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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> hi im new & @ my wits end http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1235248074 Message started by worriedwife on Feb 21^st, 2009 at 3:27pm

Title: hi im new & @ my wits end
Post by worriedwife on Feb 21^st, 2009 at 3:27pm

hi im charlotte my once easy going handsome husband is going slowly insane with the pain PLEASE some1 talk to me

Title: Re: hi im new & @ my wits end
Post by vietvet2tours on Feb 21^st, 2009 at 3:32pm

What is his problem?

Kinder gentler Potter

Title: Re: hi im new & @ my wits end
Post by flipperlips on Feb 21^st, 2009 at 3:40pm

Hi Charlotte and welcome.

Can you tell us a little bit more about what's going on with your hubby? Has he been properly diagnosed with CH by a neurologist? Is he currently taking any meds? Is anything working to help him with his pain?

Title: Re: hi im new & @ my wits end
Post by coach_bill on Feb 21^st, 2009 at 3:43pm

Hello, Im Bill, 40m from cleveland. I've had Ch since my early 20s and it does tend to hurt not only me but my whole family. So 1st i want to say thank you for him, without you right now he would be in big trouble. What kind of meds is he on. Get him to a doctor if not!! also there is 02 treatment now and so many prevents out there now so there is no need to keep suffering. But for now go get some redbulls or keep coffee on the ready. tell him on the onset to drop and do 30 push-ups, wait 30 seconds and do it again.... Most of all just dont sit and take it, Keep trying things like the coffee or redbull on the onset. Just keep fighting.. Never let him give in to this crap.

Challening, More assertive.. Coach Bill >:(

Title: Re: hi im new & @ my wits end
Post by MikeCincy on Feb 21^st, 2009 at 4:03pm

You are already helping your husband by simply reaching out to others in an attempt to understand what he is going through. I just found this site today and I have been suffering with CH for more than 12 years. Having just found this most excellent of resources I encourage you to browse this site and specifically to read "The Devil" (link on left side of page on main screen) and also to Wikipedia and read their definition of cluster headaches. Suffice it to say that CH pain is considered the most excruciating pain known to medical science. Also encourage your husband to view this site. I can't believe that, after more than 12 years of people thinking I'm crazy and alomost convincing myself that I must be imagining this condition, there is a place where people inflicted with this most cruel of diseases can connect with others in the same boat. Good luck!

Title: Re: hi im new & @ my wits end
Post by Guiseppi on Feb 21^st, 2009 at 11:03pm

Drag his stubborn butt, (God we men can be stubborn!) to the board. No one should have to face this without support from people who know exactly what he's going through. Thanks so much for being a supporter. My wife found this board for me many years ago and saved my sanity. Hang in there.

Joe

Title: Re: hi im new & @ my wits end
Post by [joHnny]w_ an_h on Feb 21^st, 2009 at 11:34pm

worriedwife wrote on Feb 21^st, 2009 at 3:27pm:

hi im charlotte my once easy going handsome husband is going slowly insane with the pain PLEASE some1 talk to me

i often compare an attack to that scene in "american werewolf in london" when he's sitting on the couch watching tv and all the sudden he starts screaming and the fanges come out. watching someone you love go through this is tough.

the more time you spend on this site researching the stonger you will get. anything you have trouble with, post it. thats why we're here. become a junky if you have too. thats what i did. not only did it help but i've made friends with with some good people that understand what i'm going through. ;)
i've been painfree for a year and i still hang out.

Title: Re: hi im new & @ my wits end
Post by worriedwife on Feb 22^nd, 2009 at 4:33am

thanks for your reply, my hubby wants to know if u ever heard of clusters changing from one sided pain to both sides cuz thats whats happening to him

Title: Re: hi im new & @ my wits end
Post by distressed on Feb 22^nd, 2009 at 5:18am

yes, it can swtich sides. i jus read it on emidicine

Title: Re: hi im new & @ my wits end
Post by Guiseppi on Feb 22^nd, 2009 at 12:05pm

Sadly yes, several have switched sides between cycles, a few even switched sides DURING a cycle. Like just a one sided affliction isn't enough!! :'(

Joe

Title: Re: hi im new & @ my wits end
Post by Linda_Howell on Feb 22^nd, 2009 at 1:06pm

Quote:

if u ever heard of clusters changing from one sided pain to both sides cuz thats whats happening to him

Uh, guys? I might be the one mis-reading what she wrote here, but I think she's saying he has the pain in both sides at the same time.

IF that's what you're saying worried wife, the answer is yes. It is VERY rare for that to happen though. In 21 years of being chronic, that happened to me one time. Good thing there were no guns in the house.

Title: Re: hi im new & @ my wits end
Post by deltadarlin on Feb 22^nd, 2009 at 7:55pm

Linda,
Read it same as you.

Carolyn

Title: Re: hi im new & @ my wits end
Post by worriedwife on Feb 27^th, 2009 at 3:24pm

sorry guys YES that is what i meant as im still getting used to this site i only just saw your replies... So now i know how rare that is its just making me more and more determined to get these damn QUACKS to Rx 02 :(

Title: Re: hi im new & @ my wits end
Post by QnHeartMM on Feb 27^th, 2009 at 4:51pm

Best of luck Charlotte. Know that you are doing right by him and YOU by researching and discussing his CH here. Take everything on the oxygen info to his doctor. If that doesn't work, find a new doctor! We have people in the UK that post regularly to the board so you should be able to get referrals.

What part of the UK are you in?

Title: Re: hi im new & @ my wits end
Post by kevmd on Feb 27^th, 2009 at 10:32pm

Linda is certainly smarter than the rest of us clowns ;D
Yes....if he has been diagnosed properly, then he needs the o2. Last year and every other cycle I previously had was causing me to lose my mind. With o2, CH isn't so bad for me. It is a life saver