stop the cycle" prophylactics have been 100% effective for me.
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Title: Re: A treatment which worked for me. Post by ellenjoanne on Apr 23rd, 2009 at 10:23am Melissa wrote on Apr 22nd, 2009 at 4:40pm:
The Chemical makeup? - where are you in Cheesehead land? Madison at my old alma mater the UW, doing chemistry, or the med school? :) Ellen - Engineering Grad, Univ. of WI Class of '87 |
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