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Cluster Headache Help and Support >> Cluster Headache Specific >> What happens to me?:'(:'(
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Message started by khaled689 on Mar 17th, 2009 at 6:57pm

Title: What happens to me?:'(:'(
Post by khaled689 on Mar 17th, 2009 at 6:57pm
The headaches started last October in the left corner and called the doctor topamax 100mg a day, due to inflammation of nerves Sidalud neck, two weeks after cessation of treatment, headache treatment and lasted well for 3 months

The doctor had been cut off by order of treatment and after one week, but the headache returned on the right side and not in the
left

After returning for treatment and for a period of two weeks did not improve the situation and left headache, left shift in the increase in the most :'(

Title: Re: What happens to me?:'(:'(
Post by Linda_Howell on Mar 17th, 2009 at 7:08pm
I'm sorry, but I am not understanding.  Could you be a little more specific in what we can help you with?

Linda

Title: Re: What happens to me?:'(:'(
Post by on my knees on Mar 17th, 2009 at 9:31pm
i would offer help possibly but like Linda said, you lost me in the post
its obvious you have something to say or ask.  i am just not getting it.

Title: Re: What happens to me?:'(:'(
Post by Linda_Howell on Mar 17th, 2009 at 11:32pm
We really DO want to try to help but it is obvious that English is not your language and we are at a loss as to understand.


If you are saying that your cluster headaches have changed from right to left...yes.  That happens and it means nothing in the scheme of things.

Topomax may have something to do with a LOT of it.

I hope you can write back and make things clearer.  :-?

Title: Re: What happens to me?:'(:'(
Post by [joHnny]w_ an_h on Mar 18th, 2009 at 12:21am
be sure to give your medication some time to work before you decide they don't work.


i hope i answered you question. give us some time and we'll get you figured out. ;)

Title: Re: What happens to me?:'(:'(
Post by Kimmie on Mar 18th, 2009 at 11:24am
Are you inquiring about why you started your cycle in one side and it switched to the other?

If so that has been somewhat a common "phenomenon" in some people.

I too, like Ms. Linda am "lost in translation".

Can you be REALLY specific?

Kimmie

Title: Re: What happens to me?:'(:'(
Post by khaled689 on Mar 18th, 2009 at 11:47am
Sorry for my bad English.
I suffered from cluster headaches for 11 years.
For the first time, hit two sessions in one year in two different side(left and right) and I will have no capacity for patience in the possibility of pain

Title: Re: What happens to me?:'(:'(
Post by DennisM1045 on Mar 18th, 2009 at 12:31pm
Well that's clearer...  You keep talking and we'll keep listening... Eventually we'll figure out how to help you.

What treatments have you used in the past and how effective were they?

How / when were you diagnosed with CH?

Any time the beast changes form like that (switching sides) I'd head back to my Doctor to make sure something else isn't going on.

-Dennis-

Title: Re: What happens to me?:'(:'(
Post by Guiseppi on Mar 18th, 2009 at 7:00pm
Welcome to the board, can you get someone to help you with your english? There are a lot of people here who'd love to help you. What meds have you tried, what has and hasn't worked and do you have oxygen yet? Hang in there.

Joe

Title: Re: What happens to me?:'(:'(
Post by khaled689 on Mar 18th, 2009 at 7:20pm
I suffered a lot during the past years did not know what patients and doctors had diagnosed that I'm having migraines.

In the last three years started my suffering unbearable headaches to neck and shoulders

Finally, after a visit of approximately 14 consultant consultant nerve and found the situation as a person with cluster headaches, nerve inflammation in the fifth.

He described to me topamax 100mg for 3 months for the headaches and soldalud 2mg of neuritis .a month after treatment began n the headaches go

After stopping the treatment in the headache returned the other saide, for the first time this happened to me to hit consecutive two sessions in one year

Unbearable pain and people at home and work do not know the size of the pain

Title: Re: What happens to me?:'(:'(
Post by Linda_Howell on Mar 18th, 2009 at 7:23pm
Joe is right.  We have a LOT of people here,  for whom English is not their first language.  Where are you from, maybe we have someone here who can help translate a bit better so we can help you.

Linda

Title: Re: What happens to me?:'(:'(
Post by khaled689 on Mar 18th, 2009 at 7:44pm
Middle East

Title: Re: What happens to me?:'(:'(
Post by Guiseppi on Mar 18th, 2009 at 7:46pm
Sounds like the topomax stopped the headches? That's great, it's been an effective treatment for many. If I understand you, when the headaches returned, they switched sides on you? That happens. I'd suggest going back to your doc and getting back on Topomax. Also, read the link on the left titled "Oxygen Info" and try that also. I can stop an attack in as little as 6-8 minutes using oxygen.

Do stick around, we'll help you any way we can.

Joe

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