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Cluster Headache Help and Support >> Cluster Headache Specific >> What gives? ?
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Message started by Jeannie on Mar 12th, 2009 at 11:32am

Title: What gives? ?
Post by Jeannie on Mar 12th, 2009 at 11:32am
The weather's been crazy here!  It's 25○  right now.  Tuesday it was 78○.   It's been going back and forth for a while.

I'm noticing that when we have a few nice days in a row, I am shadowing lots.  When it turns cold again I feel fine.   When I look back it seems that the earlier the weather turns nice, the sooner and longer my cycles are.  

Even after 28 years I'm still trying to figure this all out. :-/

PF wishes,

Jeannie

Title: Re: What gives? ?
Post by ClusterChuck on Mar 12th, 2009 at 11:52am

Jeannie wrote on Mar 12th, 2009 at 11:32am:
Even after 28 years I'm still trying to figure this all out.

Darlin, I have had this for 30 years, now.  I guess my longer experience has allowed me to figure it out.   ;)

Let me explain it for you:  As SOON as you think you have it worked out, and know what to expect, the beast morphs on you ... JUST to mess with your head.  It is the nature of the beast.

It is almost like having a toddler, running wild, in your head, with an icepick, for 28 or 30 or whatever years!

Hang in there, girl, YOU can make it through this!

Chuck


Title: Re: What gives? ?
Post by Melissa on Mar 12th, 2009 at 12:19pm
Jeannie, even though I finished my cycle 2 weeks ago (almost), the weather patterns are still affecting me and I too shadow heavily.

It sucks!

Title: Re: What gives? ?
Post by midwestbeth on Mar 13th, 2009 at 10:00am
Jeannie,  I hear you!  The crazy weather is messing with my head too.  I didn't realize, until I read your post, that my shadows occurred on the warmer days.  Hmmmmmmm.....I don't even try to figure out cycles anymore, mine always are morphing.

Hurry up spring.......Stay away beast!!!!

Beth

Title: Re: What gives? ?
Post by Jeannie on Mar 13th, 2009 at 10:06am
It sucks to look forward to and DREAD the warm weather all at the same time!

Sometimes I think I imagine it.  It's nice to know I'm not crazy!   Thanks for letting me know that it happens to you guys as well.  I'm sorry it does though! [smiley=hug.gif]

Jeannie

Title: Re: What gives? ?
Post by Ray on Mar 13th, 2009 at 10:12am
I understand the dread, however, being chronic means I always have to have my tools (oxygen and imitrex) at the ready.  The knowledge that I'm prepared with the tools offsets the dread for me.  Pehaps it could help you too.  

Wishing you well,

Ray

Title: Re: What gives? New question 3/13
Post by Jeannie on Mar 13th, 2009 at 4:30pm
Has anyone ever noticed being extremely tired and cold all the time in the days before a cycle starts?

PF wishes,

Jeannie

Title: Re: What gives? ?
Post by Racer1_NC on Mar 13th, 2009 at 4:46pm
Tired yes....cold...not so much.

Title: Re: What gives? ?
Post by QnHeartMM on Mar 13th, 2009 at 6:37pm
I know that Joe has a very small comfort-temperature range when he's in cycle. seriously, like 5-8 degrees either way.

When it's me it gets blamed on PMS, being a woman in my late 40's etc. But for him, just CH!

Title: Re: What gives? New question 3/13
Post by Brew on Mar 13th, 2009 at 8:48pm

Jeannie wrote on Mar 13th, 2009 at 4:30pm:
Has anyone ever noticed being extremely tired and cold all the time in the days before a cycle starts?

I'm tired all the time. Cycle, no cycle, whatever. Tired, yes.

Title: Re: What gives? ?
Post by Linda_Howell on Mar 13th, 2009 at 9:18pm
Just my 2 cents as a chronic sufferer.

Cold=vasoconstriction
Warm/hot=vasodilaltion

Title: Re: What gives? ?
Post by Marc on Mar 13th, 2009 at 9:45pm

Linda_Howell wrote on Mar 13th, 2009 at 9:18pm:
Just my 2 cents as a chronic sufferer.

Cold=vasoconstriction
Warm/hot=vasodilaltion


Heat Bad
Cold Good

Title: Re: What gives? ?
Post by ANNSIE on Mar 14th, 2009 at 2:41am

My late husband"s CH was always worse when there was stormy weather and when it was hot. Cold dry days were better for him.


Title: Re: What gives? ?
Post by BarbaraD on Mar 14th, 2009 at 5:38am
Watch the barometer... I started doing this and when it's rising my head morphs up big time. When it's falling - I do really well. Above 30, I get hit - below I have a nice day.

I HATE this time of year.  We had spring last week and now it's winter again - supposed to have spring starting again Tuesday... It's been raining since last Wednesday and below freezing every night... Next week it's going to be in the 80s -- I feel like someone is standing at the backdoor with a sledge-hammer.... Oh well - such is the life of a CHer.... :) :)

Hugs BD

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