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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Topamax- back to the drawing board
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Message started by Katie on Mar 31st, 2009 at 3:34pm

Title: Topamax- back to the drawing board
Post by Katie on Mar 31st, 2009 at 3:34pm
And it was going so well.
Broke out with the most increadibly itchy rash that has just spread and spread no matter what I tried to do to damp it down.
Spoken with GP as soon as it started, spoke with the headache clinic.
Thats it.
I have managed to scratch and chew through severe eczema sleep tops in my sleep and kept my husband awake from the scrit noise more than I ever did using O2 and muttering about CH. I cannot focus on essays from trying not to scratch.
Its gone beyond something I can live with and I am not prepared to take any more as I have almost run out of skin that does not have dermitisis.
Looks like this is another preventative drug for the 'and also rans' list.

Fed up. This was one drug that actually  helped with the headaches.  >:(



Title: Re: Topamax- back to the drawing board
Post by Bob_Johnson on Mar 31st, 2009 at 4:28pm
I am discouraged by docs who don't start with the old stand-bys like Verapamil--a known track record.

Top. is the latest thing in the literature which means it hasn't had sufficient time of field experience to reveal the side effects, etc.


Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive
and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002)
 
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
============================================

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
ALL NEW!! HEADACHE 2008-2009
The new 72 page Headache 2008-2009 is hot off the press! Click here to download the PDF instantly! (free)

If you would like a bound copy, send $12 (includes shipping) to
Robbins Headache Clinic
1535 Lake Cook Rd.
Suite 506
Northbrook, Ill.60062

OR call 847-480-9399 to use Visa or Mastercard.




Title: Re: Topamax- back to the drawing board
Post by DennisM1045 on Mar 31st, 2009 at 4:28pm
Sorry Katie,

I hope you find an effective substitute quickly.

-Dennis-

Title: Re: Topamax- back to the drawing board
Post by Katie on Mar 31st, 2009 at 5:58pm
The anti-convulscents group have been the best to date at tackling the happy mix of chronic migraine and notching down episodic CH.  
The hospital is trying to find the one that gives best pain relief but least side effects for me that will allow me to step up during CH and step down for migraine.
Just a tad po'ed as I was beginning to think after 20 years I had finally found something that was working for both.



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