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Cluster Headache Help and Support >> Cluster Headache Specific >> im back
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Message started by finn on Mar 25th, 2009 at 7:39pm

Title: im back
Post by finn on Mar 25th, 2009 at 7:39pm
:'( anything new? im on o2 and imetrex (sumatriptan purchased in mex for 4 bucks a pill ) pretty decent managing it so far, having one right now and th e02 isnt killing it,  man oh man

Title: Re: im back
Post by finn on Mar 25th, 2009 at 7:50pm
ok so yeah the good ole oz kicked in and a pill,, im one of those guys that hates to think about it when im not cycling too,,, sorry im like that,, i looked around it doesnt look like anything majjor has happened except i think that the patent for sumatriptan must have lapsed becouse there generics and now imitrex adds naproxen o the suma and all of a sudden its a new med? fukin retardedt

Title: Re: im back
Post by Kirk on Mar 25th, 2009 at 7:57pm
  So how are you using the O2 that it isn't workin fer ya?  I use a non-rebreather mask @ 20 LPM, but a lot of people use it at 15 LPM with good results. Never had any luck with the pills myself.
[smiley=smokin.gif]

Title: Re: im back
Post by finn on Mar 25th, 2009 at 8:58pm
it eneded up working in conjunction with a pill,, keep in mind the monster is there it just isnt at devcon 10

Title: Re: im back
Post by Guiseppi on Mar 26th, 2009 at 12:17am
Do you have a decent preventative medication yet? I use lithium while on cycle, blocks 70-80% of my attacks. Others have had success with verapamil or topomax. Many to read about and talk with your doc.

Do read the oxygen info link on the left and make sure you're using it correctly. people dramatically improve their abort rates with small adjustments, the right mask, flow rate etc.

Hoping you catch a short cycle.

joe

Title: Re: im back
Post by Bob_Johnson on Mar 26th, 2009 at 10:05am
Here is the current practice:

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Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002)
================
Michigan Headache & Neurological Institute for another list of treatments and other articles:

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Cluster headache.
From: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]


 


Title: Re: im back
Post by finn on Mar 26th, 2009 at 3:11pm
thanks guys i appreciate it, ive gone down the steroid,inderal, and everything else except the lythium,, does that make you sluggish?? as i said the o2 is working really good ,,15 on the dial i have one right by my bed and one right by my desk(people think im dying) then pop the occasional imi ,, so whats the long term effects of imitrex? and honestly do you guys think that this thing is slowley killing us? are we suseptable to stokes? alzhiemers? i mean my brain is bad it cant be ok for this to be happening

Title: Re: im back
Post by finn on Mar 27th, 2009 at 12:56pm
4hr monster ending a blubbery mess in front my employees, scared them to death

Title: Re: im back
Post by Guiseppi on Mar 27th, 2009 at 1:03pm
I'm one who uses lithium as a prevent. Forget the hollywood stereotypes of mouth breathing zombies! ;D The dose we use is substantially less then what the people who take it for psyche reasons. I use 1200 mg a day while on cycle. It makes you pee a lot the first 2 weeks and you feel a little sluggish, nothing a cup of coffee doesn't completely eliminate. After you've been on it a couple of weeks you honestly don't notice it.

That being said it's a high octane medication that must be supervised by a doctor to establish what your safe level is. It's been my silver bullet, blocks 70-80% of my hits. I use oxygen for the ones that break through.

As to the long term effects of imitrex....don't know bout that?

Joe

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