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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Another Bad Night
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Message started by River_Rat on Apr 16th, 2009 at 10:09am

Title: Another Bad Night
Post by River_Rat on Apr 16th, 2009 at 10:09am
Headed to the Dr. in a few min I guess I will just tell him the same as usual, verap, amerge & trex, no insurance we'll see how much of the family savings I can spend.

Can't CAN'T take another night like last night........I have a tank of 02 tried it did nothing, granted I don't have the regulator or mask but hell if you just breath the sh*$ in 100% and breath nothing else what's the diff.


PFDN


Norm

Title: Re: Another Bad Night
Post by [joHnny]w_ an_h on Apr 16th, 2009 at 11:01am

River_Rat wrote on Apr 16th, 2009 at 10:09am:
Headed to the Dr. in a few min I guess I will just tell him the same as usual, verap, amerge & trex, no insurance we'll see how much of the family savings I can spend.

Can't CAN'T take another night like last night........I have a tank of 02 tried it did nothing, granted I don't have the regulator or mask but hell if you just breath the sh*$ in 100% and breath nothing else what's the diff.


PFDN


Norm


follow through and get your regulator and some type of mask. i wonder if you could use a welders regulator.

Title: Re: Another Bad Night
Post by Bob_Johnson on Apr 16th, 2009 at 11:53am
Print out this abstract and see what your doc thinks. It's been good for a number of us and has the advantage of lower cost, per dose, compared to the triptans.
======
Headache 2001 Sep;41(8):813-6  

Olanzapine as an Abortive Agent for Cluster Headache.

Rozen TD.

Department of Neurology, Jefferson Headache Center/Thomas Jefferson University Hospital, Philadelphia, Pa.

OBJECTIVE: To evaluate olanzapine as a cluster headache abortive agent in an open-label trial. BACKGROUND: Cluster headache is the most painful headache syndrome known. There are very few recognized abortive therapies for cluster headache and fewer for patients who have contraindications to vasoconstrictive drugs. METHODS: Olanzapine was given as an abortive agent to five patients with cluster headache in an open-label trial. THE INITIAL OLANZAPINE DOSE WAS 5 MG, AND THE DOSE WAS INCREASED TO 10 MG IF THERE WAS NO PAIN RELIEF. THE DOSAGE WAS DECREASED TO 2.5 MG IF THE 5-MG DOSE WAS EFFECTIVE BUT CAUSED ADVERSE EFFECTS. To be included in the study, each patient had to treat at least two attacks with either an effective dose or the highest tolerated dose. RESULTS: Five patients completed the investigation (four men, one woman; four with chronic cluster, one with episodic cluster). Olanzapine reduced cluster pain by at least 80% in four of five patients, and two patients became headache-free after taking the drug. Olanzapine typically alleviated pain within 20 minutes after oral dosing and treatment response was consistent across multiple treated attacks. The only adverse event was sleepiness. CONCLUSIONS: Olanzapine appears to be a good abortive agent for cluster headache. IT ALLEVIATES PAIN QUICKLY AND HAS A CONSISTENT RESPONSE ACROSS MULTIPLE TREATED ATTACKS. IT APPEARS TO WORK IN BOTH EPISODIC AND CHRONIC CLUSTER HEADACHE.



--------------------------------------------------------------------------------

Olanzapine has a brand name of "Zyprexa" and is a antipsychotic. Don't be put off by this primary usage. Several of the drugs used to treat CH are cross over applications, that is, drugs approved by the FDA for one purpose which are found to be effective with unrelated conditions--BJ.

Title: Re: Another Bad Night
Post by Em on Apr 16th, 2009 at 12:22pm
Sorry to hear you're having a rough time at the mo. Have you tried melatonin at all? I know there are quite a few people on here who use it for the night time. For me, it was a godsend.

Hoping you get a break soon.

Em
x

Title: Re: Another Bad Night
Post by chrisw on Apr 16th, 2009 at 10:22pm
God, I know that a couple of those nights ina row can make you want to throw in the towel,   Please do yourself a huge favor and get the right mask and regulator for the O2. It didnt work for me either until I had the right equiptment.

When I think of the suffering I went through, and all the meds I took throughout the years it makes me crazy that the answer was right there, cheap, drug free and unknown to me because my doctor was a moron (but his ego prevented him from telling me that he didnt know what to do for me)

Try again with the tank, and you might save yourself alot of money.  Now I just save my imitrex for when Im away from home.(they also just came out with a generic which is probably alot cheaper)

good luck and hang in there.

chris

Title: Re: Another Bad Night
Post by Brew on Apr 16th, 2009 at 10:45pm
See if you can hit your doc up for some samples of Amerge. They're free, and they should buy you some time to get the regulator and mask.

Title: Re: Another Bad Night
Post by kevmd on Apr 20th, 2009 at 9:28pm
You'll make it.  Worse case try hot shower/cold shower alternating.  Try pushups.  Get some energy drinks.  Don;t stop fighting

Title: Re: Another Bad Night
Post by River_Rat on Apr 21st, 2009 at 9:55am
Kinda weird, I got hammered so hard-------------12+ CH a day/night all hitting kip 7's and above, went to the doc he prescribed the usual verapamil, trex and amerge, (I couldn't afford the amerge) took 6 injections in 2 days and doubled my verap dosage and Friday night was my last hit, having a few shadows but very minor..........................hmmmmmmmmmmmm I don't think it's over but it's a nice relief and I'm keeping my fingers crossed.

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