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Cluster Headache Help and Support >> Cluster Headache Specific >> I'm back... maybe
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Message started by maureenv on Mar 15th, 2009 at 1:54am

Title: I'm back... maybe
Post by maureenv on Mar 15th, 2009 at 1:54am
Well it's been almost 3 years since my last cycle, it is usually 2 yrs between my cycles as has been the way for the last 23 yrs, I am not complaining by any means just feeling like a fish out of water.

The last month I have had most ch symptoms but no pain, watery eye, tender spot on head, even shadows of sorts. I am hoping maybe this is my cycle (meaning no pain) but unsure as I have never had them this far apart. I was wondering if anyone else has had this kind of experience with them?
I am hoping I have managed to fall off the beasts radar or could it be that my ch is changing routine?
any imput would really help.

Thanks, wishing you pf days and nights

Title: Re: I'm back... maybe
Post by Pixie-elf on Mar 15th, 2009 at 2:39am

maureenv wrote on Mar 15th, 2009 at 1:54am:
Well it's been almost 3 years since my last cycle, it is usually 2 yrs between my cycles as has been the way for the last 23 yrs, I am not complaining by any means just feeling like a fish out of water.

The last month I have had most ch symptoms but no pain, watery eye, tender spot on head, even shadows of sorts. I am hoping maybe this is my cycle (meaning no pain) but unsure as I have never had them this far apart. I was wondering if anyone else has had this kind of experience with them?
I am hoping I have managed to fall off the beasts radar or could it be that my ch is changing routine?
any imput would really help.

Thanks, wishing you pf days and nights


Well, there's one article on the OUCH site about this...

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

I'm not really sure what it means for you, other than you're not alone in experiencing it... Hopefully the beast will stay away.

PFDAN
Mystina

Title: Re: I'm back... maybe
Post by Guiseppi on Mar 15th, 2009 at 3:50am
As I've aged my cycles have gotten much harder to predict, and far more irregular. I'm 2 cycles behind so again I'm convincing myself I'm "cured" and they'll never come back. (While still keeping 8 E-Tanks in my garage!)

One of the most frustrating aspects of the beast is his ability to morph so often. Hoping you catch a quick cycle with nothing but shadows!

Joe

Title: Re: I'm back... maybe
Post by maureenv on Mar 15th, 2009 at 1:26pm
Thanks, the thought of even having the cycles less often is enough to raise my spirits. At least I have some kind of idea.

I still have 4 e tanks stashed in the basement as well, never hurts to be prepared ;)

Title: Re: I'm back... maybe
Post by AussieBrian on Mar 15th, 2009 at 9:16pm

maureenv wrote on Mar 15th, 2009 at 1:54am:
The last month I have had most ch symptoms but no pain....

That neatly describes "Phantom CH". Those of us who get them know exactly what you're talking about and everyone one else thinks we're mad.

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