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Cluster Headache Help and Support >> Cluster Headache Specific >> CH Awareness Campaign
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Message started by Andrew F. Hurt on Mar 8th, 2009 at 5:15pm

Title: CH Awareness Campaign
Post by Andrew F. Hurt on Mar 8th, 2009 at 5:15pm
My name is Andrew F. Hurt and I have been working in the field of cluster headache research for about seven years. I am now mounting a major public education initiative to spread awareness and promote the prompt and effective treatment of CH. To this end, I am traveling around the country interviewing ordinary sufferers of CH and recording their stories. If you would like to be involved in this project, please contact me. Anybody's participation, in whatever capacity possible, is most welcome. Thank you.

Title: Re: CH Awareness Campaign
Post by ClusterChuck on Mar 8th, 2009 at 5:37pm

Andrew F. Hurt wrote on Mar 8th, 2009 at 5:15pm:
My name is Andrew F. Hurt and I have been working in the field of cluster headache research for about seven years.

Could you elaborate on that a bit:  
>   WHERE have you been working on the research?  
>   In what capacity?  
>   Why cluster headaches?  
>   What are your credentials to enable you to do this research?  
>   What will happen to the results of your research?

Please don't get me wrong.  I am NOT against this at all.  I would just like to know who I/we will be dealing with, that is all.

If you are legitimate, I would LOVE to be involved with your project and submit my experiences with the beast.

Chuck


Title: Re: CH Awareness Campaign
Post by Brew on Mar 8th, 2009 at 5:40pm
I only speak for myself, but I'd need to know more about your credentials before I'd give you word one about my personal information.

Edited to add: And I'm sorry if your name just sounds like too much of a snow job. Andy Hurt? What are the chances?

Title: Re: CH Awareness Campaign
Post by Kevin_M on Mar 8th, 2009 at 5:45pm
Very fuzzy, but I think there's been mention of a doctor with this name in Houston.

Title: Re: CH Awareness Campaign
Post by Brew on Mar 8th, 2009 at 5:48pm
I don't rule out coincidences, but I'd still need to know more.

Title: Re: CH Awareness Campaign
Post by Mrs Deej on Mar 8th, 2009 at 5:58pm
I second EVERYTHING Chuck said/asked...

I would appreciate a contact so we can discuss your project as well!


Title: Re: CH Awareness Campaign
Post by on my knees on Mar 8th, 2009 at 6:17pm
i need more info as well, our stories are not always pretty and we have had to out of necessity doubt vague info.  if it is legitament im all into it, but need more info.

Title: Re: CH Awareness Campaign
Post by ANNSIE on Mar 8th, 2009 at 6:20pm

I have some more questions to ask please :

- Who is funding your research and who is backing you on this awareness campaign ?

- What are the results of your research so far ? Have they been published and where?

- What are your recommendation as to "prompt and and effective " treatment of CH ?

Thank you

Title: Re: CH Awareness Campaign
Post by ClusterChuck on Mar 8th, 2009 at 6:21pm
PLEASE don't think we are against this sort of thing!  It is just that we have had our fair share of charlatans coming in here to try and pull some sort of stunt.

Are we over protective?  I don't think so.  In today's "online" society, we have to be VERY careful of who we give any information to.

Just satisfy our concerns, and you will have PLENTY of volunteers!

Chuck

Title: Re: CH Awareness Campaign
Post by purpleydog on Mar 8th, 2009 at 7:32pm
Andrew, in addition to the questions Chuck asked... Who are you with? Who is producing this documentary? Who is backing you on this?

What kind of research are you doing on cluster headaches? Are you researching certain aspects of CH? is there a specific area you are looking at? What have you published so far on CH, and where? We'd like to read the publications

I googled his name, came up with facebook, and that's it. I figure if he's published anywhere on the research, it would come up.

Title: Re: CH Awareness Campaign
Post by Kevin_M on Mar 8th, 2009 at 8:31pm
Attempting to look, this is all I could find with cluster headache and the last name:


Mathew NT, Hurt W: Radiofrequency trigeminal gangliolysis in the treatment of chronic intractable cluster headache. Headache 25:166, 1985.

Mathew NT, Hurt W: Percutaneous radiofrequency trigeminal gangliorhizolysis in intractable cluster headache. Headache 28:328-331, 1988.



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Title: Re: CH Awareness Campaign
Post by Kimmie on Mar 8th, 2009 at 10:59pm
Just like an officer of the law:

" License and registration please!" [smiley=undecided.gif]

Title: Re: CH Awareness Campaign
Post by BarbaraD on Mar 9th, 2009 at 5:56am
Are you the Andrew Hurt I talked to several years ago (Dr. Hurt's son)?

If so, he comes with good credentials... And he has been working on CH for years.

And insofar as the name goes. It does sound a little strange, but when I went to Dr. Hurt he laughed about it and said the really funny part of it was that he trained under a Dr. Sweet and they had a running joke - if Dr. Sweet got ticked at you then he gave you to Dr. Hurt :).

Andrew, if you are who I think you are, I'm sure you'll have more support here than you'll ever hope for. Please tell us more.

Hugs BD

Title: Re: CH Awareness Campaign
Post by Kevin_M on Mar 9th, 2009 at 6:18am

Quote:
Mathew NT, Hurt W: Radiofrequency trigeminal gangliolysis in the treatment of chronic intractable cluster headache. Headache 25:166, 1985.

Mathew NT, Hurt W: Percutaneous radiofrequency trigeminal gangliorhizolysis in intractable cluster headache. Headache 28:328-331, 1988.



If so, this could be his father, Dr. Wayne Hurt.



 



Title: Re: CH Awareness Campaign
Post by BarbaraD on Mar 9th, 2009 at 6:54am
Let me say something here folks. Wayne Hurt operated on me back in 99 and some of you have heard me talk about him before , but for those who haven't.... MY surgery was NOT a success, but I have nothing but GOOD to say about Dr. Hurt and have recommended him to anyone who was contemplating that surgery.

A few years back, his son called up out of the clear blue to see how I was doing years later (he was researching patients who'd had the surgery to see how they were doing). At the time he was working with his father on this project.

so if you want to google - try Wayne Hurt in Houston. The man has spent most of his career on TN and CH and is about the most knowledgable person I can think of on both. I've talked to some of his other patients (some the surgery worked and some it didn't) and they all feel the same way about him that I do. He's a neuro-surgeron without an ego.

I've Pmed Andrew and asked him to verify that he's the same one I talked to and if he is - he's got 100% of my support.

Hugs BD
p.s.  I just checked and Andrew is Dr. Hunt's son, so he's got my support....

Title: Re: CH Awareness Campaign
Post by vietvet2tours on Mar 10th, 2009 at 4:45pm
Andrew I've seen you pop in and out a few times a day these past couple of days.  Cat got your tongue?

                   Kinder gentler Potter

Title: Re: CH Awareness Campaign
Post by Linda_Howell on Mar 10th, 2009 at 5:03pm
Andrew,  O.U.C.H. is having our annual convention in St. Louis this year.  If you're anywhere near there in July you could meet up with lots of cluster headache sufferers.

   
The 2009 OUCH Convention will be held July 23-26 in St Louis, MO at the Crown Plaza Hotel, St Louis Airport.  Here is the link:

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Linda Howell

   

Title: Re: CH Awareness Campaign
Post by slhaas on Mar 11th, 2009 at 6:52pm
I too would love to help, but am very cautious of such a vague notation of your own identification.  If you offer to pay me for my troubles, and the funding is going to come from, say, a Nigerian prince, we really have a problem.

I second the idea of attending the conference.  If you're legit this would be quite a cost effective way for you to meet & talk to sufferers from all over the country, and possibly globe.  You'd also get people from all walks of life and suffering at different levels, as well as some of their supporters.  

Title: Re: CH Awareness Campaign
Post by BarbaraD on Mar 12th, 2009 at 5:32am
NOTE TO EVERYONE:

I've been in contact with Andrew and he is who I thought he was. I've talked to him in the past and he has been involved with CH for years, so I'll vouch for him 100%.

He's decided to take a different tact with his study.

I think it would be nice if OUCH contacted him and asked him to speak at convention. Right now I'm hurting and I'm willing to get into any study that might bring any kind of breakthru for us. Last year brought an O2 study that helped me a lot, so who knows what the future might bring.

Hugs BD

Title: Re: CH Awareness Campaign
Post by Brew on Mar 12th, 2009 at 8:21am
But now who'll vouch for you? ;)

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